THE MYSTERY OF ET
​The DSF Tremor Research Initiative is dedicated to advancing research to identify the cause of Essential Tremor and find a cure.
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(DSF) Tremor Research Initiative is a specialized collaborative framework where physicians, medical researchers, and business executives work alongside patients to study Essential Tremor (ET). We are diligently advancing research to better understand and address the challenges posed by Essential Tremor. With your support, we can make our vision of eliminating Essential Tremor a reality and create the most comprehensive and impactful Tremor Research Initiative in the field. Scientific Advisory Board: Medical professionals and research investigators sit on the DSF Scientific Advisory Board to provide expert guidance on scientific advancements, clinical trial data, and treatment breakthroughs. Their insights are crucial for prioritizing our patients' needs and fostering innovation in our research dedicated to drive a new era of advancement in ET medical research and find a cure for Essential Tremor. Tremor Research Registry: The TRR actively tracks genetic health trends and compiles clinical data metrics to give research scientists the statistical foundation needed to find the cause and target new treatments. By gathering extensive data and insights from patients, we will enhance our understanding of Essential Tremor and improve the quality of care. Bridging Clinical and Lived Experience: Unlike isolated laboratory initiatives, DSF integrates a dedicated Patient Council to ensure clinical research protocols are directly informed by the daily neurological, emotional, and physical realities of those living with the condition We have significant work ahead, and we will not rest until we bring new and enhanced treatments to millions in need and ultimately find a cure. Join our Tremor Research Registry and become a DSF partner. |
Explore Medical Research Funding Opportunities
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Clinical Research Studies
At the Diann Shaddox Foundation (DSF), we believe that connecting patients with the right researchers through data-driven systems is imperative to unlocking a cure for essential tremor (ET). To achieve this, we established our Scientific Advisory Board and developed the Tremor Research Registry, a comprehensive digital platform that collects critical health data and insights directly from our Team DSF ET community. These initiatives utilize cutting-edge research methodologies and technologies to promote innovation in ET research. By collaborating with experts at the forefront of clinical research, we aim to facilitate studies that could lead to novel treatments for ET. Our efforts concentrate on improving patient outcomes by ensuring that new therapies are effective and tailored to meet the diverse needs of patients. Through this transformative research, we are committed to making significant advancements in ET medicine. |
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Genetic health plays a crucial role in determining how a person's genes and DNA shape their traits and risk of diseases such as ET. It is essential to comprehend how genetic variations can result in inherited conditions or heighten the risk of complex diseases. Proactive management of genetic health demands effective interventions, such as lifestyle changes, personalized treatments, and genetic testing, to accurately identify risks and direct medical care.
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Tremor Guidelines: Diagnosis of Essential Tremor Committee
The Diann Shaddox Foundation is a part of the Tremor Guideline Committee. ET remains a clinical diagnosis, as there are no validated diagnostic markers. This committee aims to re-evaluate the available tools for diagnosing ET. The goal is to provide a more data- and empirically driven approach to diagnosing ET (based on observation, experiment, or experience) that best distinguishes ET from other tremor disorders. Clearer Disease Diagnosis |
Data Metrics Research
​We are committed to placing Essential Tremor at the forefront of healthcare by actively collecting critical ET patient data and enhancing diagnostic methods.
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We are building comprehensive systems to collect critical data on the population and health outcomes affected by ET Disease through the DSF Tremor Research Registry.
This effort is vital to improving our understanding of the disease's prevalence and its effects on individuals and communities. We are dedicated to gathering diverse insights from healthcare professionals and ET patients, directly engaging with their experiences and challenges. Our goal is clear: to better support those in need and to fundamentally improve their healthcare experience. Learn More > Join and help create the largest TRR worldwide. Be a part of this amazing data research and become a DSF partner. |
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The Essential Tremor Digital Biomarker Initiative utilizes artificial intelligence and advanced analytics to transform real-world sensor data into objective measures of disease activity and progression. By identifying and validating digital biomarkers, the initiative seeks to create a new generation of precision tools that improve diagnosis, monitor treatment effectiveness, support clinical research, and ultimately advance personalized care for people affected by Essential Tremor.
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Significant evidence supports the assertion that Essential Tremor neurodegenerative disorder, with its classification evolving. Research has shown clear pathological changes in the brain, such as Purkinje cell loss and cerebellar abnormalities, which indicate neurodegeneration. ET is also linked to non-motor symptoms like mild cognitive impairments and accelerated cognitive decline, similar to other neurodegenerative conditions.
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Telemedicine involves using electronic information and communication technologies to provide and support healthcare when distance separates participants with Essential Tremor. It utilizes telecommunications technology to deliver healthcare services remotely, overcoming geographical barriers and offering greater flexibility in accessing medical care. |
HELP US LEAD THE WAYPartnershipIf you are a medical professional looking to contribute, a student studying movement disorders, or a patient interested in sharing data, please contact DSF.
DSF partnerships are built to create shared value: improving patient lives while offering sponsors credible, patient-driven engagement opportunities across research enablement and patient care. Learn More > |
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