DonateThe Diann Shaddox Foundation is committed to relentlessly pursuing research to solve the mysteries of Essential Tremor.
We have significant work ahead, and we will not rest until we bring new and enhanced treatments to millions in need and ultimately find a cure.
The Foundation's Scientific Advisory Board is dedicated to becoming the leading research organization for a cure for ET.
We focus on ET research and developing a data system that connects ET patients with the right researchers and investigators. Join our Patient Resource Database Now>>
We have significant work ahead, and we will not rest until we bring new and enhanced treatments to millions in need and ultimately find a cure.
The Foundation's Scientific Advisory Board is dedicated to becoming the leading research organization for a cure for ET.
We focus on ET research and developing a data system that connects ET patients with the right researchers and investigators. Join our Patient Resource Database Now>>
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Your support for DSF Research ensures DSF can continue research studies focused on;
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<<Clinical Research Studies
We have established strategic alliances with leading organizations that specialize in clinical trials. These partnerships leverage cutting-edge research methodologies and technologies to drive innovation in healthcare. By collaborating with experts at the forefront of clinical research, we aim to facilitate groundbreaking studies that could lead to the development of novel treatments for ET disease. Our efforts focus on improving patient outcomes by ensuring that new therapies are effective and tailored to meet patients' diverse needs. Through this transformative research, we are committed to making significant advancements in the field of medicine for ET. |
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Genetic health plays a crucial role in determining how a person's genes and DNA shape their traits and risk of diseases such as ET. It is essential to comprehend how genetic variations can result in inherited conditions or heighten the risk of complex diseases. Proactive management of genetic health demands effective interventions, such as lifestyle changes, personalized treatments, and genetic testing, to accurately identify risks and direct medical care.
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<<Tremor Guidelines: Diagnosis of Essential Tremor Committee
The Diann Shaddox Foundation is a part of the Tremor Guideline Committee. ET diagnosis remains a clinical diagnosis, as there are no validated diagnostic markers for ET. This committee aims to re-evaluate the available tools to aid in the diagnosis of ET. The goal is to provide a more data-driven and empirically-driven approach to diagnosing ET (based on or guided by observation, experiment, or experience) that best distinguishes ET from other tremor disorders. |
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Developing an app that tracks medication timing to wearables that evaluate the intensity of tremors, and many other technologies are offering people with ET support in many areas of daily life.
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Significant evidence supports the assertion that Essential Tremor neurodegenerative disorder, with its classification evolving. Research has shown clear pathological changes in the brain, such as Purkinje cell loss and cerebellar abnormalities, which indicate neurodegeneration. ET is also linked to non-motor symptoms like mild cognitive impairments and accelerated cognitive decline, similar to other neurodegenerative conditions.
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Data Metrics Research
DSF is determined to place Essential Tremor at the forefront of healthcare by actively collecting critical ET Patient data and enhancing diagnosis methods.
​Join and Help Create the Largest ET Patient Resource Database, PRD
<<Healthcare Data Metrics Research
We are actively working to gather diverse information from healthcare experts and ET Patients. We aim to explore patients' many challenges, highlighting their experiences and struggles. We strive to improve and enhance our support for those in need, ultimately transforming their healthcare journey. |
<< Your Role in ET Data Research
Join & Help Create the Largest ET Patient Resource Database. By systematically collecting and analyzing this information, we aim to provide valuable insights that inform future research, intervention strategies, and support initiatives for those affected by ET. |
<<Population Data Metric Research
We are currently developing a system to collect data on the population affected by ET Disease. This effort aims to improve our understanding of the disease's prevalence and impact on individuals and communities. |
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Research Studies on exercise, nutrition, gait, and speech. These studies aim to explore the relationships and impacts of these factors on overall health and well-being. Exercise research examines the benefits of physical activity on various aspects of health. Nutrition studies investigate the role of diet in maintaining optimal health. Gait analysis focuses on how movement patterns can influence functional mobility and injury prevention, and speech research seeks to enhance our understanding of communication disorders and their treatments. Together, these fields contribute significantly to our knowledge of Essential Tremor disease health and performance.
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