Millions of Faces of Essential Tremor |
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THESE ARE REAL PEOPLE LIVING EVERYDAY WITH ESSENTIAL TREMOR.
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No You Won’t Die From Essential Tremor, You Will Die With It.
There are many misconceptions and people believe that Essetial Tremor, (ET) is just a slight tremor in the hands of old people, that’s not true. First and foremost, Essential Tremor can begin at any age, from ages 1 to 100. ET doesn't discriminate with age, race, sex, or national origin. I’m sure you are wondering, like most people, what is Essential Tremor. Have you ever heard of ET? 99% of the time the answer is no. Many police departments answer the same even though Essential Tremor is the largest movement disorder in the world 10 times larger than Parkinson’s. What is Essential Tremor? (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Over 10 million Americans have Essential Tremor, including children and millions more people worldwide. That’s about 5% of all people in the United States. For comparison sake, 7.8% of the population have some type of diabetes. Most people though haven’t heard about Essential Tremor. Essential Tremor can be inherited.* |
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Here are a few things people living with Essential Tremor deal with. Essential Tremor won’t kill you, but…
These are real people living everyday with Essential Tremor.
The Millions of Faces of ET from around the world
- What would you do if your voice quivered so much that you aren't able to speak or you can barely speak?
- What would you do if your head constantly shakes yes or no?
- What would you do if every time you try to eat food it flies from your fork or spoon and your drink splashes on you and everyone at the table?
- What would you do if you couldn't prepare your own food?
- What would you do if every night the inside of your body quivers as you try to fall asleep?
- What would you do if you couldn't sign your name, and if you try to fill out a form, your hand tremors like a baby bird's wings, and no one can read what you write?
- What would you do if your legs tremor and you wobble when you walk?
- What would you do if you couldn't play with your children or help them with school projects because your hand shakes?
- What would you do if you were afraid to hold your newborn baby?
- What would you do if you’re a teenager and because your hands flutter in class you are teased and bullied?
- What would you do if you’re a teenager and your dreams of becoming a carpenter, artist, pianist, doctor, nurse, or dentist will never come true because of your tremors?
- What if you aren’t able to apply makeup, put in your contact lens, or shave.
- What would you do if you couldn't put on jewelry? (necklace or earrings)
- What would you do if you are a young child and can’t copy your ABC’s or make crafts like the other kids in your class?
- What would you do if you’re a musician, singer, or artist and your life of playing an instrument, singing or painting abruptly stops?
- What would you do if you were fired from your job because your boss doesn't like to see you tremor, even though you can still do your job?
- What would you do if you couldn't drive a car?
No you won’t die from Essential Tremor, you will die with it.
The quality of life for someone with a movement disorder can be devastating, depression can set in, and you wonder is life worth living. Many people hide in their homes not wanting to face the public with the stares and cruel remarks. Numerous people not only lose the quality of life, but they lose their independence of life.
There are many stages of Essential Tremor, mild to severe tremors, and the progression will vary, but the outcome is the same; some part of their body tremors.
*(The inherited variety of essential tremor is an autosomal dominant disorder. A defective gene from just one parent is needed to pass on the condition. If you have a parent with a genetic mutation for essential tremor, you have a 50 percent chance of developing the disorder yourself. Mayo Clinic)
These are real people living everyday with Essential Tremor.
The Millions of Faces of ET from around the world
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Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability?
©April 2014 and beyond | Diann Shaddox foundation ™| All Rights Reserved. No part of this website is public domain.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability? DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremor and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
