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Patient Council Essential Tremor Advisory Council
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DonateThe Patient Council Advisory Board is an exclusive network of Essential Tremor Patients who serve as advisors to help inform/guide DSF.
The purpose is to help gain new insights and advice to explain Essential Tremor problems or explore new opportunities by increasing healthy, high-quality discussions. The role of the DSF Patient Council is not to make decisions but rather to provide current knowledge and critical thinking to assist DSF in answering questions and challenges living with ET.
“Our progress depends on uniting the ET Community and listening to their voices. All the research in the world doesn’t matter without the voices of the only people who can answer the question of whether science is helping
— those of us living with the disease.
The Diann Shaddox Foundation continues to serve as that link, putting strategic funding toward projects that matter most to patients.
The purpose is to help gain new insights and advice to explain Essential Tremor problems or explore new opportunities by increasing healthy, high-quality discussions. The role of the DSF Patient Council is not to make decisions but rather to provide current knowledge and critical thinking to assist DSF in answering questions and challenges living with ET.
“Our progress depends on uniting the ET Community and listening to their voices. All the research in the world doesn’t matter without the voices of the only people who can answer the question of whether science is helping
— those of us living with the disease.
The Diann Shaddox Foundation continues to serve as that link, putting strategic funding toward projects that matter most to patients.
Guidelines
We are committed to engaging individuals with Essential Tremor as partners in all our initiatives. Responsibilities of council members may include, but are not limited to:
- Reviewing and providing feedback on programs, initiatives, policies, and materials that support the goals of the Team DSF.
- Offering insights into the unmet needs of the ET Patient community.
- Acting as ambassadors for the Foundation within both the Essential Tremor community and the broader public.
- Identifying and facilitating opportunities to share the Foundation’s informational and educational resources.
- Supporting the Foundation by organizing local fundraising events in the community and/or contributing personally.
- Participating in Zoom meetings and attending one in-person meeting annually.
- Reviewing and providing feedback on programs, initiatives, policies, and materials that support the goals of the Team DSF.
- Offering insights into the unmet needs of the ET Patient community.
- Acting as ambassadors for the Foundation within both the Essential Tremor community and the broader public.
- Identifying and facilitating opportunities to share the Foundation’s informational and educational resources.
- Supporting the Foundation by organizing local fundraising events in the community and/or contributing personally.
- Participating in Zoom meetings and attending one in-person meeting annually.
If you are interested in becoming a part of DSF Patient Council.
Register Now >
Register Now >
