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Please #give generously to help spread the word and find a cure for Essential Tremor and #makeadifference in millions of peoples lives. #Stoptheshakes
Please DONATE
Please #give generously to help spread the word and find a cure for Essential Tremor and #makeadifference in millions of peoples lives. #Stoptheshakes
Team DSF Fundraisers Event Ideas >
Host Your Own Event for Team DSF Join now and become a part
of change for Essential Tremor
>Don't see the event for you? Create your own!
Team DSF hosts garden walks, concerts, art auctions, car shows and much more — all to help us to bring awareness and find a cure for ET. Let your talents and interests lead you to come up with new ideas.
Team DSF hosts garden walks, concerts, art auctions, car shows and much more — all to help us to bring awareness and find a cure for ET. Let your talents and interests lead you to come up with new ideas.
What is it like to live with Essential Tremor?
- What would you do if your voice quivered so much that you aren't able to speak or you can barely speak?
- What would you do if your head constantly shakes yes or no?
- What would you do if every time you try to eat and food flies from your fork or spoon, and your drink will splash on you and everyone at the table?
- What would you do if you couldn't prepare your own food?
- What would you do if every night the inside of your body quivers as you try to fall asleep?
- What would you do if you couldn't sign your name, and if you try to fill out a form because your hand tremors like a baby bird's wings flapping, and then no one can read what you write?
- What would you do if your legs tremor and you wobble when you walk?
- What would you do if you couldn't play with your children or help them with school projects because your hand shakes?
- What would you do if you were afraid to hold your newborn baby?
- What would you do if you’re a teenager and because your hands flutter in class you're teased and bullied?
- What would you do if you’re a teenager and your dreams of becoming a carpenter, artist, pianist, doctor, nurse or dentist will never come true because of your tremors?
- What if you aren’t able to apply makeup, put in your contact lens, or shave.
- What would you do if you couldn't put on jewelry? (necklace or earrings)
- What would you do if you are a young child and can’t copy your ABC’s or make crafts like the other kids in your class?
- What would you do if you’re a musician, singer, or artist and your life of playing an instrument, singing or painting abruptly stops?
- What would you do if you were fired from your job because your boss doesn't like to see you tremor, even though you can still do your job?
- What would you do if you couldn't drive a car?
What is it like to live with Essential Tremor
- Can you imagine waking in the morning and not be able to hold a cup of coffee in your hands without spilling it, or not able to make your breakfast without making a mess. Then trying to dress, buttoning your shirt, shaving, and putting on makeup or jewelry is almost impossible for millions.
- When you’re out in public having people stare as your hands tremor, head shakes yes or no, and scared to death you might have to sign or fill out a form. Eating is another huge problem, slinging food from forks and spoons, as your hand tremors trying to make it to your mouth and spilling your drink unless it’s in a cup with a lid. Many people with movement disorders voice tremors and communication is difficult. People have lost their job when their boss finds out about their tremors.
- Now, how would you like to be a 5 year old in kindergarten and can’t color the page or write your ABC’s like the other kids. How would you like to be a teenager trying to eat, write or grasp things in their tremoring hands while others stare, giggle, bully and tease.
- First and foremost, Essential Tremor can begin at any age, from ages 1 to 100. Essential Tremor doesn't discriminate with age, race, sex, or national origin.
DSF Millions of Faces of Essential Tremor
THESE ARE REAL PEOPLE WORLDWIDE LIVING EVERYDAY WITH ESSENTIAL TREMOR.
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Congressman Joe Wilson (R-SC) |
Dee Wallace DSF supporterDee Wallace, who has worked as an author, teacher, dancer and actress in film, television, and stage for over 40 years, the mother in Steven Spielberg’s movie “ET,” has joined Diann Shaddox Foundation for Essential Tremor as a supporter.
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Brad Carter Singing for ET Benefit
David Bradley "Brad" Carter is an American film and television actor, guitarist, painter, sculptor, and photographer, known for playing Charlie Lange in True Detective and Leland Gruen in Sons of Anarchy. http://www.thebradcarter.com/
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NIHTeam DSF at the 2017 NINDS Nonprofit Forum, “Progress Through Partnership”
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Chief Billy Friend of the Wyandotte NationJourney of the Wyandottes with Founder Diann Shaddox
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Cody WebbSinger, songwriter, and musician Cody Webb has played hundreds of dates across the country, earning thousands of fans with his keen vocals and distinctive guitar skills. http://codywebbcountry.com/
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Chef Art SmithCharles Arthur "Art" Smith is an American chef who has worked for former Florida governors Bob Graham and Jeb Bush and until 2007 was personal chef to Oprah Winfrey
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Chef Robert IrvineChef Robert Irvine holding A Faded Cottage a love story about an artist that develops ET
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Paula Dean & FamilyDiann Shaddox talking with Paula Dean & Family about ET & Team DSF
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March ET Awareness Month National & Aiken, SCDiann Shaddox with Mayor Rick Osbon of Aiken, SC proclamation that March is Essential Tremor Month in Aiken, SC
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Christmas in the 1800's with Kim Poovey to benefit the Diann Shaddox Foundation for ETBringing Awareness to ET
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Bill Taylor a member of the South Carolina House of Representatives from the 86th District, Diann Shaddox Founder of DSF & Mayor Rick Osbon |
Join Team DSF & Be Counted for ET
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Join Team DSF |
Join Team DSF |
Here are a few things people living with Essential Tremor deal with. Essential Tremors won’t kill you, but…
- What would you do if your voice quivered so much that you aren't able to speak or you can barely speak?
- What would you do if your head constantly shakes yes or no?
- What would you do if every time you try to eat food it flies from your fork or spoon and your drink splashes on you and everyone at the table?
- What would you do if you couldn't prepare your own food?
- What would you do if every night the inside of your body quivers as you try to fall asleep?
- What would you do if you couldn't sign your name, and if you try to fill out a form, your hand tremors like a baby bird's wings, and no one can read what you write?
- What would you do if your legs tremor and you wobble when you walk?
- What would you do if you couldn't play with your children or help them with school projects because your hand shakes?
- What would you do if you were afraid to hold your newborn baby?
- What would you do if you’re a teenager and because your hands flutter in class you are teased and bullied?
- What would you do if you’re a teenager and your dreams of becoming a carpenter, artist, pianist, doctor, nurse, or dentist will never come true because of your tremors?
- What if you aren’t able to apply makeup, put in your contact lens, or shave.
- What would you do if you couldn't put on jewelry? (necklace or earrings)
- What would you do if you are a young child and can’t copy your ABC’s or make crafts like the other kids in your class?
- What would you do if you’re a musician, singer, or artist and your life of playing an instrument, singing or painting abruptly stops?
- What would you do if you were fired from your job because your boss doesn't like to see you tremor, even though you can still do your job?
- What would you do if you couldn't drive a car?
Be the Change for Essential Tremor.
The Patient Council is a network of ET Patients & advocates to gather information to help inform/guide DSF and the ET worldwide community. The purpose is to help the Diann Shaddox Foundation for Essential Tremor gain new insights and advice to explain ET problems or explore new opportunities by increasing healthy, high-quality discussions. |
What do we do?
We take pride in the accomplishments we've made, but we have a long way to go. Please join us! We can't do this alone.
- Support Medical Research and clinical trials to bring new treatments and a cure for ET. With research, medicine, therapies and alternative treatments will be discovered.
- DSF ET Awareness Program Improves knowledge and awareness of Essential Tremor throughout the medical community, first responders, Police, EMTs, Fire, and school administrators.
- Family Assistance Program gives assistance to those going through hardship living with ET. DSF assists families and individuals by providing information & resources on government assistance, SS Disability, VA benefits, treatment resources, and assistance (when available) for food, fuel, & medicine.
- Stop ET Bullying is a universal problem. Bullying abuse can be physical, verbal, or emotional. Stop bullying of people of all ages afflicted with Essential Tremor (ET) in schools & workplace.
- Children Educational Initiative includes educating our school systems about Essential Tremor. We are working with Legislators and Educators on a pilot program to inform principals, teachers, and school nurses about Essential Tremor. Our goal is to help them identify and become aware of symptoms of ET in children in their classroom.
- Suicide Awareness Improved knowledge of Essential Tremor throughout the world. Recruit Volunteers & Team Members to help spread information about Essential Tremor and Suicide Awareness. Provide support and tools. Distribute Suicide Information. Spread information on Social Media Platforms and ET Campaigns.
- Inspire young health professionals to specialize in the care of Essential Tremor. DSF is advocating and encouraging AMA to support young physicians to transition into neurology and movement disorder doctors for Essential Tremor.
- Provide ET Talks events monthly and bi-monthly to discuss living with ET, medications, devices, alternative options, exercise, and fun discussion about what’s happening with ET.
- Develop a better data system for sharing knowledge and ET information around the world.
- Promote our Be Counted. Unite the worldwide ET community. There is strength in numbers and a way for the ET community to share their experiences, moral support, and concerns for one another.
- Post DSF informational Newsletter.
- Create Videos and information articles.
- Recruit Volunteers & Team Members around the world.
- Spread information on Social Media Platforms and ET Campaigns. promote awareness for ET through newspapers, magazines, TV, radio, and events.
- Unite the Millions of Faces of ET from around the world.
- Provide support and tools for Team DSF.
- Distribute Information cards, brochures, ET medical alert cards & envelopes at no cost.
- Bring together the ET community and the world during March ET Month. Unite the ET community on March 16 ET Day of Awareness & Giving.
- Increase earlier treatment access for patients to find specialized care from movement disorders doctors.
We take pride in the accomplishments we've made, but we have a long way to go. Please join us! We can't do this alone.