What's happening in the World of Essential Tremor Disease
Candid
We are excited to announce that we’ve earned our Platinum Seal of Transparency with Candid.
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Exclusively on Essential Tremor (ET) Disease and will occur on May 2 and 3, 2025, at the Hilton Clearwater Beach Resort in Clearwater Beach, FL.
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A Night to Shine for ET GalaMarch 22, 2025, ET Talks, March Essential Tremor Awareness Month, with special Guest Donny Most, actor Happy Days, and Singer. A Night to Shine for ET Gala on May 3, 2025, at the Hilton Clearwater Beach Resort & Spa, Clearwater Beach, FL,
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Guest Tickets
National Essential Tremor Conference & A Night to Shine for Essential Tremor Gala, Clearwater Beach, FL, May 2 & 3, 2025
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Meeting Unmet Needs
The Diann Shaddox Foundation is leading the way the world understands and recognizes Essential Tremor.
We first must acknowledge that unmet needs exist.
We envision a future without ET. This motivates us daily, and we are excited about what lies ahead. We are motivated by a strong desire to enhance people's lives. Our values are central to our identity and guide every decision and action we take: -Putting patients first -Respecting individuals -Upholding ethics and integrity _Committing to innovation and scientific excellence |
Our Mission Statement
To advance knowledge of Essential Tremor disease to the world and find treatments that can slow, stop, or reverse the progression of Essential Tremor.
ESSENTIAL TREMOR ET is a progressive and highly prevalent neurological disease. It can worsen over time, leading to significant disability.
ET often runs in families and can onset at any age, affecting individuals regardless of age, race, sex, or national origin. |
Research
Our foundation supports Scientific collaboration research directed and performed by world-class scientists/investigators, based on solid empirically, practical experience and scientific proof. |
Our Partners Our initiatives bring together leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, community groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. |
Our Vision
End Essential Tremor disease & Unite the ET community.
To improve knowledge of ET throughout the world and the medical community. Inspire young health professionals to specialize in the care. Develop a better data system for sharing information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
Our HistoryFounder Diann Shaddox has lived with Essential Tremor disease most of her entire life.
She understands the difficulties, the stares, and living with an ignored disease. Her vision is a world without ET. |
Join Team DSFTeam DSF is the worldwide fundraising & volunteer program for The Diann Shaddox Foundation to raise funds for programs.
Volunteers have been turning their passions into opportunities to raise funds and awareness. |
Why Give to Diann Shaddox Foundation
What does the Diann Shaddox Foundation Do?
DSF purpose and commitment Our purpose is to achieve significant advancements in medical research, thereby provide hope and assistance to those struggling with the challenges of ET. |
What makes the Diann Shaddox Foundation Different?
Team DSF We understand the urgency to find treatments and a cure for ET. DSF is not only made up of Doctors and business Executives but also board members who are afflicted by ET, along with DSF Founder Diann Shaddox. |
Why should I give to the Diann Shaddox Foundation?
We won't Stop We will not stop until we find new treatments and a cure for Essential Tremor disease. |
PURPOSE & COMMITMENT
To expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET.