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The Diann Shaddox Foundation, Who We Are

Grassroots advocacy is the core of our mission and the driving force behind our foundation's initiative. By uniting, we can effectively influence legislation, shape policy, and drive medical research to enhance the quality of life for all affected by ET.
The Diann Shaddox Foundation for Essential Tremor (DSF), a 501 (c)(3) non-profit organization, was founded in 2014 by author Diann Shaddox, who has lived with the challenges of Essential Tremor (ET) her entire life.

Inspired by the heartfelt stories shared by others who struggle with ET, Diann felt a deep sense of urgency to make a difference. She created this foundation to raise awareness not only to the world but also to the ET Community, recognizing that more research is needed to find new treatments and cures. 

DSF actively advocates for medical research and has developed a range of highly successful programs, such as a Scientific Advisory Board, ET Talks Webinar, and online support groups. We take pride in our accomplishments and understand there is a lot of work ahead, but we won’t stop until there is a cure for ET.

​The Diann Shaddox Foundation is committed to relentlessly pursuing research to solve the mysteries of Essential Tremor.

DSF 2026 Strategic Plan:
​Under the decisive leadership of the Board of Trustees and the dedicated Scientific Advisory Board, the Foundation is set to uncover groundbreaking treatments and propel a new era of advancement in ET medical research.

​Our mission is clear: to provide hope and unwavering support to those whose lives are profoundly impacted by ET. We are committed to making a significant difference for countless individuals worldwide.  ​
The Diann Shaddox Foundation is committed to advancing new therapies and reaching its goal of finding a cure for Essential Tremor disease. ​​
Key activities and goals
  • Research: 
    The foundation supports scientific research to understand the cause of ET and find new treatments to slow, stop, or reverse the condition. 
  • Patient Care: 
    The foundation aims to provide critical information and support for patients, including veterans, and help them live productive and healthy lives. 
  • Advocacy: 
    DSF advocates for policies that promote scientific advancement and improve earlier access to patient treatment. 
  • Community building: 
    The Foundation works to unite the ET community worldwide. 
  •  Business Partnerships: 
    The Foundation works with companies that align with our mission, and their support is crucial. Partners >>

Founder and leadership
  • Diann Shaddox: 
    An award-winning author and Native American member of the Wyandotte Nation who was diagnosed with ET in her twenties and founded the organization in 2014. 
  • Board of Trustees: 
    The foundation is governed by a Board of Trustees that oversees and helps secure resources. 
  • Scientific Advisory Board:
         Guided by our SAB, the Foundation conducts research focused on scientific and                 technological progress. The SAB ensures that our organization's work, whether in               research, policy development, or product creation, remains scientifically rigorous and         current.​
Mission
To empower patients and research the root cause of Essential Tremor to find a cure.
  • Our Goal:
We are resolute in our mission to discover new treatments, medications, and devices, and to identify healthy options and a cure for ET. We will enhance the worldwide medical community's understanding of ET, fostering advancements that genuinely make a difference.
  • Vision: 
Bring awareness and a cure for Essential Tremor.
​
  • VALUES:
We maintain the highest ethical standards for our programs and services. We are known for our perseverance, optimism, and diligence in fulfilling our mission. DSF has helped and will continue to help millions suffering from ET.
 
  • Equality:
We aim to promote fairness and justice for people with ET disabilities, regardless of their ethnic, cultural, or religious backgrounds, so everyone with ET can live full and healthy lives.

  • Respect:
We honor the dignity and uniqueness of each person, showing sensitivity and empathy toward others' needs.
​ The Diann Shaddox Foundation is committed to taking intentional and meaningful action as a fully inclusive, actively diverse, and strongly anti-racist organization. We prioritize respect and value for the communities we serve and remain steadfast in our pursuit of equity and social justice in all aspects of our work. Our dedication is unwavering, and we actively promote change, ensuring that our mission leaves no room for discrimination or inequality.
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Diann Shaddox Foundation for Essential Tremor