Essential Tremor Mission Program
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Worldwide Essential Tremor Program purpose and commitment is to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET.
Our skills are different, our professions are varied, but our mission is the same; find new treatments, and support everyone living with Essential Tremor. DSF is not only made up of Doctors, Business Executives, but board members who are afflicted by Essential Tremor, along with DSF Founder Diann Shaddox.
We work collaboratively with highly connected industry leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. They believe in our vision to unite the ET community and to share our expertise and informed decision-making in service of others to improve the quality of Essential Tremor care. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
DSF ET Program funds go to improve knowledge of Essential Tremor throughout the world and the medical community. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
Although the disorder is most common in older adults, it can affect individuals of any age including middle-aged or young adults and children. It has been reported during infancy. Our purpose is to help children learn to discuss and be open about their tremors and understand they aren’t alone.
DSF's goal is not only offering hope and assistance for people suffering from hardships magnified by Essential Tremor, but we will not stop until the world recognizes Essential Tremor, and we find the latest treatments whether it is the cutting-edge medications or surgeries and find a cure.
The Diann Shaddox Foundation for Essential Tremor’s resolution is to support medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
Join DSF Volunteer advocates. Represent a voice, promote, donate, and help to raise awareness for Team DSF.
Our skills are different, our professions are varied, but our mission is the same; find new treatments, and support everyone living with Essential Tremor. DSF is not only made up of Doctors, Business Executives, but board members who are afflicted by Essential Tremor, along with DSF Founder Diann Shaddox.
We work collaboratively with highly connected industry leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. They believe in our vision to unite the ET community and to share our expertise and informed decision-making in service of others to improve the quality of Essential Tremor care. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
DSF ET Program funds go to improve knowledge of Essential Tremor throughout the world and the medical community. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
Although the disorder is most common in older adults, it can affect individuals of any age including middle-aged or young adults and children. It has been reported during infancy. Our purpose is to help children learn to discuss and be open about their tremors and understand they aren’t alone.
DSF's goal is not only offering hope and assistance for people suffering from hardships magnified by Essential Tremor, but we will not stop until the world recognizes Essential Tremor, and we find the latest treatments whether it is the cutting-edge medications or surgeries and find a cure.
The Diann Shaddox Foundation for Essential Tremor’s resolution is to support medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
Join DSF Volunteer advocates. Represent a voice, promote, donate, and help to raise awareness for Team DSF.
94 cents of every dollar goes to DSF Programs
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What are some of the things your
support can providE?
- Improved knowledge of Essential Tremor throughout the medical community; first responders, Police; and school administrators, principals and teachers.
- Inspire young health professionals to specialize in the care of Essential Tremor.
- Develop a better data system for sharing Essential Tremor information around the world.
- Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
- Continue DSF ET Talks Events to discuss living with ET.
- Continue events to bring awareness to the world.
- Recruit Volunteers & Team Members.
- Provide DSF Newsletter and Emails.
- Create Videos and information articles
- Unite the Millions of Faces of ET from around the world
- Provide support and tools for our ET Groups
- Promote awareness for ET through Newspapers, magazines, TV, radio, and merchandise sales.
- Distribute Information cards, Brochures, ET Medical Alert Cards & envelopes at no cost.
- Spread information on Social Media Platforms and ET Campaigns
- Bring together the ET community and the world on March ET Month, March 16 ET Day of Awareness & Giving
About DSF
Impact
The Diann Shaddox Foundation for Essential Tremor’s resolution is to back medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
VISION:
End Essential Tremor in our Lifetime & Unite the ET community.
Research
Our foundation supports research performed by world-class scientists/investigators, based on solid empirically supported theory, practical experience, which will build a knowledge base on scientific proof.
Business Partnerships
Our initiatives bring together leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET.
Equality: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
Goal 2024 Strategic Plan
Our initiative is to build a highly connected industry leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. Leaders who believe in our vision to unite the ET community and help them live productive healthy lives. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
Essential Tremor is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or entire body, the largest movement disorder in the world, affecting over 130 million (including children). ET can worsen with time causing serious debility. Essential Tremor can begin at any age from ages 1 to 100 and affects both men and women and individuals of every age, race or ethnicity and national origin.
Like Parkinson's disease, ET is considered a movement disorder. The disease is caused by abnormal communication—sometimes called a “misfire”—between certain areas of the brain including the cerebellum, thalamus, and brain stem.
DSF is an accredited 501 (c) (3) and operates on its own.
Essential tremor is as much as 20 times more prevalent than Parkinson’s disease in the US, (Essential Tremor - estimated 20 million). Barrow Neurological Institute
Despite its prevalence, it wasn't until 2013 that essential tremor was given its own specific diagnostic code, one that's distinct from other tremors, in the 10th edition of the World Health Organization's International Statistical Classification of Disease and Related Health Problems (ICD) code book. ICD-10-CM Code for Essential tremor G25.0
ICD-10 code G25.0 for Essential tremor is a medical classification as listed by WHO under the range - Diseases of the nervous system.
Essential Tremor isn't only tremors, scientists are learning more about the brain and how ET starts and changes. DSF is supporting medical research & clinical Trials studies to learn more how ET progresses & better diagnoses.
The Diann Shaddox Foundation for Essential Tremor’s resolution is to back medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
VISION:
End Essential Tremor in our Lifetime & Unite the ET community.
Research
Our foundation supports research performed by world-class scientists/investigators, based on solid empirically supported theory, practical experience, which will build a knowledge base on scientific proof.
Business Partnerships
Our initiatives bring together leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET.
Equality: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
Goal 2024 Strategic Plan
Our initiative is to build a highly connected industry leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. Leaders who believe in our vision to unite the ET community and help them live productive healthy lives. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
Essential Tremor is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or entire body, the largest movement disorder in the world, affecting over 130 million (including children). ET can worsen with time causing serious debility. Essential Tremor can begin at any age from ages 1 to 100 and affects both men and women and individuals of every age, race or ethnicity and national origin.
Like Parkinson's disease, ET is considered a movement disorder. The disease is caused by abnormal communication—sometimes called a “misfire”—between certain areas of the brain including the cerebellum, thalamus, and brain stem.
DSF is an accredited 501 (c) (3) and operates on its own.
Essential tremor is as much as 20 times more prevalent than Parkinson’s disease in the US, (Essential Tremor - estimated 20 million). Barrow Neurological Institute
Despite its prevalence, it wasn't until 2013 that essential tremor was given its own specific diagnostic code, one that's distinct from other tremors, in the 10th edition of the World Health Organization's International Statistical Classification of Disease and Related Health Problems (ICD) code book. ICD-10-CM Code for Essential tremor G25.0
ICD-10 code G25.0 for Essential tremor is a medical classification as listed by WHO under the range - Diseases of the nervous system.
Essential Tremor isn't only tremors, scientists are learning more about the brain and how ET starts and changes. DSF is supporting medical research & clinical Trials studies to learn more how ET progresses & better diagnoses.
ET Mission Program Partners/Sponsors