TEAM DSF IN THE NEWS
​Join Dr. Drew Christensen & Diann Shaddox for a Zoom ET Talk event on May 25th, 2022, 4:00 pm Eastern Time. Discuss living with ET and how Dr. Christensen has learned alternative solutions to help himself and ET patients live unshakable lives.

​We want to hear from you, so get your ideas, questions and your own stories about ET ready. 
Wednesday May 25th, 2022                  4:00 PM Eastern Time   
PRAXIS PRECISION MEDICINES PROVIDES CORPORATE UPDATE     May 9, 2022 at 4:01 PM EDT
PRAX-944 demonstrated clinically meaningful functional improvement in essential tremor patients in Part B of Phase 2a study
“This is an incredibly exciting time at Praxis, with recent events bringing us closer to our long-term vision,” said Marcio Souza, president and chief executive officer of Praxis. “With positive topline results from our PRAX-944 Phase 2a study in essential tremor, and plans to accelerate development in the ongoing Essential1 study, we will soon have a second late-stage clinical asset along with a deep and innovative early-stage pipeline. https://www.linkedin.com/company/praxis-precision-medicines-inc/videos/
​About the KINETIC 2 TRIAL. Sage & Biogen are looking for adults ages 18 to 80 years old who have been formally diagnosed with essential tremor for at least three years to take part in the KINETIC 2 TRIAL. The purpose of this study is to evaluate the safety and efficacy of three different doses of an investigational drug compared to a placebo on tremor reduction. A placebo is an inactive pill that looks like the investigational drug but contains no active medication. Participation in the KINETIC 2 TRIAL lasts approximately 19 weeks, including 11 clinic visits and five phone calls from the study team.
 
Interested individuals will be evaluated to determine their eligibility to participate in this study. Each patient who participates will receive either the investigational drug or a placebo, as well as study-related medical exams and study-related laboratory tests, at no cost. To learn more, visit KINETIC2TrialET.com.
 Would you like to participate in a study for Essential Tremor (ET)?
We are inviting you to take part in a study for adults who experience tremors in an upper limb (such as your arms) due to ET. All study-related visits, tests, and investigational medication will be provided at no cost to you. In addition, reimbursement for time and travel may be provided. No health insurance is required.                                                                         Jazz Pharmaceuticals Phase 2b Clinical Trial in essential tremor. 
Sage is proud to be named one of America’s Most Trusted Companies by Newsweek. We’re committed to shaping the future of #brainhealth and developing medicines that positively impact the lives of our patients. 
 #ThisIsSage
DSF is proud to announce our continuing partnership with Kroger Company who ​will help DSF change the future for everyone who will inherit or develop Essential Tremor by offering hope and assistance for people suffering from hardships magnified by Essential Tremor.
Mary’s Story:
​Providing Long Term Care to a Loved One with Essential Tremor
Picture
DSF is proud to announce our partnership/sponsorship with Sage Therapeutics who ​will help DSF change the future for everyone who will inherit or develop Essential Tremor by offering hope and assistance for people suffering from hardships magnified by Essential Tremor.
DSF is proud to announce our partnership/sponsorship with  Jazz Pharmaceuticals  ​who ​will help DSF change the future for everyone who will inherit or develop Essential Tremor by offering hope and assistance for people suffering from hardships magnified by Essential Tremor.
DSF is proud to announce our partnership/sponsorship with  Sage Therapeutics & Biogen ​who ​will help DSF change the future for everyone who will inherit or develop Essential Tremor by offering hope and assistance for people suffering from hardships magnified by Essential Tremor.
Picture
 Barry Greene CEO at Sage Therapeutics 
I welcome every opportunity to shine a light on the #brainhealth pandemic and the urgent need for innovation in care. I was thrilled to join #TEDxBoston to discuss how we are working to develop novel therapies to move from brain health awareness to brain health action. Watch my full talk here. 
​​​New Treatment Research in the News 2022
Neuroscience News
​New MRI Probe Can Reveal More of the Brain’s Inner Workings
JAMA Neurology | Original Investigation
Association of Essential Tremor With Novel Risk Loci
A Genome-Wide Association Study and Meta-analysis
One of DSF partners, Jazz Pharmaceuticals Announces First Patient Enrolled in Phase 2b Clinical Trial Evaluating Novel Suvecaltamide (JZP385) for Once-Daily Treatment of Adults with Essential Tremor
Praxis Precision Medicines is a clinical-stage biopharmaceutical company translating genetic insights into the development of therapies for patients affected by central nervous system (“CNS”) disorders characterized by neuronal imbalance. 
Praxis  is in the process of developing a new medication specifically focused on treating Essential Tremor.
Diann Shaddox Foundation For Essential Tremor is Platinum Transparency for 2022

DSF ET talks

Cher Burnham Matteson Board Trustee & Director of Family Assistance on Facebook Live ET Talk event
​ January 8, 2022.
Talking about living with Essential Tremor
Ask Your Legislator to Support an FDA Neuroscience Center of Excellence
Congress needs to hear from you now. Please urge your member of Congress to support the creation of a Neuroscience Center of Excellence by co-sponsoring the BRAIN Act and signing the letter in support of the creation of a Neuroscience Center of Excellence today. ​
​Leaders of the Congressional Neuroscience Caucus and the Brain Injury Task Force are circulating a sign-on letter to the Energy & Commerce Committee in support of the creation of a Neuroscience Center of Excellence (NCOE) at the Food and Drug Administration (FDA). A Neuroscience Center of Excellence would help the more than ten million people living with essential tremor by creating a more transparent and patient-focused process at the FDA to speed the delivery of safe and effective treatments to patients.

Participate in Clinical Trials and Studies

millions of faces of et
 Diann Shaddox &
​ Dr. Drew Christensen

Team DSF ET 

 Congressman Joe Wilson  
​ Colen Lindell. 
​ SIGN UP FOR OUR EMAIL NEWSLETTER AND GET THE LATEST INFO ON  EVENTS, FUNDRAISERS AND WAYS TO MAKE AN IMPACT.
 SIGN UP FOR OUR EMAIL NEWSLETTER AND GET THE LATEST INFO ON  EVENTS, FUNDRAISERS AND WAYS TO MAKE AN IMPACT.
​
About DSF  | DSF Events | Shop DSF | Contact Us | Terms of Use  |  Privacy Policy |​  
 Diann Shaddox Foundation for Essential Tremor

© 2014 and beyond | Diann Shaddox foundation ™| All Rights Reserved.  No part of this website is public domain.  
​All contributions are tax deductible to the extent allowable by law.

Diann Shaddox Foundation for Essential Tremor A Non-Profit 501c(3) organization www.diannshaddoxfoundation.org