Research
|
|
|
THE MYSTERY OF ET
​We are committed to relentlessly pursuing research to solve the cause and end Essential Tremor. With your support, our dream will become a reality.
|
We are diligently advancing research to better understand and address the challenges posed by Essential Tremor. With your support, we can collaborate to make our vision of eliminating Essential Tremor a real achievement. We have significant work ahead, and we will not rest until we bring new and enhanced treatments to millions in need and ultimately find a cure. The Foundation's Scientific Advisory Board is dedicated to becoming the leading research organization in the pursuit of a cure for ET. We focus on ET research and developing a data system that connects ET patients with the right researchers and investigators. Join our ET Medical Research Registry and become a DSF partner. |
HELP US LEAD THE WAY
Your support for the Diann Shaddox Foundation Research helps us continue our research studies focused on
|
|
|
|
Clinical Research Studies
We have established our Scientific Advisory Board along with strategic alliances with leading organizations that specialize in clinical trials. These partnerships leverage cutting-edge research methodologies and technologies to drive innovation in healthcare. By collaborating with experts at the forefront of clinical research, we aim to facilitate groundbreaking studies that could lead to the development of novel treatments for ET disease. Our efforts focus on improving patient outcomes by ensuring that new therapies are effective and tailored to meet patients' diverse needs. Through this transformative research, we are committed to making significant advancements in the field of medicine for ET. |
|
Genetic health plays a crucial role in determining how a person's genes and DNA shape their traits and risk of diseases such as ET. It is essential to comprehend how genetic variations can result in inherited conditions or heighten the risk of complex diseases. Proactive management of genetic health demands effective interventions, such as lifestyle changes, personalized treatments, and genetic testing, to accurately identify risks and direct medical care.
|
|
Tremor Guidelines: Diagnosis of Essential Tremor Committee
The Diann Shaddox Foundation is a part of the Tremor Guideline Committee. ET diagnosis remains a clinical diagnosis, as there are no validated diagnostic markers for ET. This committee aims to re-evaluate the available tools to aid in the diagnosis of ET. The goal is to provide a more data-driven and empirically-driven approach to diagnosing ET (based on or guided by observation, experiment, or experience) that best distinguishes ET from other tremor disorders. Clearer Disease Diagnosis |
Data Metrics Research
​We are committed to placing Essential Tremor at the forefront of healthcare by actively collecting critical ET patient data and enhancing diagnostic methods.
|
We are building comprehensive systems to gather critical data on the population and health affected by ET Disease.
This effort is vital for improving our understanding of the disease's prevalence and its effects on individuals and communities. We are dedicated to collecting diverse insights from healthcare professionals and ET patients, directly engaging with their experiences and challenges. Our goal is clear: to better support those in need and to fundamentally improve their healthcare experience. Learn More > Join and help create the largest ETMRR Be a part of this amazing data research and become a DSF partner. |
|
|
Developing apps that monitor medication timing, wearable devices that assess tremor severity, and other technologies are providing support to people with ET in many aspects of daily life.
|
|
Significant evidence supports the assertion that Essential Tremor neurodegenerative disorder, with its classification evolving. Research has shown clear pathological changes in the brain, such as Purkinje cell loss and cerebellar abnormalities, which indicate neurodegeneration. ET is also linked to non-motor symptoms like mild cognitive impairments and accelerated cognitive decline, similar to other neurodegenerative conditions.
|
|
Telemedicine involves using electronic information and communication technologies to provide and support healthcare when distance separates participants with Essential Tremor. It utilizes telecommunications technology to deliver healthcare services remotely, overcoming geographical barriers and offering greater flexibility in accessing medical care. |
The DSF Scientific Advisory Board is driven to find a cause and cure for Essential Tremor.
HELP US LEAD THE WAYPartnershipDSF partnerships are built to create shared value: improving patient lives while offering sponsors credible, patient-driven engagement opportunities across research enablement.
Learn More > |
|
