DIANN SHADDOX FOUNDTION for ESSENTIAL TREMOR Research
Privacy Policy
updated January 2024
The Diann Shaddox Foundation for Essential Tremor is committed to safeguarding your privacy and personal data. As a nonprofit research organization, the Foundation operates with a single, urgent goal — to promote awareness, find treatment and cure for Essential Tremor. The Foundation uses the donations it receives to fund awareness and scientific research in furtherance of that goal. The Foundation also offers digital and non-digital tools for patients, families, donors, and researchers to access information on Essential Tremor and to engage with the community.
This Privacy Policy explains our online information practices and outlines the choices you can make about what information you provide, how your data is collected and how it is used. Keep in mind that the Foundation exists in order to further research and awareness to be shared with a public audience. Your choice to share information with the Foundation – including personal, private information -- is also deemed to be done with the knowledge that the Foundation’s practices further its goal to speed a cure for Essential Tremor through the sharing of medical research. Changes to this policy are also made to comply with evolving legal and regulatory requirements, including the General Data Protection Regulation (GDPR) of the European Union.
This Privacy Policy applies to all information received by the Foundation, both online and offline, any electronic, written, or oral communication you share with us, and any information you provide to third-party vendors operating on behalf of the Foundation.
"Cookies"
This site uses cookies. By using this site, you agree that the Foundation may place cookies on your device and access them when you visit our site. A cookie is a small file of letters and numbers that we put on your computer. The cookies we use aid us in improving our site and your experience by tracking which areas and features of our site are popular, making the site easier to navigate, count visits, and allow a registered user to remain signed in to his/her user profile throughout a visit. If you want to opt out of our cookies, you can delete them and any other cookies that are already on your computer. Please refer to the help and support areas on your Internet browser for instructions on how to locate the file or directory that stores cookies. Some functionalities on our site may be affected if you delete our cookies.
Online Donations
The Foundation collects the following information through our secure online financial-transaction pages: name, address, e-mail address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes and to include you on the Foundation's mailing list if you choose to join it.
When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and address of that individual or family for acknowledgement purposes only.
Mailing List
The Foundation provides a separate online form to join our mailing list. The information we collect includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via e-mail or regular mail.
Please contact us directly by regular mail if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date, in order to verify their identity and protect the privacy of the Foundation's donors and members of its mailing list.
eNewsletters
You will be added to The Diann Shaddox Foundation for Essential Tremor’s email newsletter list only if you register to receive newsletters via a form or checkbox on The Diann Shaddox Foundation for Essential Tremor website. You may opt out of receiving our eNewsletters by clicking on the opt-out link included in every email newsletter we send.
Links to Other Web Sites
The Foundation's site includes links, some temporary and some permanent, to other Web sites. We are not responsible for the privacy and security practices of any other Web site or the nature of the content contained therein.
Please be aware that our Sites and email communications may contain links to other websites on the Internet that are owned and operated by third parties. The information practices of those websites linked to our Sites are not covered by this Privacy Policy and, therefore, we are not responsible for the content or privacy policies of websites to which our Sites link. We encourage you to review the privacy policies of other websites to understand their privacy practices.
How We Use Your DataThe Foundation and its third-party vendors may use your personal, platform or transactional data to:
Your information may also be disclosed to comply with a court order, law or legal process.
If you wish, you can modify your internet browser settings to alter which technologies are permitted, but this may limit some functionalities and features of our website.
Political CampaignsThe Diann Shaddox Foundation is a 501(c)(3) organization. Under the Internal Revenue Code, all section 501(c)(3) organizations are absolutely prohibited from directly or indirectly participating in, or intervening in, any political campaign on behalf of (or in opposition to) any candidate for elective public office.
Children's Privacy
None of the content and information in the Foundation's Web site is targeted toward children under 13 years of age. We make every effort possible to ensure that we do not collect or maintain information on our Web site from those we know to be younger than 16 unless parental consent has been obtained in writing.
Security
We care about the security of your transactions and apply industry-standard practices and technologies to safeguard your credit card information. We use high-grade encryption and the secure https protocol to communicate with your browser software, which guards against interception of the credit card information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization. The Web servers for the Foundation are located in a locked, secure environment, and computer systems are maintained in accordance with industry standards to secure information. You should be aware, however, that "perfect security" does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications.
The Privacy Policy applies to information we collect:
Your privacy is important to us. In connection with providing information, features, products and services at the Sites, we may ask for or collect information from you, either in the form of anonymous data or personally identifiable information. As part of our commitment to honoring your privacy, this Privacy Policy explains the approach we take in protecting and using the information that we gather from you on the Sites.
By accessing or using the Sites, you agree to the Privacy Policy, to have your personal data transferred, processed and stored in the United States, and to allow us to collect and use such data consistent with this Privacy Policy. If you do not agree with the Privacy Policy, you may not access or use the Sites.
It does not apply to information collected by:
Changes to the Privacy Policy
In the event that the Foundation decides to alter its privacy policy, the changes will be added directly to this statement. We will, however, always use information in accordance with the version of the privacy policy under which it was originally collected.
We may make changes to the Privacy Policy from time to time and at any time without notice to you by posting modifications to the Privacy Policy at the Sites. By using the Sites following such changes, you agree to be bound by such changes. Please check the Sites periodically to familiarize yourself with any changes that may have been made to the Privacy Policy. You can determine when the Privacy Policy was last changed by checking the “Last Updated” reference above.
Information We Collect About You and How We Collect It
We collect several types of information from and about users of the Sites.
Personal Information You Provide: In order to access certain services or features on the Sites, you may be required to provide information which could be used to identify you, such as your name, location, postal address, e-mail address, telephone number, credit card information, transaction details or other information. Such information may be required, for example, to register an account with the Sites or to request product literature or samples, and financial assistance. If you do not provide the required personal information, you may not be able to access those services or features of the Sites.
We only collect personal information that you voluntarily provide to us. By way of example, such information may be collected by completing forms on the Sites, responding to a survey, signing up for an email marketing list, or transmitting emails to the Sites.
Automatically Collected Non-Personal Information: Other information which does not identify you is collected automatically as you navigate through the Sites. This information can include your IP address, your domain server, the type of computer and browser you use, the type and speed of your Internet connection, the time and date of the Site visit, Site browsing patterns, traffic data and other information which does not personally identify you.
We use a variety of automated data collection technologies to collect this information including, without limitation, cookies and pixel tags/web beacons. You may set your browser to refuse or disable these data collection methods, but doing so may change your experience on the Sites, diminish certain aspects of the Site’s functionality or render certain features of the Sites inoperable. The Sites may not recognize or respond to “do not track” technologies employed by your browser.
How We Use Information
We use information that we collect about you or that you provide to us, including any personal information:
At any time, you can request the removal or modification of your personally identifiable information or opt-out of receiving email communications from the Diann Shaddox Foundation for Essential Tremor by sending an e-mail to us by clicking the Contact DSF link. We will make a reasonable effort to accommodate your request.
Disclosure of Your Information
We may disclose aggregated information about our users, and information that does not identify any individual, without restriction.
We do not sell, rent or trade to any unaffiliated third parties your personally identifiable information. We may disclose personal information that we collect or you provide as described in this Privacy Policy:
We may also disclose your personal information:
Security Measures
We use a variety of current technologies and processes for protection of our customer data. We maintain a private database on our web server for the storage of all information collected through our Sites. It is our practice to use encryption whenever we receive or transmit sensitive data. We will take reasonable measures which we believe are appropriate to protect your information from loss, misuse, alteration or destruction, and, where possible, will ask that any third parties to whom we may transfer your information take comparable steps to protect that security. Although we will use all reasonable efforts to safeguard the confidentiality of any visitor information collected, we shall have no liability for disclosure of any visitor information obtained due to errors in transmission or the unauthorized acts of third parties. Email is not a secure form of communication. Please do not send us any personally sensitive information via email.
The Diann Shaddox Foundation for Essential Tremor is not responsible for any taxes or loss of disability/financial benefits.
Contact Us
If you have specific questions or concerns about the Foundation's privacy policy, please contact us at the following address:
The Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive
Aiken, SC
The Diann Shaddox Foundation for Essential Tremor provides the www.diannshaddoxfoundation.org Web site as a service to the public and Web site owners.
The Diann Shaddox Foundation for Essential Tremor is not responsible for, and expressly disclaims all liability for, damages of any kind arising out of use, reference to, or reliance on any information contained within the site. While the information contained within the site is periodically updated, no guarantee is given that the information provided in this Web site is correct, complete, and up-to-date.
The Diann Shaddox Foundation for Essential Tremor Web site may include links providing direct access to other Internet resources, including Web sites, DSF is not responsible for the accuracy or content of information contained in these sites.
Links from The Diann Shaddox Foundation for Essential Tremor to third-party sites do not constitute an endorsement by DSF of the parties or their products and services. The appearance on the Web site of advertisements and product or service information does not constitute an endorsement by DSF and DSF has not investigated the claims made by any advertiser. Product information is based solely on material received from suppliers.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability?
DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremor and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
The Diann Shaddox Foundation for Essential Tremor operates on it’s on. All our donations go to DSF programs.
Privacy Policy
updated January 2024
The Diann Shaddox Foundation for Essential Tremor is committed to safeguarding your privacy and personal data. As a nonprofit research organization, the Foundation operates with a single, urgent goal — to promote awareness, find treatment and cure for Essential Tremor. The Foundation uses the donations it receives to fund awareness and scientific research in furtherance of that goal. The Foundation also offers digital and non-digital tools for patients, families, donors, and researchers to access information on Essential Tremor and to engage with the community.
This Privacy Policy explains our online information practices and outlines the choices you can make about what information you provide, how your data is collected and how it is used. Keep in mind that the Foundation exists in order to further research and awareness to be shared with a public audience. Your choice to share information with the Foundation – including personal, private information -- is also deemed to be done with the knowledge that the Foundation’s practices further its goal to speed a cure for Essential Tremor through the sharing of medical research. Changes to this policy are also made to comply with evolving legal and regulatory requirements, including the General Data Protection Regulation (GDPR) of the European Union.
This Privacy Policy applies to all information received by the Foundation, both online and offline, any electronic, written, or oral communication you share with us, and any information you provide to third-party vendors operating on behalf of the Foundation.
"Cookies"
This site uses cookies. By using this site, you agree that the Foundation may place cookies on your device and access them when you visit our site. A cookie is a small file of letters and numbers that we put on your computer. The cookies we use aid us in improving our site and your experience by tracking which areas and features of our site are popular, making the site easier to navigate, count visits, and allow a registered user to remain signed in to his/her user profile throughout a visit. If you want to opt out of our cookies, you can delete them and any other cookies that are already on your computer. Please refer to the help and support areas on your Internet browser for instructions on how to locate the file or directory that stores cookies. Some functionalities on our site may be affected if you delete our cookies.
Online Donations
The Foundation collects the following information through our secure online financial-transaction pages: name, address, e-mail address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes and to include you on the Foundation's mailing list if you choose to join it.
When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and address of that individual or family for acknowledgement purposes only.
Mailing List
The Foundation provides a separate online form to join our mailing list. The information we collect includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via e-mail or regular mail.
Please contact us directly by regular mail if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date, in order to verify their identity and protect the privacy of the Foundation's donors and members of its mailing list.
eNewsletters
You will be added to The Diann Shaddox Foundation for Essential Tremor’s email newsletter list only if you register to receive newsletters via a form or checkbox on The Diann Shaddox Foundation for Essential Tremor website. You may opt out of receiving our eNewsletters by clicking on the opt-out link included in every email newsletter we send.
Links to Other Web Sites
The Foundation's site includes links, some temporary and some permanent, to other Web sites. We are not responsible for the privacy and security practices of any other Web site or the nature of the content contained therein.
Please be aware that our Sites and email communications may contain links to other websites on the Internet that are owned and operated by third parties. The information practices of those websites linked to our Sites are not covered by this Privacy Policy and, therefore, we are not responsible for the content or privacy policies of websites to which our Sites link. We encourage you to review the privacy policies of other websites to understand their privacy practices.
How We Use Your DataThe Foundation and its third-party vendors may use your personal, platform or transactional data to:
- Provide you with relevant information about our programs and services
- Carry out a request or transaction you have initiated
- Analyze trends in user behavior
- Optimize the performance of our website
- Tailor and promote opportunities for engagement to meet your interests
- Improve the technical performance and personalized experience of our website
- For any other purposes with your consent
Your information may also be disclosed to comply with a court order, law or legal process.
If you wish, you can modify your internet browser settings to alter which technologies are permitted, but this may limit some functionalities and features of our website.
Political CampaignsThe Diann Shaddox Foundation is a 501(c)(3) organization. Under the Internal Revenue Code, all section 501(c)(3) organizations are absolutely prohibited from directly or indirectly participating in, or intervening in, any political campaign on behalf of (or in opposition to) any candidate for elective public office.
Children's Privacy
None of the content and information in the Foundation's Web site is targeted toward children under 13 years of age. We make every effort possible to ensure that we do not collect or maintain information on our Web site from those we know to be younger than 16 unless parental consent has been obtained in writing.
Security
We care about the security of your transactions and apply industry-standard practices and technologies to safeguard your credit card information. We use high-grade encryption and the secure https protocol to communicate with your browser software, which guards against interception of the credit card information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization. The Web servers for the Foundation are located in a locked, secure environment, and computer systems are maintained in accordance with industry standards to secure information. You should be aware, however, that "perfect security" does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications.
The Privacy Policy applies to information we collect:
Your privacy is important to us. In connection with providing information, features, products and services at the Sites, we may ask for or collect information from you, either in the form of anonymous data or personally identifiable information. As part of our commitment to honoring your privacy, this Privacy Policy explains the approach we take in protecting and using the information that we gather from you on the Sites.
By accessing or using the Sites, you agree to the Privacy Policy, to have your personal data transferred, processed and stored in the United States, and to allow us to collect and use such data consistent with this Privacy Policy. If you do not agree with the Privacy Policy, you may not access or use the Sites.
- on the Sites;
- in e-mail and other electronic messages between you and the Sites; or
- through mobile and desktop applications you download from the Sites, which provide dedicated non-browser-based interaction between you and this Sites.
It does not apply to information collected by:
- us offline or through any other means, including on any other website operated by us or any third party which is not subject to this Privacy Policy; or
- any third party, including through any application or other content that may link to or be accessible from the Sites.
Changes to the Privacy Policy
In the event that the Foundation decides to alter its privacy policy, the changes will be added directly to this statement. We will, however, always use information in accordance with the version of the privacy policy under which it was originally collected.
We may make changes to the Privacy Policy from time to time and at any time without notice to you by posting modifications to the Privacy Policy at the Sites. By using the Sites following such changes, you agree to be bound by such changes. Please check the Sites periodically to familiarize yourself with any changes that may have been made to the Privacy Policy. You can determine when the Privacy Policy was last changed by checking the “Last Updated” reference above.
Information We Collect About You and How We Collect It
We collect several types of information from and about users of the Sites.
Personal Information You Provide: In order to access certain services or features on the Sites, you may be required to provide information which could be used to identify you, such as your name, location, postal address, e-mail address, telephone number, credit card information, transaction details or other information. Such information may be required, for example, to register an account with the Sites or to request product literature or samples, and financial assistance. If you do not provide the required personal information, you may not be able to access those services or features of the Sites.
We only collect personal information that you voluntarily provide to us. By way of example, such information may be collected by completing forms on the Sites, responding to a survey, signing up for an email marketing list, or transmitting emails to the Sites.
Automatically Collected Non-Personal Information: Other information which does not identify you is collected automatically as you navigate through the Sites. This information can include your IP address, your domain server, the type of computer and browser you use, the type and speed of your Internet connection, the time and date of the Site visit, Site browsing patterns, traffic data and other information which does not personally identify you.
We use a variety of automated data collection technologies to collect this information including, without limitation, cookies and pixel tags/web beacons. You may set your browser to refuse or disable these data collection methods, but doing so may change your experience on the Sites, diminish certain aspects of the Site’s functionality or render certain features of the Sites inoperable. The Sites may not recognize or respond to “do not track” technologies employed by your browser.
How We Use Information
We use information that we collect about you or that you provide to us, including any personal information:
- To present the Sites and their contents to you;
- To provide you with information, products or services that you request from us;
- To fulfill any other purpose for which you provide it;
- To carry out our obligations and enforce our rights arising from any contracts entered into between you and us, including for billing and collection;
- To notify you about changes to the Sites or any products or services we offer or provide though it;
- To improve the Sites;
- To determine your location to allow you to use certain location-specific functionality on the Sites;
- To allow you to participate in interactive features on the Sites;
- In any other way we may describe when you provide the information; and
- For any other purpose with your consent.
At any time, you can request the removal or modification of your personally identifiable information or opt-out of receiving email communications from the Diann Shaddox Foundation for Essential Tremor by sending an e-mail to us by clicking the Contact DSF link. We will make a reasonable effort to accommodate your request.
Disclosure of Your Information
We may disclose aggregated information about our users, and information that does not identify any individual, without restriction.
We do not sell, rent or trade to any unaffiliated third parties your personally identifiable information. We may disclose personal information that we collect or you provide as described in this Privacy Policy:
- To contractors, service providers and other third parties we use to support our business;
- To a buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution or other sale or transfer of some or all of our assets, in which personal information held by us about Sites’ users is among the assets transferred;
- To fulfill the purpose for which you provide it;
- For any other purpose disclosed by us when you provide the information; or
- With your consent.
We may also disclose your personal information:
- To comply with any court order, law or legal process, including to respond to any government or regulatory request;
- To enforce or apply the Terms and Conditions and other agreements, including for billing and collection purposes; or
- If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of the Diann Shaddox Foundation for Essential Tremor or others.
Security Measures
We use a variety of current technologies and processes for protection of our customer data. We maintain a private database on our web server for the storage of all information collected through our Sites. It is our practice to use encryption whenever we receive or transmit sensitive data. We will take reasonable measures which we believe are appropriate to protect your information from loss, misuse, alteration or destruction, and, where possible, will ask that any third parties to whom we may transfer your information take comparable steps to protect that security. Although we will use all reasonable efforts to safeguard the confidentiality of any visitor information collected, we shall have no liability for disclosure of any visitor information obtained due to errors in transmission or the unauthorized acts of third parties. Email is not a secure form of communication. Please do not send us any personally sensitive information via email.
The Diann Shaddox Foundation for Essential Tremor is not responsible for any taxes or loss of disability/financial benefits.
Contact Us
If you have specific questions or concerns about the Foundation's privacy policy, please contact us at the following address:
The Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive
Aiken, SC
The Diann Shaddox Foundation for Essential Tremor provides the www.diannshaddoxfoundation.org Web site as a service to the public and Web site owners.
The Diann Shaddox Foundation for Essential Tremor is not responsible for, and expressly disclaims all liability for, damages of any kind arising out of use, reference to, or reliance on any information contained within the site. While the information contained within the site is periodically updated, no guarantee is given that the information provided in this Web site is correct, complete, and up-to-date.
The Diann Shaddox Foundation for Essential Tremor Web site may include links providing direct access to other Internet resources, including Web sites, DSF is not responsible for the accuracy or content of information contained in these sites.
Links from The Diann Shaddox Foundation for Essential Tremor to third-party sites do not constitute an endorsement by DSF of the parties or their products and services. The appearance on the Web site of advertisements and product or service information does not constitute an endorsement by DSF and DSF has not investigated the claims made by any advertiser. Product information is based solely on material received from suppliers.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability?
DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremor and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
The Diann Shaddox Foundation for Essential Tremor operates on it’s on. All our donations go to DSF programs.
