Donate
Living with Essential TremorManeuvering Work & BenefitsVeterans & ETET Champions support GroupET Worldwide FB support GroupEt Talks Webinar |
Understanding Essential TremorPatient ResourcesTREMOR DEVICESexercise with ETSTRESSET Conference |
Advocate for Essential TremorYour Role in ET ResearchTake action for eTChildren educational initiativeJoin ET Patient CouncilJoin our Team |
Navigating ET involves advocating for individuals living with Essential Tremor Disease. It addresses their physical, mental, and emotional needs, ensuring they feel valued and respected. The ultimate goal is to enhance their well-being and health outcomes by providing access to resources that ensure they receive timely and appropriate care.
Key Aspects of Patient Care:
**Providing guidance: This approach ensures that patients take an active role in their care decisions. Helping patients with support groups and social activities to enhance their well-being
**Respect and Empathy: It is essential to consider patients' circumstances and treat them with dignity, understanding, and compassion.
**Effective Communication: Clear and open communication is essential for building trust and ensuring patients understand their health conditions, treatment options, and self-care methods.
**Healthy Lifestyle: Supporting healthy behaviors and lifestyle choices.
Patient Support Groups
Essential Tremor Worldwide Facebook Group is a private group on social media where people with ET share their experiences, moral support, and concerns for one another. DSF ET Worldwide Facebook Group>>
ET Champions is a casual & private support group where members come together via Zoom to share valuable experiences, offer support, and discuss important concerns, fostering a strong camaraderie and understanding. ET Champions>>
Your Role in ET Research
Everyone plays a crucial role in progressing disease research and creating new treatments. Here’s what you should know and how to get started. Learn More>>
|
Find a Movement Disorder Specialist
A movement disorder specialist is a neurologist who has pursued advanced, specialized training focused on the intricate world of movement-related conditions. Learn More>>
|
Take Action for ET
Our collective efforts fuel advocacy for public policies that facilitate groundbreaking research and improve the quality of life for those impacted by ET. Learn More>>
|
Tremor Devices
Healthcare devices to help diagnose and treat diseases, monitor health conditions, prevent illnesses, improve quality of life, and assist patients. Learn More>>
|
National ET Conference
Join us for a groundbreaking educational conference hosted by the Diann Shaddox Foundation for Essential Tremor.
• Discover new treatments and resources.
• Explore strategies and devices to lessen tremors.
• Learn holistic approaches from top providers.
• Connect with others facing ET.
• Hear keynote speakers from healthcare companies.
• Get updates on clinical trials and advances.
• Listen to personal stories about living with ET.
• Use networking to discuss ET and share insights.
• Connect with healthcare professionals.
• Participate in discussions to promote innovation and ensure access to quality care.
• Discover new treatments and resources.
• Explore strategies and devices to lessen tremors.
• Learn holistic approaches from top providers.
• Connect with others facing ET.
• Hear keynote speakers from healthcare companies.
• Get updates on clinical trials and advances.
• Listen to personal stories about living with ET.
• Use networking to discuss ET and share insights.
• Connect with healthcare professionals.
• Participate in discussions to promote innovation and ensure access to quality care.
Veterans and ET
The DSF Patient Care advocates for individuals, including Veterans, living with ET It addresses their physical, mental, and emotional needs, ensuring they feel valued and respected. Learn More>>
|
Children's Educational Initiative
The CEI is committed to advocating for parents and children, empowering them to navigate the educational system so that children with ET have every opportunity to reach their full academic potential. Learn More>>
|
Maneuvering Work & Benefits with ET
Conquering workplace dynamics associated with essential tremor and leveraging government insurance benefits to achieve professional success.
|
Resources
Resources to help guide you through the process of dealing with ET. The ability to help yourself. No one knows your body and mind like you. Learn More>>
|
Stop ET Bullying
Many confuse essential tremor (ET) and wrongly judge those with tremors in their hands, head, legs, or voice. This lack of understanding leads to bullying in schools and workplaces, as people often assume someone is on drugs or less intelligent. It's time to challenge these misconceptions and promote awareness. Learn More>>
Suicide Awareness
Often, family and friends are the first to recognize the warning signs of suicide and can take the first step toward helping an at-risk individual find treatment with someone who specializes in diagnosing and treating mental health conditions. Learn More>>
Importance of Patient-Center Care:
- Increased Patient Satisfaction: Patients who feel heard and respected are more satisfied.
- Enhanced Collaboration: Engaging patients in their care helps create more effective and personalized treatment plans.
In summary, patient-centered care emphasizes respecting patients' values, preferences, and needs while involving them in the decision-making process regarding their health care.
This page provides general info only. The Diann Shaddox Foundation for Essential Tremor does not endorse medications, treatments, or companies but offers information. Consult your medical provider for care decisions.
This page provides general info only. The Diann Shaddox Foundation for Essential Tremor does not endorse medications, treatments, or companies but offers information. Consult your medical provider for care decisions.
