Executive Director
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A message to our supporters, volunteers, support groups and friends,
As we come to the end of the year, during this season of holidays, gatherings with family and friends, on behalf of 42 million people worldwide, including 10+ million in the US, who must live every day with Essential Tremor (ET), I want to thank you for your interest, engagement and gifts to the Diann Shaddox Foundation for Essential Tremor (DSF) over the past year.
ET is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, and body, and is the largest movement disorder in the world. ET can begin at any age, from birth to 100 and doesn't discriminate by age, race, sex, or national origin. Recent research also indicates that 5 out of every 100 children under the age of 20 in the United States have Essential Tremors. That number is staggering and we have to do much more research to find the cause as there is no cure or standard treatment. Diann Shaddox has suffered from this debilitating disease for over 35 years and most people have never even heard of it.
In this past year, with the support of your gifts, DSF has:
However, without continued help and support through donations and gifts from people like you, none of this can be sustained or grow. DSF is adamant to advance treatments that can slow, standardize, or reverse the progression of Essential Tremor, promote awareness, foster education and find a cure through our Medical Research Program. To learn more about Essential Tremor, Team DSF programs, and fundraisers please visit www.diannshaddoxfoundation.org. Please help! We can’t do this alone!
I look forward to hearing from you soon. May you have a joyous holiday season and Thank You in advance for your generosity and support.
Randy Miles
Executive Director Diann Shaddox Foundation for Essential Tremor
P.S. Your gift makes all the difference and we can’t do this without you.
A message to our supporters, volunteers, support groups and friends,
As we come to the end of the year, during this season of holidays, gatherings with family and friends, on behalf of 42 million people worldwide, including 10+ million in the US, who must live every day with Essential Tremor (ET), I want to thank you for your interest, engagement and gifts to the Diann Shaddox Foundation for Essential Tremor (DSF) over the past year.
ET is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, and body, and is the largest movement disorder in the world. ET can begin at any age, from birth to 100 and doesn't discriminate by age, race, sex, or national origin. Recent research also indicates that 5 out of every 100 children under the age of 20 in the United States have Essential Tremors. That number is staggering and we have to do much more research to find the cause as there is no cure or standard treatment. Diann Shaddox has suffered from this debilitating disease for over 35 years and most people have never even heard of it.
In this past year, with the support of your gifts, DSF has:
- Assisted families throughout the United States with our Family Assistance Program. A program designed to help people who lose their jobs or have a hardship because they have uncontrollable tremors.
- Dr. Darlene Mayo MD FAANS has joined DSF as our Medical Research Director. Dr. Mayo is a board certified neurosurgeon and neuroscientist who is internationally known as an expert in the treatment of Essential Tremor and other movement disorders. We are aggressively working to raise funds for our ET Medical Research Program, which is under the direction of Dr. Mayo.
- DSF completed a commercial/video to promote awareness about Essential Tremors (https://youtu.be/Xkl6Tz4Oyhs) with the help of Dee Wallace, professional author, teacher, dancer and actress in film, television, and stage for over 40 years, and was the mother in Steven Spielberg’s movie “ET”.
- Dr. Mayo & Diann Shaddox are hosting ET Facebook LIVE events throughout the year on the Diann Shaddox Foundation Facebook Page. These events are very informative and people are able to have their ET questions answered by Dr. Mayo who is an expert in the field. https://www.facebook.com/diannshaddoxfoundation/
- We provide picture medical alert cards and envelopes for your vehicle to hold registration, insurance, and other required documents, no cost to those who request them.
- We host an international private Facebook group page, Essential Tremor Worldwide Support Group, (https://www.facebook.com/groups/228566427550821/).
- 2020 is targeted to be our breakout year with plans in place to further develop and deliver our DSF programs that are actively in place through DSF.
However, without continued help and support through donations and gifts from people like you, none of this can be sustained or grow. DSF is adamant to advance treatments that can slow, standardize, or reverse the progression of Essential Tremor, promote awareness, foster education and find a cure through our Medical Research Program. To learn more about Essential Tremor, Team DSF programs, and fundraisers please visit www.diannshaddoxfoundation.org. Please help! We can’t do this alone!
I look forward to hearing from you soon. May you have a joyous holiday season and Thank You in advance for your generosity and support.
Randy Miles
Executive Director Diann Shaddox Foundation for Essential Tremor
P.S. Your gift makes all the difference and we can’t do this without you.
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Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
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