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The Diann Shaddox Foundation is leading the way to find new therapies and a cure for Essential Tremor.
Grassroots advocacy is the core of our mission and the driving force behind our foundation's initiative. By uniting, we can effectively influence legislation, shape policy, and drive medical research to enhance the quality of life for all affected by ET.
Your involvement can help elevate unheard voices and prioritize the ET community's needs. We need the world to understand that Essential Tremor is more than just tremors. With your help, we can find a cure and make a difference!
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Updates
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The latest Updates from the Foundation
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Ask the MD
ET Talks Saturday, 2026 Register >>> Time: 2:00 pm ET Duration: 1 hr.
Register Now >>> ET Worldwide FB Group Join Now >>>
In the News $5 Challenge for Essential Tremor Join the $5 challenge now and take a stand for those living with ET! A contribution of just $5 from everyone you know will make a substantial difference. It’s time to act—together, we can collect a powerful amount of support that will change lives. Don’t wait; your commitment is vital to creating a brighter future! Your support matters—let's see how many $5 we can gather to bring about meaningful change! Learn More >>> |
ET Stories 
‘Change is possible’: CTV News cameraman Kirk Neff describes overwhelming response after sharing his story
It’s amazing how life has a way of falling into place, not just in other people’s lives, but in your own.
As a cinematographer and storyteller, I’ve spent more than 30 years telling other people’s stories. But when you suddenly become the focus, and your journey gives others hope, it’s a feeling that’s impossible to describe. Learn More >>> |
"We recognize the significance of this responsibility, and I want everyone to feel assured that we are actively working to get this done. No one knows Essential Tremor better than someone who lives with it."
Diann Shaddox, Founder, lives with ET.
Exciting News!!!!
Praxis Precision Medicines announced that the FDA has granted Breakthrough Therapy Designation for ulixacaltamide in essential tremor, based on positive topline results from our Essential3 Phase 3 program.
We recently completed our pre-NDA meeting with the FDA and remain on track to submit a New Drug Application in early 2026
Praxis Precision Medicines announced that the FDA has granted Breakthrough Therapy Designation for ulixacaltamide in essential tremor, based on positive topline results from our Essential3 Phase 3 program.
We recently completed our pre-NDA meeting with the FDA and remain on track to submit a New Drug Application in early 2026
DSF Millions of Faces of Essential Tremor
THESE ARE REAL PEOPLE LIVING EVERY DAY WITH ET.
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There are many ways and resources to join the fight for ET.
Your unwavering support fuels our research. We are advancing toward a brighter future and new treatments.
Together, let's find a cure for ET.
Tell your ET StoriesYou are your best ET advocate. Tell your story to the world. For every person telling their story, millions are living in silence. >>> Learn More
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Take Action for ETStand firm to support ET disease! Advocate passionately for the rights and needs of all patients, demanding new treatments and a cure. >>> Learn More
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Ways to Give Donating to the Diann Shaddox Foundation funds ET research to develop treatments, understand causes, and find a cure. >>> Learn More
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Why Give to the Diann Shaddox Foundation
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The Foundation mobilizes resources and data for our ET Research which investigates ET disease's causes. Our mission is to uncover its mysteries and find a groundbreaking cure that transforms lives. We won't stop until we succeed.
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Putting patients first involves addressing their physical, mental, and emotional needs. DSF advocates for recognition and change, aiming to improve their quality of life and health outcomes.
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