Patient council
The Patient Council is a network of ET Patients to gather information to help inform/guide DSF
and the ET worldwide community.
The purpose is to help the Diann Shaddox Foundation for Essential Tremor gain new insights and advice to explain ET problems or explore new opportunities by increasing healthy, high-quality discussions. The role of DSF Patient Council is not to make decisions, but rather to provide current knowledge and critical thinking to assist DSF in answering questions and challenges living with ET.
“Our progress depends on uniting the ET Community and listening to their voices. All the research in the world doesn’t matter without the voices of the only people who can answer the question of whether science is helping
— those of us living with the disease.
The Diann Shaddox Foundation for Essential Tremor continues to serve as that link, putting strategic funding toward projects that matter most to patients.”
and the ET worldwide community.
The purpose is to help the Diann Shaddox Foundation for Essential Tremor gain new insights and advice to explain ET problems or explore new opportunities by increasing healthy, high-quality discussions. The role of DSF Patient Council is not to make decisions, but rather to provide current knowledge and critical thinking to assist DSF in answering questions and challenges living with ET.
“Our progress depends on uniting the ET Community and listening to their voices. All the research in the world doesn’t matter without the voices of the only people who can answer the question of whether science is helping
— those of us living with the disease.
The Diann Shaddox Foundation for Essential Tremor continues to serve as that link, putting strategic funding toward projects that matter most to patients.”
