A lifelong resident of Louisiana, Jason Durham, along with his wife Kristine, share five adult children. Jason has shown remarkable resilience in his journey with essential tremors, a condition he has personally navigated for over 25 years. His challenges, resilience, and dedication to making a difference in the lives of others are truly inspiring. He and his wonderful wife, Kristine, have been married for ten years and share five amazing adult children. As an individual with Deep Brain Stimulation, his journey with essential tremors has fueled his passion and commitment to advocacy and support within the community.
Jason studied graphic design and marketing at Louisiana State University and the Art Institute of Houston. He was a former studio and touring musician who, among other reasons, could not continue a music career due to the negative effects of essential tremor. He is currently in Industrial Motive Power Sales and is a consultant for GoRescue in Birmingham, Alabama.
For the past 20 years, Jason has been actively involved in non-profit work, focusing on disability rights, parental rights, and child bereavement.
His extensive disability and rights advocacy experience includes:
Jason's impact is not confined to his board roles. He has been a driving force in creating and developing various support groups locally and internationally, fostering a sense of community and empowerment. Notable among these are The Deep Brain Stimulation Online Group, Helping Parents Heal Regional Support Chapters, and several other disability advocacy groups across the greater Gulf Coast. His work in these areas has provided crucial support and resources to countless individuals and families, fostering a sense of community and empowerment. He also authored and educated Louisiana lawmakers on what would ultimately pass unanimously as Act 507, effectively named "Bailey's Law" in honor of his daughter.
Jason's unwavering dedication is to empower people to realize they have a voice and that it matters, especially in their health care and disability rights. He is self-motivated and well-known for his extreme passion for what is possible when others say it is impossible. Specifically regarding essential tremors, his focus is to shine a light on this condition, advocating for recognition as a known disability affecting over 10 million individuals daily. His determination and hope for a better future for those with essential tremors are genuinely inspiring.
Jason serves on the Patient Council for the Diann Shaddox Foundation for Essential Tremors. He is honored to be a part of this organization. He looks forward to contributing to its mission of improving the lives of individuals with essential tremors through support and research.
Jason studied graphic design and marketing at Louisiana State University and the Art Institute of Houston. He was a former studio and touring musician who, among other reasons, could not continue a music career due to the negative effects of essential tremor. He is currently in Industrial Motive Power Sales and is a consultant for GoRescue in Birmingham, Alabama.
For the past 20 years, Jason has been actively involved in non-profit work, focusing on disability rights, parental rights, and child bereavement.
His extensive disability and rights advocacy experience includes:
- Board of Directors for the Advocacy Center in New Orleans.
- Developmental Disability Council of Louisiana.
- Board of Directors for Families Helping Families of Greater Baton Rouge.
- Partners in Policy Making Organization
- Board of Directors for Northshore Families Helping Families.
- Board of Directors, Marketing Director for Helping Parents Heal.
Jason's impact is not confined to his board roles. He has been a driving force in creating and developing various support groups locally and internationally, fostering a sense of community and empowerment. Notable among these are The Deep Brain Stimulation Online Group, Helping Parents Heal Regional Support Chapters, and several other disability advocacy groups across the greater Gulf Coast. His work in these areas has provided crucial support and resources to countless individuals and families, fostering a sense of community and empowerment. He also authored and educated Louisiana lawmakers on what would ultimately pass unanimously as Act 507, effectively named "Bailey's Law" in honor of his daughter.
Jason's unwavering dedication is to empower people to realize they have a voice and that it matters, especially in their health care and disability rights. He is self-motivated and well-known for his extreme passion for what is possible when others say it is impossible. Specifically regarding essential tremors, his focus is to shine a light on this condition, advocating for recognition as a known disability affecting over 10 million individuals daily. His determination and hope for a better future for those with essential tremors are genuinely inspiring.
Jason serves on the Patient Council for the Diann Shaddox Foundation for Essential Tremors. He is honored to be a part of this organization. He looks forward to contributing to its mission of improving the lives of individuals with essential tremors through support and research.