our Foundation
DSF is not only made up of Doctors, Business Executives, but board members who are afflicted by Essential Tremor, along with DSF Founder Diann Shaddox.
DSF purpose and commitment is to raise funds to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET. To tell the world it is alright to tremor, shake, drop things, and have voice tremors. Essential Tremor has been misunderstood and ignored for over a 100 years. It is time to make a stand and tell the world ET is a disability.
We take pride in the accomplishments we've made, but we have a long way to go. Our end goal is to ease the suffering of ET and find new treatments and a cure.
Essential Tremor is progressive and highly prevalent neurologic disease.
Our Goal
Find new treatments, medications, devices, healthy options and a cure for ET.
Improve knowledge of Essential throughout the medical community around the world.
Inspire young healthy professionals to specialize in the care of ET.
Develop a better data system for sharing knowledge and ET information around the world.
Increase earlier treatment access for patients to find specialize care from movement disorder doctors.
Support patients with ET to let everyone know You Aren't Alone.
DSF is adamant to make change and find new treatments.
DSF purpose and commitment is to raise funds to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET. To tell the world it is alright to tremor, shake, drop things, and have voice tremors. Essential Tremor has been misunderstood and ignored for over a 100 years. It is time to make a stand and tell the world ET is a disability.
We take pride in the accomplishments we've made, but we have a long way to go. Our end goal is to ease the suffering of ET and find new treatments and a cure.
Essential Tremor is progressive and highly prevalent neurologic disease.
Our Goal
Find new treatments, medications, devices, healthy options and a cure for ET.
Improve knowledge of Essential throughout the medical community around the world.
Inspire young healthy professionals to specialize in the care of ET.
Develop a better data system for sharing knowledge and ET information around the world.
Increase earlier treatment access for patients to find specialize care from movement disorder doctors.
Support patients with ET to let everyone know You Aren't Alone.
DSF is adamant to make change and find new treatments.
MISSION To advance knowledge and recognition of Essential Tremor to the world and find new treatments and a cure.
DSF 2024 Strategic Plan, DSF has a design in which to shape the way the world sees Essential Tremor. With the leadership of the Board of Trustee’s, volunteers, and partners diverse backgrounds enable us to tackle and promote the highest quality patient-centered ET care and change the future of ET. The platform’s comprehensive plan will help lead to a new time in advancement in ET medical research and help countless people around the world. DSF goal is offering hope and assistance for people suffering from hardships magnified by ET.
VISION: End Essential Tremor in our Lifetime & Unite the ET community. Improved knowledge of Essential Tremor throughout the medical community, first responders, and school systems. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
EQUALITY: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
VALUES We set and maintain the highest ethical standards for ourselves and our programs, products, and services. We are known for our perseverance, optimism, and diligence that we bring to our mission. DSF has helped and will help millions of people who are suffering from Essential Tremor.
MERIT & GOAL: We work collaboratively with a highly connected network of industry leaders who believe in our vision to unite the ET community and to share our expertise and use informed decision-making in service of others to improve the quality of Essential Tremor care. With partnership teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
We take our ideals as a standard to be aimed at under vital consideration to advance treatments that can slow, stop, or reverse the progression of Essential Tremor.
Essential Tremor (ET) is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or body. ET can begin at any age, from birth to 100 and doesn't discriminate with age, race, sex, or national origin. Over 100-160 million people worldwide have Essential Tremor
Essential tremor (ET) is characterized by uncontrollable and rhythmic shaking or trembling in one or more parts of the body while in use most commonly the arms and hands. It tends to occur in families.
It is mild in some people but can become severe, debilitating, and demoralizing. First and foremost, Essential Tremor can begin at any age from ages 1 to 100. ET doesn’t discriminate with age, race, sex, or national origin.
Tremor in the hands can impair the ability to eat, dress, write, and perform household activities and functions in the workplace.
Many people with ET are too embarrassed to go out in public and remain isolated in their homes, which can lead to depression.
DSF 2023 Strategic Plan, DSF has a design in which to shape the way the world sees Essential Tremor. With the leadership of the Board of Trustee’s, volunteers, and partners we will promote the highest quality patient-centered ET care and change the future of ET. The platform’s comprehensive plan will help lead to a new time in advancement in ET medical research and help countless people around the world. DSF goal is offering hope and assistance for people suffering from hardships magnified by ET.
DSF 2024 Strategic Plan, DSF has a design in which to shape the way the world sees Essential Tremor. With the leadership of the Board of Trustee’s, volunteers, and partners diverse backgrounds enable us to tackle and promote the highest quality patient-centered ET care and change the future of ET. The platform’s comprehensive plan will help lead to a new time in advancement in ET medical research and help countless people around the world. DSF goal is offering hope and assistance for people suffering from hardships magnified by ET.
VISION: End Essential Tremor in our Lifetime & Unite the ET community. Improved knowledge of Essential Tremor throughout the medical community, first responders, and school systems. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
EQUALITY: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
VALUES We set and maintain the highest ethical standards for ourselves and our programs, products, and services. We are known for our perseverance, optimism, and diligence that we bring to our mission. DSF has helped and will help millions of people who are suffering from Essential Tremor.
MERIT & GOAL: We work collaboratively with a highly connected network of industry leaders who believe in our vision to unite the ET community and to share our expertise and use informed decision-making in service of others to improve the quality of Essential Tremor care. With partnership teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
We take our ideals as a standard to be aimed at under vital consideration to advance treatments that can slow, stop, or reverse the progression of Essential Tremor.
Essential Tremor (ET) is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or body. ET can begin at any age, from birth to 100 and doesn't discriminate with age, race, sex, or national origin. Over 100-160 million people worldwide have Essential Tremor
Essential tremor (ET) is characterized by uncontrollable and rhythmic shaking or trembling in one or more parts of the body while in use most commonly the arms and hands. It tends to occur in families.
It is mild in some people but can become severe, debilitating, and demoralizing. First and foremost, Essential Tremor can begin at any age from ages 1 to 100. ET doesn’t discriminate with age, race, sex, or national origin.
Tremor in the hands can impair the ability to eat, dress, write, and perform household activities and functions in the workplace.
Many people with ET are too embarrassed to go out in public and remain isolated in their homes, which can lead to depression.
DSF 2023 Strategic Plan, DSF has a design in which to shape the way the world sees Essential Tremor. With the leadership of the Board of Trustee’s, volunteers, and partners we will promote the highest quality patient-centered ET care and change the future of ET. The platform’s comprehensive plan will help lead to a new time in advancement in ET medical research and help countless people around the world. DSF goal is offering hope and assistance for people suffering from hardships magnified by ET.
DSF has implemented our programs and we are unwavering to make a difference with DSF Worldwide ET Awareness Program, Family Assistance Program, Children Educational Initiative Program, Stop ET Bullying Program, Suicide Awareness ET Program, & Medical Research Program to find a cause and cure. ET can begin at any age, from birth to 100 and doesn’t discriminate with age, race, sex, or national origin.
DSF will make a difference in millions of people’s lives and directly change the future for everyone who will inherit or develop Essential Tremors. We want to show that Essential Tremors isn’t just for the elderly, but children of all ages have ET. We can bring people out of hiding and educate teachers so children and teens aren’t bullied about their tremors.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability!
DSF works with people worldwide to show that ET is an international progressive disorder.
DSF will make a difference in millions of people’s lives and directly change the future for everyone who will inherit or develop Essential Tremors. We want to show that Essential Tremors isn’t just for the elderly, but children of all ages have ET. We can bring people out of hiding and educate teachers so children and teens aren’t bullied about their tremors.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability!
DSF works with people worldwide to show that ET is an international progressive disorder.
Despite its prevalence, it wasn't until 2013 that essential tremor was given its own specific diagnostic code, one that's distinct from other tremors, in the 10th edition of the World Health Organization's International Statistical Classification of Disease and Related Health Problems (ICD) code book. ICD-10-CM Code for Essential tremor G25.0
ICD-10 code G25.0 for Essential tremor is a medical classification as listed by WHO under the range - Diseases of the nervous system.
Essential tremor is as much as 20 times more prevalent than Parkinson’s disease in the US, (20 million). Barrow Neurological Institute
DSF ET Program
DSF ET Program is bringing the term Essential Tremor along with education, awareness, and research to the world. Our staff and supporters are dynamic and diverse. Our skills are different, our professions are varied, but our mission is the same; find new treatments, and support to everyone living with Essential Tremor.
We work collaboratively with a highly connected network of industry leaders who believe in our vision to unite the ET community and to share our expertise and use informed decision-making in service of others to improve the quality of Essential Tremor care. With partnership, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission with our social media, media outlets, and ET Talks.
DSF ET Program funds go to improve knowledge of Essential Tremor throughout the world and the medical community. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
Although the disorder is most common in older adults, it can affect individuals of any age including middle-aged or young adults and children. It has been reported during infancy. Our purpose is to help children learn to discuss and be open about their tremors and understand they aren’t alone.
DSF goal is not only offering hope and assistance for people suffering from hardships magnified by Essential Tremor, but we will not stop until the world recognizes Essential Tremor, and we find the latest treatments whether it is the cutting-edge medications or surgeries and find a cure.
DSF ET Program is bringing the term Essential Tremor along with education, awareness, and research to the world. Our staff and supporters are dynamic and diverse. Our skills are different, our professions are varied, but our mission is the same; find new treatments, and support to everyone living with Essential Tremor.
We work collaboratively with a highly connected network of industry leaders who believe in our vision to unite the ET community and to share our expertise and use informed decision-making in service of others to improve the quality of Essential Tremor care. With partnership, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission with our social media, media outlets, and ET Talks.
DSF ET Program funds go to improve knowledge of Essential Tremor throughout the world and the medical community. Inspire young health professionals to specialize in the care of Essential Tremor. Develop a better data system for sharing Essential Tremor information around the world. Increase earlier treatment access for patients to find specialized care from movement disorder doctors.
Although the disorder is most common in older adults, it can affect individuals of any age including middle-aged or young adults and children. It has been reported during infancy. Our purpose is to help children learn to discuss and be open about their tremors and understand they aren’t alone.
DSF goal is not only offering hope and assistance for people suffering from hardships magnified by Essential Tremor, but we will not stop until the world recognizes Essential Tremor, and we find the latest treatments whether it is the cutting-edge medications or surgeries and find a cure.
Most people believe only older people have ET and that it is just a social problem. However, ET is DEMORALIZING, DEVASTATING, & DEBILITATING.
ET is Demoralizing. It is embarrassing when you are not able to hold a pencil or crayon in your hand to write or color and people stare and laugh.
ET is Devastating. Living with uncontrollable tremor makes it difficult to dress, and feed yourself. Many people will never live their dream of being an artist, musician, singer, actor, doctor, or nurse.
ET is Debilitating. It isn’t just a social problem when you cut and burn yourself as you try to cook, can’t drive a car, and you are fired from a job because your hands tremor. Many people lose the ability to talk from voice tremors and aren’t able to write or sign to communicate. Sleep is another problem with body tremors.
The list continues.
The answers to help everyone living with ET are to bring awareness around the world and find a cure for ET. DSF is working diligently to make this happen.
ET is Demoralizing. It is embarrassing when you are not able to hold a pencil or crayon in your hand to write or color and people stare and laugh.
ET is Devastating. Living with uncontrollable tremor makes it difficult to dress, and feed yourself. Many people will never live their dream of being an artist, musician, singer, actor, doctor, or nurse.
ET is Debilitating. It isn’t just a social problem when you cut and burn yourself as you try to cook, can’t drive a car, and you are fired from a job because your hands tremor. Many people lose the ability to talk from voice tremors and aren’t able to write or sign to communicate. Sleep is another problem with body tremors.
The list continues.
The answers to help everyone living with ET are to bring awareness around the world and find a cure for ET. DSF is working diligently to make this happen.
- Support Medical Research and clinical trials to bring new treatments and a cure for ET. With research, medicine, therapies and alternative treatments will be discovered.
- DSF ET Awareness Program Improves knowledge and awareness of Essential Tremor throughout the medical community, first responders, Police, EMTs, Fire, and school administrators.
- Family Assistance Program gives assistance to those going through hardship living with ET. DSF assists families and individuals by providing information & resources on government assistance, SS Disability, VA benefits, treatment resources, and assistance (when available) for food, fuel, & medicine.
- Stop ET Bullying is a universal problem. Bullying abuse can be physical, verbal, or emotional. Stop bullying of people of all ages afflicted with Essential Tremor (ET) in schools & workplace.
- Children Educational Initiative includes educating our school systems about Essential Tremor. We are working with Legislators and Educators on a pilot program to inform principals, teachers, and school nurses about Essential Tremor. Our goal is to help them identify and become aware of symptoms of ET in children in their classroom.
- Inspire young health professionals to specialize in the care of Essential Tremor. DSF is advocating and encouraging AMA to support young physicians to transition into neurology and movement disorder doctors for Essential Tremor.
- Provide ET Talks events monthly and bi-monthly to discuss living with ET, medications, devices, alternative options, exercise, and fun discussion about what’s happening with ET.
- Develop a better data system for sharing knowledge and ET information around the world.
- Promote our Be Counted. Unite the worldwide ET community. There is strength in numbers and a way for the ET community to share their experiences, moral support, and concerns for one another.
- Post DSF informational Newsletter.
- Create Videos and information articles.
- Recruit Volunteers & Team Members around the world.
- Spread information on Social Media Platforms and ET Campaigns. promote awareness for ET through newspapers, magazines, TV, radio, and events.
- Unite the Millions of Faces of ET from around the world.
- Provide support and tools for Team DSF.
- Distribute Information cards, brochures, ET medical alert cards & envelopes at no cost.
- Bring together the ET community and the world during March ET Month. Unite the ET community on March 16 ET Day of Awareness & Giving.
- Increase earlier treatment access for patients to find specialized care from movement disorders doctors.
DSF’s logo is an Eagle's wing. Diann Shaddox is a Native American & proud member of the Wyandotte Nation. The Eagle has stood for the people, he protects, serves, and watches over his brothers and sisters.
