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The Diann Shaddox Foundation is leading the way to find new therapies and a cure for Essential Tremor.
Grassroots advocacy serves as the backbone of our efforts and our foundation. By joining forces, we can effectively influence legislation and policy decisions to enhance the quality of life for everyone affected by ET.
Your involvement can help elevate unheard voices and prioritize the ET community's needs. We need the world to understand that Essential Tremor is more than just tremors. With your help, we can find a cure and make a difference!
"We recognize the significance of this responsibility, and I want everyone to feel assured that we are actively working to get this done. No one knows Essential Tremor better than someone who lives with it."
Diann Shaddox, Founder, lives with ET.
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Updates
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The latest Updates from the Foundation
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Ask the MD
ET Talks Saturday, 2025 Register >>> Time: 2:00 pm ET Duration: 1 hr.
Register Now >>> ET Worldwide FB Group Join Now >>>
In the News Stress Through the Holidays The holidays are a time for family and cheer, but making sure the house is clean, the food is ready, and the presents are wrapped and ready to be opened can be overwhelming. These factors can bring unwanted stress and depression in a time meant for happiness. Learn More >>> |
ET Stories 
‘Change is possible’: CTV News cameraman Kirk Neff describes overwhelming response after sharing his story
It’s amazing how life has a way of falling into place, not just in other people’s lives, but in your own.
As a cinematographer and storyteller, I’ve spent more than 30 years telling other people’s stories. But when you suddenly become the focus, and your journey gives others hope, it’s a feeling that’s impossible to describe. Learn More >>> |
Exciting News!!!!
Praxis Precision Medicines Announces Positive Topline Results from Two Pivotal Phase 3 Studies of Ulixacaltamide HCl in the Essential3 Program for Essential Tremor
“To all the patients living with ET, I am thrilled with the results of the Essential3 Program. All of us at Praxis will be forever indebted to the bravery you have demonstrated participating in the program, in the face of such a debilitating condition,” said Marcio Souza, president and chief executive officer. “Patients in Essential3 had been living with essential tremor for an average of 30 years, with worsening symptoms and no effective treatment options. In just 15 months of recruitment, we had over 200,000 people interested in participating in this study, which is a powerful reflection of the large unmet need for a therapy like ulixacaltamide. We look forward to the opportunity to have a pre-NDA meeting with the FDA soon to discuss the potential NDA.”
Praxis Precision Medicines Announces Positive Topline Results from Two Pivotal Phase 3 Studies of Ulixacaltamide HCl in the Essential3 Program for Essential Tremor
“To all the patients living with ET, I am thrilled with the results of the Essential3 Program. All of us at Praxis will be forever indebted to the bravery you have demonstrated participating in the program, in the face of such a debilitating condition,” said Marcio Souza, president and chief executive officer. “Patients in Essential3 had been living with essential tremor for an average of 30 years, with worsening symptoms and no effective treatment options. In just 15 months of recruitment, we had over 200,000 people interested in participating in this study, which is a powerful reflection of the large unmet need for a therapy like ulixacaltamide. We look forward to the opportunity to have a pre-NDA meeting with the FDA soon to discuss the potential NDA.”
Make some magic happen and see how many ETrs will contribute $5 for the $5 Challenge to support the Diann Shaddox Foundation for ET Research in 2026.
It doesn’t matter where you live; you can donate from anywhere in the world.
Let’s keep the momentum going.
Nothing can stop this group from achieving success in finding a cure for ET.
We have the power!
It doesn’t matter where you live; you can donate from anywhere in the world.
Let’s keep the momentum going.
Nothing can stop this group from achieving success in finding a cure for ET.
We have the power!
DSF Millions of Faces of Essential Tremor
THESE ARE REAL PEOPLE LIVING EVERY DAY WITH ET.
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There are many ways and resources to join the fight for ET.
Your unwavering support fuels our research. We are advancing toward a brighter future and new treatments.
Together, let's find a cure for ET.
Tell your ET StoriesYou are your best ET advocate. Tell your story to the world. For every person telling their story, millions are living in silence. >>> Learn More
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Take Action for ETStand firm to support ET disease! Advocate passionately for the rights and needs of all patients, demanding new treatments and a cure. >>> Learn More
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Ways to Give Donating to the Diann Shaddox Foundation funds ET research to develop treatments, understand causes, and find a cure. >>> Learn More
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Why Give to the Diann Shaddox Foundation
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The Foundation mobilizes resources and data for our ET Research which investigates ET disease's causes. Our mission is to uncover its mysteries and find a groundbreaking cure that transforms lives. We won't stop until we succeed.
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Putting patients first involves addressing their physical, mental, and emotional needs. DSF advocates for recognition and change, aiming to improve their quality of life and health outcomes.
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