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The Diann Shaddox Foundation, Who We Are

The Diann Shaddox Foundation (DSF) is a non-profit organization dedicated to finding new treatments and a cure for Essential Tremor (ET). 

Founded by author Diann Shaddox, who was diagnosed with ET, the foundation works to raise awareness, educate the public and medical community about the disease, and support research and patient care. 

The Diann Shaddox Foundation is committed to relentlessly pursuing research to solve the mysteries of Essential Tremor.​

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The Diann Shaddox Foundation is committed to advancing new therapies and reaching its goal of finding a cure for Essential Tremor disease. ​​

Key activities and goals

• Research: 
  The foundation supports scientific research to understand the causes of ET and find new treatments to slow, stop, or reverse the condition. 
• Patient Care: 
  The foundation aims to provide critical information and support for patients, including veterans, and help them live productive and healthy lives. 
• Advocacy: 
  DSF advocates for policies that promote scientific advancements and improve earlier patient treatment access. 
• Community building: 
  The Foundation works to unite the ET community worldwide. 
•  Business Partnerships: 
  The Foundation works with companies that align with our mission, and their support is crucial. Partners >>

Founder and leadership

• Diann Shaddox: 
  An award-winning author and Native American member of the Wyandotte Nation who was diagnosed with ET in her twenties and founded the organization in 2014. 
• Board of Trustees: 
  The foundation is governed by a Board of Trustees that oversees and helps secure resources. 

Mission

To promote awareness of Essential Tremor disease, empower patients, and research its root causes to find a cure..

• Our Goal:

We are resolute in our mission to discover new treatments, medications, and devices, and to identify healthy options and a cure for ET. We will enhance the global medical community's understanding of ET, fostering advancements that genuinely make a difference.

• Vision: 

Bring awareness and a cure for Essential Tremor.
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• VALUES:

We uphold the highest ethical standards for our programs, products, and services. We are recognized for our perseverance, optimism, and diligence in fulfilling our mission. DSF has helped and will continue to help millions suffering from ET.
 

• Equality:

We aim to promote fairness and justice for people with ET disabilities, regardless of their ethnic, cultural, or religious backgrounds, so everyone with ET can live full and healthy lives.

• Respect:

We honor the dignity and uniqueness of each person, showing sensitivity and empathy toward others' needs.
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• Diversity, Equity, and Anti-racism

The Diann Shaddox Foundation is committed to taking intentional and meaningful action as a fully inclusive, actively diverse, and strongly anti-racist organization. We prioritize respect and value for the communities we serve and remain steadfast in our pursuit of equity and social justice in all aspects of our work. Our dedication is unwavering, and we actively promote change, ensuring that our mission leaves no room for discrimination or inequality.
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