If you consistently have difficulty remembering things, then this article will show you a simple process for strengthening your memory and concentration. It is so important to be able to remember things. Things we read, work on or learn, all can be beneficial to remember and sometimes even memorise.
How To Improve Focus?
Has your spouse ever told you that you need to improve your memory? Have you ever entered a room and forgot what you went in for? Or draw a blank mid-sentence when you’re chatting? If you think you’re memory’s not what it used to be, take heart from the fact that our brains have to process around 70,000 thoughts a day. It’s a common myth that our intelligence is genetically predetermined, leaving little scope to improve your memory.
In fact, scientists say the brain is a growing, changing organ and its capabilities are dependent on how you treat it. By adopting some natural techniques, you can dramatically improve your brain’s functioning. You will be able to set your memory goals, make a plan to achieve them, and store away more and more memories through daily practice. You will also be able to confidently approach any memory task. With this, knowing that you have a method for creating and recalling any memories you choose to retain.
Mind and Memory Power
Some people are lucky to be born with particular mental skills but for the average person becoming a genius will take a bit of work. There are things we can do that will activate higher learning in our mind and memory. If you possess an open mind and ready to do the necessary work to get there, then it’s possible to have a genius mind and memory and draw a profit from it as well.
[If you possess an open mind and ready to do the necessary work to get there, then it’s possible to have a genius mind and memory and draw a profit from it as well.]
Genius mind and memory supremacy – we all wish we were a genius and would go to great lengths to acquire a staggering mind and memory of a genius. Unfortunately, we usually want a brilliant mind and memory immediately and cannot seem to wait and put in the necessary work. Here are some of the crazy concepts I identified online: a person seriously suggesting a mind transplant, a medical professional also recommending brain surgery, eat the brains of a genius and taking tablets or medication that may improve mind and memory power. None of these has been proven at all and has no value when it comes to developing the mind.
Step 1 – Establish Your Goals
Goal setting is just as important in learning how to improve memory and concentration as it is in other areas of life. In other words, you need to know where you are going before you set out on your journey. Think about what your memory improvement goals are, and most importantly, write them down. This helps to lock them into place. Make them specific and measurable. For example “I want to be able to remember my 2-page presentation by next Saturday”, or “I want to memorise birthdays of people in closest to me by next Monday.”
Step 2 – Break Each Goal Down Into a Simple Plan
Once you have set a goal to improve memory and concentration, break it up into some tasks. Spread them over the time you have available. Using the previous example of the relatives birthdays, if you have 20 to remember and four days to do it in, set yourself the task of learning 5 per day. This is achievable and realistic, especially when starting out. With more practice you can increase the amount you learn in each day. The process of learning how to improve memory and concentration will become more relaxed and more comfortable.
Step 3 – Use Association and Emotion
In the example given above, try and associate each birthday with sharp images and use a range of techniques to help you remember each day’s facts. For example, repeat them out loud, write them down, and draw pictures. Anything that allows you to anchor your new memories.
Picture the person whose birthday you are trying to remember, perhaps on some happy occasion, and then visualise their birth date floating above them in large, brightly coloured numbers. Focus on the image. This will enhance your powers of concentration. Use something shocking if you like. These photos are for you alone. Bizarre and unusual images are highly useful tools in learning how to improve memory and concentration.
Step 4 – Rehearse What You Have Learnt
Rehearse what you have learned several times during the day, and again at the end of the day. As the days go by, rehearse your accumulated memories to strengthen your powers of recall. This is a handy article about Success Principles based on our survey with very interesting results.
Step 5 – Good Food Will Improve Your Memory
It is widely recognised that the modern diet often contains insufficient vitamins, minerals and other components needed to sustain a healthy body and mind. Understandably, many people turn to memory supplements as a way to improve the memory and concentration.
But did you know that before you start using memory supplements, there is one thing that you must do to provide the best foundation for a healthy brain? What’s more, if you don’t do this ‘one thing,’ the chances are that you will be wasting the money you spend on memory supplements.
It is straightforward. You must eat a Basic Healthy Diet. A healthy diet is one that is low in saturated fats and sugar, and high in unprocessed foods. This including fruit and vegetables. One component of food which is thought to have a significant beneficial effect on memory is folate. Folate is present in strawberries, whole grains, and dark leafy greens, as well as many other foods.
Any memory supplements you use are best taken in conjunction with a primarily healthy diet. They will be the ‘icing on the cake,’ if you like. But if you eat a poor diet, don’t expect any supplement to be a miracle cure for your memory or any other health issue. Get the ‘foundation’ in place first and then consider what part memory supplements can play in your health program. Also, please do some research on studies before taking any supplements.
Step 6 – Use ‘Brain Entrainment’ to Improve Your Memory
Good Memory, the centre of attention, mind Power and Concentration. These are the most common and mutually supporting features of a highly efficient brain.
If you are looking for ways to improve your memory, it will pay enormous dividends if you use an approach that tackles all four of these elements at the same time.
A ground-breaking approach which achieves just that is the process of ‘brain entrainment.’
Brain entrainment uses audio tracks to guide your brainwaves into operating at the frequencies which enable you to tap into higher levels of energy, creativity and problem-solving. These are the frequencies that arise during meditation. The significant advantage of this relatively new technology is that it allows you to access these rates quickly and easily. You will experience the brain states that high achievers and geniuses have used to make their mark in the world. And in doing so, your ‘brain power’ and memory will naturally improve in many different ways.
How To Improve Your Memory Naturally
Here are some easy ways to sharpen your memory, improve your concentration and think more clearly.
Brain Exercises to Improve Memory
Using mental exercises on a regular basis will strengthen your concentration and improve your memory while at the very same time making for some pretty cool fun.
Brain exercises that improve memory can be practised during the day while you’re working. Many have made the comparison of the brain to a muscle that can be exercised for increased mental strength when using the right kind of activities. If you are looking for concentration help then applying the mind is a must.
Some mind and memory exercises can be as simple as an intelligent conversation or reading something new. Reading an article in a newspaper and then summarising it to a friend of yours or a family member, can be an excellent exercise. It’s good to do these types of mental activities and as much as possible since it will give you excellent concentration help, plus it is straightforward to come up with games that improve memory.
But be careful not to just breeze over the words and miss half of the meaning. You’ll amaze yourself with what you’re able to remember. Look online for more brain exercises that improve memory. They are easy to find.
Eat Smart And Improve Your Memory
A sharp memory mainly depends on your health. To maintain top brain function, you must eat healthily. Ian Marber, clinical nutritionist and author of The Food Doctor, said: “Most people are familiar with feeling dizzy and being unable to concentrate if they haven’t eaten, but they don’t realise what an effect nutrition has on brain function. Look how many people follow low-fat diets for weight loss, ignoring the possible repercussions for the brain.”
Omega-3 essential fatty acids (EFAs), found in oily fish such as herring, mackerel, and sardines, are involved in the production of prostaglandins, hormone-like substances that regulate brain and heart functioning. When you’re stressed, your body uses up more nutrients, which can affect the brain.
Most people are familiar with feeling dizzy and being unable to concentrate if they haven’t eaten, but they don’t realise what an effect nutrition has on brain function.
Ian Marber said: “The hormone adrenaline, produced in response to stress, uses extra glucose, which could lower blood levels, impeding mental performance. The brain is the single largest user of glucose, or energy taking around 70 percent of the total produced from food intake.”
Getting an adequate amount of vegetables is equally important. So go for plenty of fresh vegetables, fruit, and complex carbohydrates, like potatoes. This ensures a consistent supply of glucose and antioxidants to counteract the formation of harmful free radicals and to help protect your brain and body from premature ageing. Another vitamin-like substance, coenzyme Q10, is thought to increase memory and concentration by upping oxygen levels in the brain.
Practice Feng Shui
Feng shui is the ancient Chinese art of balancing energies to create harmony, increase efficiency and encourage prosperity. Whether you believe it or not, it does give you a sense of peace, and that alone is worth it. By changing your working environment, you can enhance your performance and improve your memory. Gina Lazenby, an author of The Healthy Home, advises the following: avoid clutter – it creates stagnation. A clear desk helps you find things more efficiently and focus on the task at hand. Place inspirational images within view, such as a picture of a beautiful landscape, to help stimulate creative thinking. Make sure your chair is supportive and comfortable, allowing energy to flow.
Avoid Fluorescent Lighting
Use a desk lamp and avoid fluorescent lighting, which can create glare, an energy-zapping source of distraction. The better the light, the stronger the creative energy around you. Use colours – yellow is said to stimulate the mind, turquoise helps clarity, while beige and light blue encourage tidiness. Don’t sit with your back to the door. Position your chair with your back to a wall, so you can see anyone walking through the door. Then you won’t be taken by surprise and will appear accessible and approachable.
Get Enough Sleep
Sleep is the time when our body is repairing itself. Make sure you are getting ample sleep since this offers your body the time to heal itself for the next day. Getting a ”power nap” in the day is a behaviour well really worth mastering. You’ll wake from the power nap refreshed and raring to go again.
Games for Improving Memory and Concentration
When you play a memory game at every opportunity, you will find great success, and it will improve memory. You may take a look at nearly everything as being a possibility to practice these memory games. Look at word association or putting a visual reminder with words with items to remember. Many of the games nowadays possess games that are targeted at increasing your brain power. These are labelled Mind Training, so if you have a game console, they are a great way to improve your mind and memory power. There are also computer-based equivalents if you don’t have a gaming console. A couple of mini “brain exercises” a day should assist your memory improvement goal. Quizzes are great test your ingenuity. It can help assess the status of your memory and intelligence. Sudoku or a crossword puzzle is also a great way to stretch your mind!
Mind puzzles provide you with the tools to improve your skills in specific areas.
Problem-solving is the number one skill that many people do not use to its fullest potential. When you have honed your skills at a particular memory game, many mental problems you had in the past will be simple to work out with your new found mind and memory.
The bottom line is that the more you play, the better you become. When you attempt quizzes or mind puzzles, you are increasing your ability to think fast. When you complete a mind puzzle a day, you will notice you have gained a sense of security, and you will also see the difference in your problem-solving skills in a relatively short amount of time.
Supplements for Your Mind and Memory
Usual dietary supplements like Ginko Biloba have been shown to have beneficial results in the brain improvement and blood flow. It is easy to get them online from sites like Amazon or your native wellness super food store. With the natural mind workouts above, you’re stimulating each side of your mind. Regardless of whether you’re rich or poor, a university scholar or a dropout, as long as you are in management of both sides of your brain, the possibilities are endless.
As Albert Einstein often would say “genius is 1% inspiration and 99% perspiration“. The road to attaining genius mind and memory power is genuinely available to any individual prepared to work to reach one’s goals. Once you use the remaining parts of your brain, you are using your logical, analytical thoughts to focus your actions. The other part is utilised in exploring creative suggestions, inspiration, hunches and the like. When you can use both naturally, logic and creativity, all you need to do are consider the action to take to get to your objective. That’s the 99% Einstein was talking about in attaining genius brain power. You can find numerous brain supplements on the market. But make sure to consult a physician before using any brain supplement.
Surround Yourself with Positive People
Surround yourself with like-minded people. Having people around with a mindset similar to yours will give you the support and help you need to grow the mind and memory to new heights.
So there you have it, nine natural approaches for improving memory. That also provide a healthy foundation for any other memory improvement methods you may want to use!
In this article, you’ve learned various steps and techniques to achieve any memory task you put your mind to. You now have a proven step by step system for powering up your memory and concentration and enhancing many areas of your life.
[Authors Bio: Sohail is a content marketer and a blogger. Currently, he is associated with Smiletutor.sg, a private tuition agency in Singapore. His hobbies include writing, reading books, travelling and gardening.]
Thank you Matthew Snider & Rebecca Temsen Self Development Secrets Blog
When You Travel with Essential Tremor
See your doctor before traveling.
There are a number of very basic things you need to do to help your ET, and those things don’t change if you’re traveling. Seeing your doctor 3-6 weeks before traveling. This will give you enough time to adjust medications before traveling.
Get a doctor’s letter and prescription.
Get a prescription and letter (on your doctor’s letterhead) from your doctor to carry with you. The letter should outline that you have Essential Tremor and may need assistance. You also may need to carry certain medications and supplies with you. The prescription is important because you never know when you may become separated from your medications. Consider using a national pharmacy that is able to transfer your local prescription to wherever you are traveling.
If you’re flying, it’s best to have all of your medication and supplies as they came from the pharmacy (with their labels on), as recommended by the Federal Aviation Administration (FAA). In addition to packing your medications, you’ll want keep them with you at your seat. Take along a certificate from the DBS manufacturer if you had the surgery and applying for TSA pre-screening so you don't have to take off your jacket and shoes.
Consider emergency identification.
Many people with ET carry an ID bracelet, an “in case of emergency” contact (ICE) for their smartphone, or a portable electronic record. An ID bracelet needs to identify that you have Essential Tremor so that someone helping you in an emergency can understand what’s happening and why you are tremoring, even if you’re unable to communicate with the responder. The ICE contact should be someone who knows something about your health situation. Finally, consider a portable health record that gives a provider important aspects of your care history.
Tell the airport, train station, etc. that you have Essential Tremor or are traveling with someone with Essential Tremor.
Even if you don't normally use a cane, walker, or wheelchair, consider bringing or using one if it's convenient. Tell the airline that you need early boarding and help. Take stretch breaks and exercise breaks when you can.
Pack thoughtfully. Extra planning can help make the trip run smoothly.
When packing for travel pack your supplies in a carry-on, so they’re always available. Plan for time zone changes, since this can make your tremors worse. Keep your medicine in a separate bag so it’s easy to pull out if necessary. Have your information, important documents in pockets or small bag that is easily accessible. Don’t over due on your trip/vacation. That will make your tremors worse. Get plenty of rest, drink water, and don’t skip meals.
Last, enjoy your travels and don’t worry what others think.
Essential tremor: Aiken resident lives with, raises awareness of disease
Stephanie Turner Email stephaniedturnerAS
Oct 11 2015 3:47 pm
Staff Photo by Stephanie Turner
Diann Shaddox was diagnosed with essential tremor in her early 20s. Today, she is the founder of the Diann Shaddox Foundation, which raises money and awareness of essential tremor, and is an author, with her first book “A Faded Cottage” also featuring the main character with the disease.
You’re out enjoying a meal with your friends, when you hear a clattering behind you.
Curious, you look over your shoulder to see another patron trying to grasp his fork with a trembling hand.
“Essential tremor (ET) is a neurological condition that causes a rhythmic trembling of the hands, head, voice, legs or trunk."
It is said to affect at least seven million Americans, according to a 2014 “Tremor and Other Hyperkinetic Movements” journal article.
“Everyone has some ... tremor. But these movements usually can’t be seen or felt. It’s Hopkins Medicine.
Diann Shaddox, an Aiken resident in her late 50s, discovered she had ET in her early 20s.
Her hands would start to shake while she was just doing normal tasks, she said in her biography.
“In the beginning, doctors told me to go home, (that) I was nervous,” she said.
Shaddox knew that wasn’t true, so she bypassed the doctors and went straight to a neurologist, who immediately knew she had ET.
Last year, Shaddox began the Diann Shaddox Foundation with Randy Miles as the executive director; Quaid Witherspoon, the protagonist of her 2013, debut book, “A Faded Cottage: A South Carolina Love Story,” also has ET.
“Essential tremor (ET) is the most common movement disorder. It is a progressive, often inherited disorder that usually begins in later adulthood,” according to John Hopkins. “Essential tremor is thought to be caused by electrical fluctuations in the brain that send abnormal signals out to the muscles.”
The gene that causes ET has not been identified, and how it’s inherited, if the person does inherit it, differs among patients, according the National Library of Medicine’s Genetics Home Reference.
In some causes, “they almost know it’s coming, because generation after generation have a pretty pronounced tremor,” said Dr. Michelle Lyon, Carolina Musculoskeletal Institute’s neurologist.
Staff Photo by Stephanie Turner Dr. Michelle Lyon is the neurologist at Carolina Musculoskeletal Institute
Since Shaddox’s father passed away before she was born and her mother died when Shaddox was a toddler, she isn’t completely sure how she got her ET, though she suspects it’s from a great aunt whose hands would shake.
“In most affected families, essential tremor appears to be inherited in an autosomal dominant pattern, which means one copy of an altered gene in each cell is sufficient to cause the disorder, although no genes that cause essential tremor have been identified,” according to the National Library. “Essential tremor may also appear in people with no history of the disorder in their family.”
There is no genetic test to detect whether or not you will get ET, Lyon said.
“Your health care provider will ask you questions about your health history and family history. He or she will also look at your trembling symptoms. Your provider will probably need to rule out other conditions that could cause the shaking or trembling,” according to John Hopkins.
ET is often confused with Parkinson’s disease, which affects less people and is more detailed in its symptoms than ET, according to Lyon.
Parkinson’s, for example, “generally involves slow movements (bradykinesia), rigidity (stiffness) and problems with walking or balance,” whereas those symptoms are abnormal in people with ET, according to the International Essential Tremor Foundation.
Living with ET
“This (condition) affects all nationalities, all sexes, all ages – all everybody,” Shaddox said.
In addition to running the Diann Shaddox Foundation and publishing “A Faded Cottage,” Shaddox has written time-traveling romance “Whispering Fog” and the historical “Miranda: Her Life’s Story,” with proceeds from her books benefiting her foundation.
The condition first affected her right hand before progressing to her left.
Shaddox can no longer write for extended periods; when she does write, the words are often scribbled.
“If you are right handed, don’t use your right hand; (then) write your name when you are tired, and just keep writing your name, until your hand gets tired. That’s kind of like ET,” she said. “Really simple acts can be horrifying.”
Trouble with writing and eating are often when people come in to get examined, according to Lyon.
“They are embarrassed to go out to eat at a restaurant because they are unable to hold the fork and cut the food,” she said. “I think a lot of people ignore it, until they get to that social situation.”
Shaddox often has to use her opposite hand to steady the one cutting food or putting on make-up and can no longer cross-stitch or play the piano.
Though her hands trembling are the more noticeable symptom, Shaddox’s head shakes back and forth, and she can feel her voice starting to tremor.
“I’ll take two (words) and make up a whole new word while I’m talking,” she said, adding that she also mixes up and forgets words.
The tremors tire her hands but do settle when the limbs are resting, and Shaddox can drive.
“My case is mild,” she said.
Stress, hunger, fatigue and anger can aggravate the tremors, according to the National Institute.
“My hands look like a bird’s wings flapping, when I get stressed,” Shaddox said. “It’s so embarrassing when you are sitting there, and people are staring at you when you are trying to write. You want to scream, walk out, because it’s embarrassing.”
ET has no cure but can be treated, according to Lyon.
Medicines prescribed can include tranquilizers, ones that “affect how brain nerves work” or are anti-seizure, according to John Hopkins.
When the condition is so severe and medicine doesn’t help, there are surgical options, Lyon added. Two are deep brain stimulation and thalamotomy, with the main difference is thalamotomy, which, according to the American Academy of Neurology, actor Micheal J. Fox underwent for his Parkinson’s, involves destroying a piece of the brain while deep brain stimulation does not, according to the International Essential Tremor Foundation.
MCT Graphic/”Minneapolis Star Tribune,” 2009 This graphic explains how deep brain stimulation, using a device similar to a heart pacemaker, can improve the quality of life for people suffering from Parkinson’s disease. The procedure is also used in more severe cases of essential tremor.
Shaddox no longer takes medication but does lift weights and tries to stay healthy.
When she does her public appearances, she might have some wine nearby, as the drink temporarily calms her, she said.
Shaddox has 16 more books she wants to publish and would like to see her foundation match the The Michael J. Fox Foundation for Parkinson’s Research’s scale.
Shaddox said the foundation’s An Evening in the 1800s with Kim Peevy that was scheduled for Saturday has been postponed but she will have a book signing in April.
“The foundation’s mission is to bring awareness, to educate,” Miles said.
If you are experiencing abnormal tremors, consult with a physician.
For more information on ET, visit www.diannshaddoxfoundation.org, www.aan.com, andwww.essential tremor.org.
Stephanie Turner graduated from Valdosta State University in 2012. She then signed on with the Aiken Standard, where she is now the arts and entertainment reporter.
Diann Shaddox's Story
Diann was born on December 18th in a small southern town of Nashville, Arkansas, the youngest and only daughter of William and Mary Ann Shaddox. But, fate stepped in and William, a crop-duster, at the age of 25, died in a plane crash on November 20th, a month before she was born, therefore, Diann was never able to meet her father. Mary Ann, who grew up in Miami, Oklahoma, moved back to Miami after William’s death, where Diann lived until her mother died when she was only 3 years old. Diann then moved to Nashville, Arkansas to live with her grandparents. At the age of 10, Diann’s Granddad Holt died of a stroke, leaving her grandmother alone to see to her.
Diann learned from an early age about death and how life should not be squandered. Her Mamow Holt, who had lost her right hand in an accident at a factory in Nashville, Arkansas, taught her that you never give up. Her grandmother never let anything stand in her way. She taught herself to write, cook, and even how to sew and make quilts with her left hand, without any prosthetics. Being handicapped was a word she never used.
Growing up in a small town was wonderful, learning to fish, growing a garden and the most important thing, patience of a grandmother. Stories from the past evolved of family bringing many stories to life. Sitting out late at night on cool summer evenings, swinging on an old swing staring up at the stars helped Diann’s vivid imagination grow.
She has an enthusiasm for travel and living life to its fullest. You have only one life and shouldn’t waste it. The zest for meeting and getting to know people is a very important component in her life. She is a believer of herbs, natural and organic foods, and a big supporter of Bio-identical Hormones and keeping our planet green.
Diann has lived in eight great states, Arkansas, Oklahoma, Kentucky, New Jersey, Virginia, Texas, and Florida. South Carolina is now her home with her husband, Randy, her greatest supporter.
Living with Essential Tremor
I was in my early twenties when life changed for me. My hands began to shake when I’d do tedious work. No one, not even doctors, could figure out what was happening and they, the doctors, believed I was nervous and I just needed to calm down.
One day, when I was standing at the post office window in Louisville, Kentucky changed my world. You see a simple form containing my name and address I wasn't able to fill out. I could hear the whispers and comments from people standing in line behind me The confused look of the post office worker's face told the entire story.
I had been taught not to show my feelings in public, but tears flowed down my face as I raced, clutching my package in my arms, out of the building. That one day I had to find my answer and I went out on my own to figure out what was happening to me. Without my GP or insurance permission, I found a Neurologist and made an appointment. That day in the doctor’s office, I finally made the discovery that I had Essential Tremors.
I was relieved to know what I had, but didn't really understand what Essential Tremor was. I thought I was the only person with this problem and didn't bring it up with my friends and family, unless someone asked.
Not letting anything deter me, I continued life with the determination that I’d learned from my grandmother. I was unrelenting to do tedious work like counted cross-stitch on linen, and playing the piano even with trembling hands. It was as if my mind would relax letting my hands work without thinking. I learned to hide my hands out in public, to grip my drinking glass with both hands, and how to use my body for cover as much as possible.
Things seemed to be working for many years, but on my birthday, December 18th, 2010 my hands were shaking uncontrollably, 2010 had been a year when many people began to question and stared at me wondering why I was nervous or thinking maybe that I was just weird. Being out in public was difficult, the stares were tough, and once more, the simple feat of filling out forms was devastating. Even being in a doctor's office was difficult, as they, nurses, questioned why I was so nervous and shaking so much, giving me stares.
That night of December 18th, I sat in my office and anger grew watching my hands quiver as they hovered over the keyboard, and for once in my life I felt sorry for myself. The question of why, a question without an answer played in my mind. Being a writer the words began to flow and Quaid Witherspoon, a famous artist, was born. A man who had everything or so he thought, but now his hands had deserted him and his life of painting had ceased, becoming a bitter man. The story of Quaid Witherspoon, the novel 'A Faded Cottage', became an incredible love story, one about strength of mind to fight fate and never accept what life throws at you.
I found out that I wasn't alone and millions of people worldwide had Essential Tremor. I began to do book signing and would ask if anyone knew what Essential Tremor was. Again, I was shocked that no one knew what ET was even though it is the largest and most common movement disorder, 10 times larger than Parkinson’s. It seemed that 99% of the time the answer was no. Many police departments even answered the same.
Through this process of bringing A Faded Cottage to life, I have learned so very much. Finding the ET Facebook groups, talking and listening to everyone’s stories at book signings, stories that are so similar to mine, has brought calmness to my life. We have to tell others about ET, so people who live with ET aren't sitting alone wondering why this is happening to them.
Even though the stares will forever be, I won’t give up. Now, I’m even more determined the word will spread about Essential Tremor and I’m going to help make it happen. For each book sold of “A Faded Cottage,” 100% of the sales will go to Diann Shaddox Foundation for Essential Tremor to make a difference.
What is Essential Tremor?
Essential Tremor is the largest and most common movement disorder in the world and is 10 times larger than Parkinson’s. Essential Tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Over 10 million Americans, including children, have Essential Tremor. That’s about 5% of all people in the United States. For comparison sake 7.8% of the population have some type of diabetes. Most people though haven’t heard about Essential Tremor and the Diann Shaddox Foundation for ET is adamant to bring attention to the world.
First and foremost, ET can begin at any age, from ages 1 to 100. ET doesn't discriminate with age, race, sex, or national origin. The Diann Shaddox Foundation for Essential Tremor can make a difference in millions of people’s lives and directly change the future for everyone who will inherit or develop ET but we need your help. We want to show that Essential Tremor isn’t just for the elderly, but children of all ages have ET. Many people with ET have lost their jobs and college students are having their dreams of special careers disappear before they have a chance to begin. We have to bring people out of hiding and educate teachers in school so children and teens aren’t bullied about their tremors. The stories are endless from people with Essential Tremor struggling with depression. We will make a difference and bring awareness to businesses, schools, and first responders.
Diann Shaddox is Founder of Diann Shaddox Foundation for Essential Tremor, author, mother, grandmother. Diann has been an activist for ET and been working to bring awareness to the world through ‘A Faded Cottage’ a SC love story about an artist who develops ET.Diann is adamant to bring a change in movement disorders because she has ET. 100% of the sales of Diann's book, A Faded Cottage go to Diann Shaddox Foundation to help find a cure for Essential Tremor.
Diann is also the author of "Whispering Fog" a time travel & Miranda, a love story.
Diann learned from an early age things may look impossible, maybe risky or pointless, but you have to give it a try or you'll never know if you don't give yourself a chance.
A FADED COTTAGE
When a love letter written by a teenage boy becomes lost after a summer filled with passion, it brings about an incredible love story of two people being reunited, after thirty years.
When Essential Tremors take over a famous artist’s body, a simple feat of holding a paintbrush turns Quaid Witherspoon’s life upside down, becoming a bitter man. This is his journal of how he battles fate, not of his entire life, but of two weeks. Quaid had everything money could buy, except the two things he loved the most, his love of painting great masterpieces, and the only woman he had ever loved. The calming waters off the coast of South Carolina calls Quaid back to Hathaway Cove, to a small, faded cottage, one with a leaning front porch, worn paint so similar to him, flawed. The same beach where he began painting as a young boy, the place he met his one true love, and the place he let her go.
Sandy, Quaid’s love from his past, learns he is wondering about her, just as she is wondering about him. Their love is alive, meeting for the first time in thirty years, letting the years fade away, but fate has another twist. Sandy keeps a secret, letting them have their two weeks.
What if you were able to relive your life and rediscover you teenage love… Would you?
To learn more about Diann go to: www.diannshaddox.com
I have had familiar tremors since 2008 and was on primidone and propractinol but propractinol made me to drowsy to drive so was taken off.My general Manager at a optical chain first noticed my tremor when I was making glasses he noticed head motion in yes motion and hands shaking.this made it harder to make glasses and my performance suffered which resulted in many disciplinary's verbal and written.after about 2 years I finally had enough and filed a disability discrimination lawsuit but did not know the time limits and I was to late.But because of the lawsuit I have been basically been blacklisted in the optical field by this large optical company.So since then I got accepted into the operating engineers. 2 years ago but have noticed that with stress and the cold my tremors have gotten worse even with primidone.my family doctor tripled my dosage of primidone until I can see my neurologist in 2 weeks and she also limited my work abilities to being not able to climb ladders and scaffolding in addition to not running heavy equipment which is a primary job function of a heavy equipment operator.So now don't know what to do .If I should file disability if the neurologist says I cant run heavy equipment any more or at age 47 start all over again trying something different even if my tremors get worse again and I start getting disciplinary's at a new job again?Also I would like to go to a support group but there is none around the Champaign/Urbana ILL area.
What is it like to live with Essential Tremor?
Can you imagine waking in the morning and not be able to hold a cup of coffee in your hands without spilling it, or not able to make your breakfast without making a mess. Then, trying to dress, buttoning your shirt, shaving, and putting on makeup or jewelry is almost impossible for millions.
When you’re out in public having people stare as your hands tremor, head shakes yes or no, and scared to death you might have to sign or fill out a form. Eating is another huge problem, slinging food from forks and spoons trying to make it to your mouth as your hands tremor, and spilling your drink unless it’s in a sippy cup with a lid. Many people with movement disorders voice tremors and communication is difficult. People have lost their job when their boss finds out about their tremors.
Now, how would you like to be a 5 year old in kindergarten and can’t color the page, write your ABC’s like the other kids. How would it feel to be a teenager trying to eat, write, or grasp things in their tremoring hands while others stare, giggle, bully, and tease.
Essential Tremor is the largest movement disorder in the world and is 10 times larger than Parkinson’s. What is Essential Tremor? (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Over 10 million Americans, including children, have Essential Tremor. That’s about 5% of all people in the United States. For comparison sake 7.8% of the population have some type of diabetes. Most people though haven’t heard about Essential Tremor and the Diann Shaddox Foundation for Essential Tremor is adamant to bring attention to the world.
First and foremost, Essential Tremor can begin at any age from ages 1 to 100. ET doesn’t discriminate with age, race, sex, or national origin.
The Diann Shaddox Foundation for Essential Tremor is a Non-Profit public organization 501 c(3) giving hope to millions, including children, living with Essential Tremor. Our mission is to increase awareness about people afflicted with Essential Tremor and to find a cure.
Please join the fight and the Diann Shaddox Foundation for Essential Tremor and make a difference. Donate www.diannshaddoxfoundation.org.
No you won’t die from Essential Tremor, you will die with Essential Tremor.
There are many misconceptions and people believe that Essential Tremor, (ET) is just a slight tremor in the hands of old people, that’s not true. First and foremost, Essential Tremor can begin at any age, from ages 1 to 100. ET doesn't discriminate with age, race, sex, or national origin.
I’m sure you are wondering, like most people, what is Essential Tremor.
Have you ever heard of ET? 99% of the time the answer is no. Many police departments answer the same even though Essential Tremor is the largest and most common movement disorder in the world 10 times larger than Parkinson’s. What is Essential Tremor? (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Over 10 million Americans have Essential Tremor, including children and millions more people worldwide. That’s about 5% of all people in the United States. For comparison sake, 7.8% of the population have some type of diabetes. Most people though haven’t heard about Essential Tremor.
Essential Tremor can be inherited. *
Here are a few things people living with Essential Tremor deal with. Essential Tremor won’t kill you, but…
No you won’t die from Essential Tremor, you will die with it.
The quality of life for someone with a movement disorder can be devastating and depression can set in and you wonder is life worth living. Many people hide in their homes not wanting to face the public with the stares and cruel remarks. Numerous people not only lose the quality of life, but they lose their independence of life.
There are many stages of Essential Tremor, mild to severe tremors, and the progression will vary, but the outcome is the same; some part of their body tremors.
That is why the Diann Shaddox Foundation for Essential Tremor is adamant to find a cause and cure for Essential Tremor. Please join us and help millions around the world living with Essential Tremor. We can make a difference, but we need your help, donate now.
*(The inherited variety of essential tremor is an autosomal dominant disorder. A defective gene from just one parent is needed to pass on the condition.If you have a parent with a genetic mutation for essential tremor, you have a 50 percent chance of developing the disorder yourself. Mayo Clinic)
Please go to www.diannshaddoxfoundation.org to learn more.
The Things of Life
Familial or Essential Tremors: You Are Not Alone
by Nancy Carol Brown Hardin
I don't dare carry a cup of coffee from the kitchen to my computer desk. It's impossible for me to take photographs with any kind of camera. Turning the pages of a book is difficult and sometimes I turn two or three. When I eat, it's almost like playing a game of "catch the fork," or the other fun game of "How much of this food can I wear?" I'm no longer able to hand write anything, and barely able to sign "Love, Mom" or "Love, Granny" to birthday and Christmas cards. I use a label program on my computer for addressing envelopes. As for other relatives or friends, they get cards from me only online.
I'm Sure You're Wondering....
If you're wondering "What on earth is this woman talking about?" here's the answer. I have a condition that is known as Familial Tremors orEssential Tremors. My family knows this, but few of my online writing colleagues do, so this may be a revelation to some.
I've Lived With This For Years
That's right, it's nothing new for me. I've had this condtion for several years, but it's worsened as I've aged. Oddly enough, it seems to affect my right hand more than my left, and since I'm right handed that's not a good thing. In my young years, I was able to partially control it or mask it, but now that's no longer possible. The simple task of bringing a cup of coffee with me to my office is a cautious task at best, and a total mess at worst. Some days I can manage to actually have coffee in my cup when I get to my desk. HA! But the solution of course, is to use acovered carafe, or a thermal cup with a no leak top. I prefer the cup, because the coffee stays hot longer.
There Are Medications For Tremor
A few years back my doctor put me on a medication originally designed to help with convulsions, but which is also used to aid the lessening of tremors. After about a year, the strength of the dosage was increased. This medication is only taken at night when I'm going to bed, because it does tend to put me to sleep. It has an accumulative effect, providing better results over a regular period of taking the drug. However, there are those who prefer not to take a medication for the problem.
Other Diseases and Conditions That Mimic
If I miss my meds for any reason, and I do my best not to, my entire body shakes as though I have what the old folks in my childhood home called "St. Vitus Dance," which is actually Sydenham's Chorea, another movement disorder. As far as I know, there has never been a connection between the two. Parkinson's Disease, is another ailment that causes uncontrollable movement, caused by a degenerative disorder of the central nervous system. Again, there has never been a connection between Parkinson's and Familial or Essential Tremors.
Why Is This Called "Familial" or Essential Tremors?
These tremors are often referred to as Familial or Essential Tremors because they usually run in families. It's thought to be a genetic mutation and is dominant, meaning if only one of the parents has it, the children are more likely to have it. I can remember my mother as she aged, and I watched her hands shaking. I didn't realize it wasn't due to her age, but to this disorder. Now I see the signs of tremor in two of my children, a son and a daughter. They didn't show the symptoms when they were little, but developed them in their young adult years, just as I have. I'm sure as they grow older, they will have the same problems I do. There are young children who have Essential Tremor, and you can find more about it at the links I've provided below.
My story about ET by Vibeke
This is actually quit emotional. Putting words to something I tried to hide and ignore for a lot of years. The first comment I had about shivering was in 8th or 9th grade, approximately 14 years old. A classmate commented, I think she was worried maybe, but somehow it hurt me and confused me. I had never seen a doctor about it, and we never talked about my tremor at home. My mother had the same thing, but at another level, so somehow I never connected the two. I think not having an answer to give, was most uncomfortable.
Once in my early teens, we were visiting my sister and brother in law. As usual I came to spill out a drink, and he got somewhat angry. Maybe not too much, but of cause it felt unfair. My mother had to come to rescue and explain. I don`t remember this episode, she told me when we finally discussed the condition a few years ago. I
think there must have been a lot more...
Day to day life, growing up with tremor, not too badly affected, I think I adapted the best way I could. I was
copying some of my mother’s habits, not thinking too much about it. But, of cause, some things I hated. To write on the blackboard, not having anything to lean my hand on... I just understood that one yesterday, reading the teachers manual at the IETF website. My handwriting has never been pretty, except if I take a lot of time and effort. I write readable, if I try, but like a shopping list hastily put down is a challenge for my husband or anyone else to read. This was always put down as a family weakness from my father’s side, but I`m reconsidering... Tremor is a much more valid explanation. I preferred to part the letters, maybe a coping strategy, I don`t know, but the teachers didn`t approve. Today I do something in between and it works for me, both in speed and readability. I`ve finished my part of exams and time usually is not the issue... Although knowing it might be, and knowing that gives the possibility of extra time, could be a benefit for my son, who has inherited this condition.
(I`m not expecting any more exams, but with the conditioning worsening, you never know.) My problem though threw long exams, has been aces after wards, probably from grasping hard to the pen.
Another school-related topic was that about having somewhere to place your manuscript. Holding a piece of paper and reading at the same time... It just doesn’t work, and you look (maybe feel) like a fool. Today, I find myself in waiting rooms, like the doctor’s office, trying to read a magazine, but my hands shivering while I`m holding it up from my lap, so I can`t read and it just feels so stupid. So I put it away and do nothing. (And my doctor is usually really late, so that’s boring.)
Lately we received a report from school, stating that I seemed nervous. That one was hard to swallow. What do they actually know? Kindergarten said the same about my son earlier... How people perceive you can be very important, and hurtful. I tell people about ET, when it seems natural, but not everyone should need to know.
Today, any fine movement skills may be troublesome. Screwdrivers, sewing, knitting, the smaller, the more parts, the worse to handle... And I love doing handcraft... Why, I have no idea. After working out, my tremor is especially bad, but things like anxiety or stress will also impact a lot.
ET is not a well axepted diagnoses as far as help comes. Parkinson patients get their meds for free, we don`t. No matter how serious the tremor.
Sitting here writing, I keep hitting the wrong buttons. Sometimes because I am writing a foreign language, using odd keys, but mostly shivering over the emotional stress. Well, not the first time writing and correcting... Bad tremor-days, I might even miss with the mouse, but usually that works, since I have support from the table. I`ve got a keyboard with support for the wrist, first because of pain, but maybe that was related to
the need for support? Reading about ET and reading other peoples stories gives me a lot of thoughts about how things relate to each other... Not that many solutions.
Well, it’s been four years since I sat down in my office and wrote “A Faded Cottage” a SC love story about an artist who develops Essential Tremor. I have to say my life has change dramatically because of this one small book. So today I have to say "Happy Birthday Quaid Witherspoon."
“A Faded Cottage” is a journal of only two weeks of Quaid Witherspoon’s life and takes place from December 18 to the first of the New Year. I’ve sat back pondered what my life would be like if I’d not published “A Faded Cottage” March 2013 and continued with my plan of publishing my other books.
I guess I have to believe my journey was for a reason. Life can be a mystery and I wouldn't have taken on the challenge and be sitting here today working on a new foundation, Diann Shaddox Foundation dedicated to find a cure for Essential Tremor, if I’d stayed the route that I’d planned.
I became adamant to make a change when I began talking to people around the country and no one had heard of Essential Tremor, even though I’d had ET for over thirty years and learned 10 million Americans also had ET, including my son Rick who died in May 2014. I kept asking myself; how could that be? Something needed to be done. But I soon learned that one cold December night changed my life, for the better only time will tell that answer.
It was the night of December 18, 2010, my birthday, a very calm and uneventful night. I couldn't
sleep, which isn't unusual for me, so I made my way downstairs to my cubby office. I decided, since I was wide-awake that I’d work on one of my novels.
I sat down in front of the computer and began to type, but it seemed my fingers and hands had another idea as they shook uncontrollably hovering over the keyboard. If you've tried to text as you are riding in a car or train when it’s bumpy, then you might understand how difficult it is to type when you have trouble hitting the correct keys with tremoring fingers. You see, I have had Essential Tremor from my early twenties and I’d learn to deal with my tremors for many years, but this night it became overpowering.
I leaned back in my chair and stared at the computer screen, my anger grew watching my hands tremble over the keyboard, and for once in my life I felt sorry for myself. The question of why me, a question without an answer, played repeatedly in my mind.
I took in a deep breath, closed my eyes and I let my tremoring hands type and the words, “Happy birthday dumb-ass” were written across the screen. I laughed and let the words flow and Quaid Witherspoon, a famous artist, was born.
A man who had everything or so he thought, but now his hands had abandoned him and his life of painting had ceased, becoming a bitter man. I didn't plan the story of Quaid that night, but his character emerged from my mind and the story grew and my hands calmed, while I released the stress of the evening telling Quaid’s story, a journal of only two weeks of his life. The story of Quaid Witherspoon, the novel 'A Faded Cottage', became an incredible love story, one about strength of mind to fight fate and never accept what life throws at you. ‘A Faded Cottage’ is journal of a famous artist not of his life, but of only two weeks, a love story about aging and two people being reunited after thirty years finding love can conquer all.
Through this process of bringing ‘A Faded Cottage’ to life, I have learned so much and talking, listening to everyone’s stories so similar to mine has brought calmness to my life.
Essential tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. About 10 million Americans have Essential Tremor and million more people worldwide. That's about 5% of all people in the United States. For comparison sake, 7.8% of the population have some type of diabetes. Most people though haven’t heard about Essential Tremor and I’m adamant to bring attention to the world.
I have become an activist to bring awareness to Essential Tremor and founded the Diann Shaddox Foundation, Non-Profit 501c(3) organization committed to help people struggling in today’s world with neurological conditions such as Essential Tremor, Dystonia, & Parkinson’s. DSF is dedicated to inspire, educate, enlighten, and increase awareness to the world about people living every day with neurological conditions such as Essential Tremor. 100% of the sales of 'A Faded Cottage' will go to the Diann Shaddox Foundation.
Please go to www.diannshaddoxfoundation.org and donate, every penny counts and will bring us closer to finding a cause and cure. DSF’s funds will be used for awareness and will be distributed for research to find the cause and a cure for Essential Tremor.
Now, 'A Faded Cottage' has become a vehicle to explain about Essential Tremor and how so many, over 10 million Americans and millions more worldwide including children, live each day with tremoring hands, head, voice, and entire body.
Diann Shaddox Foundation and I will make a difference even if it’s only letting a few more people around the world understand what Essential Tremor and movement disorders are.
You aren't alone in the stares
You look at yourself in the mirror, a quivering head and face stares back, you wonder who you are and why has this happened.
You look around a restaurant and believe that all eyes are on you, since you can’t hide your trembling hand as the fork rises to your mouth. Then you lift your glass to drink using both hands and the liquid splashes like ocean waves in a hurricane, wishing you could become invisible.
You look at people staring, as you stand in the checkout line of the grocery store trying to slide your credit card and sign your name, not able to hide your shaky hand.
You look at people around the doctor’s office or emergency room as you try to fill out forms, believing that all eyes are on your trembling hand as they scribble words on paper that no one will be able to read.
You look around a crowded room full of friends, coworkers, and clients and see the buffet table. You know that you can’t hold a plate in one hand and use the other to dip your food. Your plate would be like a kite in a heavy windstorm flapping in your hand.
You want to hide when well-meaning people come up to you and ask ignorant questions; “Why are you so nervous?” and the good one, “Stop shaking.” Well, you want to blurt out, “If I could stop shaking I would,” but you don’t say anything. Then there’s the other group of people that don’t ask, they just stare wondering if you’re on drugs, an alcoholic or just weird.
But, the answer of the stares is really simple, you have to face the stares, tell your story. Remember you aren’t alone; you are one of millions of people around the world that had Essential Tremor. We are a mighty group full of strong people, and with awareness the stares will diminish, maybe not entirely, but people will begin to understand. We will tell our story.
I Shake. So What! Part 2:
An Autobiography of the reality of living with Essential Tremor
By David Jensen
I tried once to see if there was any new medications for shaking. After a long talk with the Doctor, he said; “You only want to have drugs! Get out of here!” The sad part is, you can't tell an Officer to kiss your ass! Fast-forward to life as a civilian again.
I returned to Germany with my wife and child, and got a job. Where others have no problem, I learned to use little tricks
when measuring tools after grinding them. I also got more intelligent when it came to people making stupid remarks with comebacks like: “Sure I shake! Your wife loves it!”
I started my voyage through the various prescription medications, and also met lots of different Doctors! The first Doctor had me taken pills for the shaking. And I finally had a name! Never before had I heard a Doctor say what it is! So the pills were working some and at the same time, I was getting Asthma problems again. I figured it was because I was working lots in the garden! I was to increase the dosage to 250 mg. And that was when the big one hit me again! When the Emergency Doctor came to the house and pumped me full of cortisone, she said I can't take any Beta-Blockers with Asthma. It made click in my brain! When I asked her about Inderal, she said that it was one of the first on the market. So now I know what happened way back then as a teenager. My normal Dr. should have known it! I changed Dr's the very next day! Onward to see a neurologist, who in the course of time, had me try almost every drug available. Some make you so sleepy, you might as well be dead. Some don't do anything. And one made me so high and comical, that I got in trouble and got thrown out of the Dr's office. In the waiting room of my beloved neurologist, the speaker was covered with an artificial bush. Sitting next to me was a man who had a serious psychosis, and I mean real bad! The Dr. calls his name over the speaker, the man starts to flip out, and being stoned, I said; “The voices are coming out of the walls!” He ran out of the office screaming. And I was no longer a patient. He threw me out. Okay!
After a few days, the pills wore off and I returned to apologize for my actions. He refused to see me. I was the bad guy? It was the pills that he gave me!
What followed was a few years of simply shaking. Then, getting tired of it all again, it was back to the neurologist. “This medication is used for people with Parkinson's disease”. So, I tried it. I took one whole pill before we went to a dinner party, and I could hold a tiny coffee cup in between my fingers! Wow! Unlike the ones I had tried before, with these new pills, I had no idea that I was flying on cloud nine. The next day, I only took a half pill in the morning. Sitting in my party garage, I looked up at the pipe and thought; “Would the pipe hold me if I hanged myself?” But I could not even get out of the chair until late afternoon. Just sitting there, in the Land of Oz! When I told my Dr. about it, she stopped writing and looked real hard at me. Immediately realizing the danger in what I told her, I said; “Wait! Stop,Stop, Stop! I'm not a suicide patient! I love living! It's the stupid pills!” In Germany, if a Dr. thinks you are in danger of suicide, they can have you in the mental hospital within the hour. If you want to or not. Resistance means being handcuffed by the Police and they ride with you to the Institution. A very dangerous place to end up! She said that I should continue taking the pills, and that the depression and tired feelings would abate with time. Tried it, but with only ¼ pill, I was still walking on air! The problem what I can't understand is, why don't they prescribe a package with only 5 or 10 pills to see if they are effective? I pay for a package of 100 pills, end up taking maybe 3 to 5 of them, and the rest I have to throw away! So onward to a few other Neurologist. One tested me, and said he doesn't think that I shake at all! I asked him when was the last time he seen an Optometrist! Yeah, to get by in this world with the shakes, you have to sharpen your tongue!
Then, I decided to look into the prospect of having DBS (Deep Brain Stimulation). Went to the University Clinic in Tuebingen, reported at the reception desk, and took a seat in the front lobby waiting room. While I was waiting in the front lobby, sitting on a couch, the Dr. was observing me. Which I did not know till later, they first observe if a patient is simulating or not. So talking to the Dr. , I say that I only have it mostly in my hands, and he says; "and your head!" I said; "no, only my hands!" He then tells me that so long I was sitting, my head was bobbing from side to side and up and down! And I asked him, as I pulled my Mp3 player with earphones out of my pocket; "didn't you see I was Jamming to the tunes?"
He then started to talk about first trying one of the various medications before an operative procedure. I went into my recital of all the known medications and their horrible side effects, or no effects at all. Guess I stepped on the guys ego! “Who is here the Dr.? You or me?” He asked. “Just saving us some time!” I answered smiling. God in White stood up and told me I was wasting his time. “Pick up your prescription at the front desk on your way out!” I got my paper and went home. I had already found a new Neurologist, who A) knows all about ET, B) is very concerned about my condition and is always up to date on the latest research, C) always looks in his cabinet if he has a test package, so I don't end up paying for pills to throw away, and D) most important, simply takes the time to listen, not just hearing like most other Neurologist. He talks to me like a friend would. Honest!
So, I took my prescription to the pharmacy. They didn't have any of the 'cheap, inexpensive, no-name Primidone. I was not in a good state of mind and said; “If I don't take them and stop immediately, my liver will malfunction. Either I get the pills, or I have to go to the hospital to prevent a liver collapse!” So they gave me another brand of pills with the active ingredient Primidone. Mylepsinum. And I started to take the killer pills again. But now, I had no adverse side effects! Each day I increased the dosage till I found the right amount for me, and my body. At the next appointment with my Neurologist, I held out my hands and said; “Taa-Daa!” Shocked, he asked how that can be, or did I already have the DBS surgery. “”Nope! Mylepsinum!” I answered with a big grin. Smiling, he says; “The mind is a very strange place that we know little about!” Now I receive the correct pills all the time, because they write 'Aut Idem' on the prescription.
Since then, I have been able to type again, on my good days and with the medication. Of course, there are days when it seems not to work. But that is simply how it is with Essential Tremor! One good day and another not so good. I have been able to write a book, thanks to the “Porsche Primidone”! And on really good days, I can even manage to write with a pencil, so that others can read it. Now, I am too old to start learning the guitar again, but I can hold my glass in a restaurant like everybody else.
And for the little things, day to day, that I can do like a “Normal” person, I am very thankful!
I Shake. So What!
An Autobiography of the reality of living with Essential Tremor
By David Jensen
“You don't have to be afraid!” Looking down from where I was setting up an outside toilet on our yearly camping trip with the less fortunate children from the surrounding towns, the boy, who was approximately Seven said; “I'll protect you from the Bears”. It is times like these that one can only laugh at the circumstances. “No, I'm shaking because I have a sickness, that's all”. “Okay. Cool!” he says, and runs away. Children accept the simple things as they are. For the rest of the week, he would bring me coffee and help me with other things. Carrying the coffee was great and his willingness to help someone sick was honorable. He has since that time grown to adulthood. Has a father in law with MS, and to this day, still goes camping with the less fortunate every May. If only all the adults were so relaxed and open-minded about it!
My Essential Tremor started at the same time my voice changed. Between being laughed at by my middle brother, (who didn't inherit it), for shaking my milk all over the table and my voice cracking high and low, it was the start of my new (how wonderful!!) life as a shaker. My father had it also and my brother was smarter than to make a comment about it when he was around! Before I started out shaking, my older brother started to shake. Not as bad as the rest of us in the family, but he said something in the garage to my father about infecting him with the shakes, or something in that perspective. In those days, nobody knew that it really was inherited from one generation to the next, and sometimes passing one generation of family over completely. My father, in his ignorance of the fact, took it as an insult. And my brother paid a high price, for that which is nowadays, Status Quo knowledge.Guitar playing. I was good, really good. And I went with my father to all his friends when they got together to play, serious practice, or simply banging out the tunes for fun. I knew from an early age that I would master the Banjo and the Mandolin. The guitar was simple to play. Then came two things at one time. ET and Asthma. I had an inhaler for the bad summer months, and the Doctor started me on heavy doses of Inderal for the shaking. The inhaler made me shake more and the Inderal made me sleepy. I was now unable to concentrate on what and how to play on the guitar. My father, in his frustration that I was “losing it”, raised the guitar practice to at least one hour per day. After a few minutes of shaking the chords, I got more stressed and him too. It was the same thing everyday. “I shake too and I can play!” was his daily preaching. This went on for some time and one day I threw the guitar on the floor and said I can't play when I shake. Again his Sermon that he shakes and plays too! I remember I said something to the fact that he only strums the chords while Chet can pick the strings with ease. Got my ass beat for that comment! But he never said one word again about me playing the guitar, and he would never know how sad I was myself that I would never play a Banjo.
Looking back, the doctor who prescribed me the Inderal was light years ahead of his time! Beta Blockers are good against ET. But at the time, they had not enough research to discover that all Beta Blockers are harmful for Asthmatic patients. I found out the hard way, and maybe helped in the research? Who knows? I had cut the grass at the house and then I simply could not breath in. I ran and used my inhaler but to no avail. In the emergency room at the hospital, they were pumping everything into my arm to free up my lungs. I was just so tired of fighting for air, that I closed my eyes and exhaled. Next thing that happened was the nurse slapped me on the face and yelled that “nobody, but nobody dies on her shift” I had opened my eyes and took a big gulp of air, and she scared the hell out of me at the moment! In the wheelchair on my way out, the big black nurse gave me a kiss on the cheek and said; “A slap never hurt nobody honey!” The second time at the hospital was because my inhaler was empty and I was on a double dose of Inderal. But I was now hardly shaking! I remember riding in the ambulance, because that was so cool! And then I was waking up in the emergency room. The Doctor smiled and said; “We thought we had lost you for a minute!” In actuality, it was two minutes. According to my mother, I had not responded to an inhaler while in the ambulance. I had already stopped breathing in the ambulance and when we got to the hospital, apparently my heart had stopped. It explained why my chest hurt like elephants had run me over! After getting thoroughly checked out, I was to stop taking the Inderal, and see how it goes. From then on, I had very few problems with my Asthma. Only now and then when the farmers were doing Hay and such.
School was not a problem. Not to be conceited, but I have a pretty good brain. My mother forced me to attend Typing and Home Economics (Sewing and Cooking) classes. I had at that time, not reached puberty and was just as normal as a Non- Mover and Shaker. I'm thankful that she made me learn the 10 finger system, and although now my favorite key on my Laptop is the Backspace Key, I still have it in me, as one can see! But time rolls forwards and I hit puberty. But in those times, the teachers really didn't care about my handwriting, which went from good to shit, overnight. I took a Foreign Language class and choose German, just to aggravate my racist father. Mrs. Westrate was thrilled that I could learn so fast, and at the end of the school year, said that I should continue. “Why?” I asked. “I'm never going to need it! Not like I'm going to go to Germany or something!” That was a moment I will never forget! As will be revealed later on! In Chemistry I was doing just as good as the other classes, except when it came to the practical part. Shaking Acid all over the table, adding one chemical into the other too fast, the list of mistakes goes on and on. Theory = A. Practice = D. I loved being in Architect class. And I was really good at it! But at the end of the year, the teacher said that, although I was talented, I didn't need to go further into it. One of the test is to draw a straight line, six inches long, freehand! He said; “Your line would look like a heart frequency.” Sort of like: ' You could, but you can't'! In the 70's, they had no CAD/CAE with computers to draw the straight lines.
I got odd jobs at several restaurants and wanted to be a Waiter, due to the generous tips! But the first time I had the tray on my hand with empty glasses, so the manager could see if I could balance it without dropping everything, it was “Shake, Rattle and Roll!”. I got relegated to washing Pots, Pans and dish washing. A wonderful future awaited me in the world of employment! But being in the back kitchen with the cooks has its advantages and I brought unsold steaks and other goodies home every night! My father said that it was a super job for me at the Knightsbridge Inn. Of course! I was feeding the family with all the stuff I brought home. Then my friend said they needed help at the Greenhouses by J. Berends and Sons. Now, imagine trying to replant seedlings into pots while shaking, and that under time stress. It was required that you replant a certain amount in an hour. Well, over half of mine were broke off and I anyways couldn't keep pace with the rest. Damn shaking! There was no more J. Berends, he had passed away a long time ago and it was run by the three sons. Two of them wanted to fire me, but the third argued that “Dad shook like hell and he started the business! Give the boy a chance!”
So, I figured it would be as bad as washing dishes. But much to my surprise after a while I was like a foreman, driving the Forklift, making sure the orders got out on time and such. Much to the displeasure of my schoolmates which had worked lots longer there. I even got my own key to the place because I was the only kid who would show up everyday and open the greenhouses, make potting soil in the old cement mixer on Saturday evenings, and utilize the Nicotine smoke bombs in the greenhouses on Sundays. If I had not made a dumb decision with my life, by joining the Army, I found out that the three sons wanted to make me a partner. And all three had nobody for inheritance, so I would more than likely have inherited it all. Sometimes, we take a wrong turn in the road of life!
In May of 1977, I joined the Army. I spent more than twice as much time practicing how to dismantle and reassemble the rifle, and still was not fast enough for the Drill Sergeant. I think that he fell in love with me and my shaking. Shaving was mandatory everyday, and the smaller of the two Drill Sergeants just loved to pat me on the cheek every morning and make stupid comments like; “We should give you a straight razor! You could slit your throat open the first time around!” About half way through the six weeks of Basic Training, another soldier, an Indian, told me I should have used the dummy blade which comes attached to the razor! “Why couldn't you tell me that the first day here?” I asked. Running the dummy blade over his face and scraping the foam off, he answered; “You pale faces are much smarter than us!”
Well, one can only take so much harassment and towards the end of the six weeks, I got in the circle with the small Drill Sergeant. Every Sunday afternoon, we would go to a sand pit circle and get our aggressions out with whom ever we had a problem with. No matter how many times he knocked me down, I got back up and never said stop. After a while, he told me to stay down or say stop because; “I'm going to end up killing you and I have all the damn red tape on my hands boy!” Barely on my feet and bloody as hell, I said; “At least I won't shake no more and you can't bitch anymore either!” He stared for a second, laughed, and walked away from the circle. Maybe he learned a lesson that day. I know I sure did! To hell with what the others think of my shaking, and never give up!
Onward to Technical Training school. Oh what fun!! I had always loved to work on cars, so I choose the Mechanics Training. Most of the studying was easy, but then it came to hands on and, “Look out!” Adjust the timing on a running motor, and as soon as I had the long screwdriver in my hand, I shook so bad it fell out of my hand into the running motor. I reacted as fast as I could and fell backwards from the truck onto the floor, and the screwdriver kept getting caught in the fan belt. After bouncing around in the motor compartment, (luckily not flying out and hurting anyone), it went straight through the water hose. Boy, did I get to hear it! But when it came to body repair, I was the fastest sander around!
Sandpaper in hand, tighten the muscles and let the ET do the rest! The forms we needed to learn about was easy and we didn't have to fill any out as samples or, at the end of the schooling, as part of the test. Thank goodness! At the end of the Technical school, you had to fill out a form on where you would like to be stationed at. I filled in my two wishes: California or Hawaii. Either they couldn't read what I wrote, or the 'Wish List' was nothing more than a joke on us! Receiving my orders, I read Germany! Oh super! But now we fast-forward to being stationed in Germany.
New environment, new people and of course, new stress factors! Super! One of the first things they did is initiate me to the company by taking me down to the Chicken Stand! The initiation is; how many chickens can you eat? Regurgitating not allowed! I got bullied with; “Shaking the meat off the chicken isn't allowed either!” But after 3 and a half roasted chickens, my body was shaking like a leaf!
Alcohol is great at reducing the tremors, but only so long you are intoxicated. The morning after is when tremor says; “Well, you had a break from me last night, but I'm back again! Let's catch up on what you missed!” The whole paperwork which we had only theoretically learned at school, now had to be put into practice at work, and I was a professional in scribbling undecipherable things on the forms. Got a lot of flak about my handwriting at the beginning, but in time, it wore off and became the norm.
Then I got to do a really cool job which wouldn't be hampered by my shaking. My commander volunteered me to be the Colonels Chauffeur. Nice job, if you like driving for hours without a radio. Sitting in the Limousine and waiting for hours till a conference is finished is Boring!! This was though, an important connection. The Boss and me were talking while driving to the Firing Range and I said I would like to learn how to do explosives. Didn't think anything more about it, until one day I was relieved as Chauffeur with orders to attend a school for explosives training. Bound to fail from day one because of shaking, but I guess the Colonel wanted to do me a favor!
Well, I learned it all, and I thought that it is perverse that my body would go quiet when setting blasting caps in C4. So, due to my fluency in the German language, I later got to train NATO troops from different countries on how to utilize C4 and other neat explosive devices. During one course, I was teaching how you could form C4 Plastic explosives and I said; “You can form it like clay.” When the soldiers from Holland were finished mounting it on a tree, as a demonstration on which way it should fall, I said; “Okay. Hit the button!” When the tree exploded and fell over, the guys from Holland were shaking badly! They actually thought it was simple clay, and not real charges! And, sometimes it is so sweet to have the opportunity to say; “You're shaking worse than I do!”
Or the one and only time teaching NATO's how to properly throw hand grenades. All went well till one was shaking so bad, he pulled the pin and let it fall out of his hand. At our feet! With one hand, I pushed him to the ground, and with the other, scooped the grenade over the barrier. I refused to teach grenades anymore because he shook worse than me! At the Pistol Range, it was basically the same story. The Germans shoot a 9mm pistol, which turns sideways in the hand when firing. The first German Officer then played “John Wayne” and held the US Colt 45 at arms length, despite my warning him that it kicks back. He shot, the pistol slammed him in the face, and he was really quiet. But the next one was hilarious! Holding the pistol with both hands, but shaking to the point of dropping the thing on the ground. I was on the sidelines, getting stomach cramps from laughing at the shaky German. Sometimes, I get a mean attitude when I see “Normal” people shake.
I have trouble with shaving and holding any drinks. My biggest one is I work at a big retail store and when a customer comes up with CD/DVD's we are told to open them up and take out the disk. I have tried but I kept dropping them, so now I tell the customers that I am sorry I don't take them because of my shaking hands. So far they are happy with that.
Charles Schulz was the creator of the peanuts cartoons. He was born November 6, 1922 in Minneapolis Minnesota. The peanuts cartoons were published in 2,600 newspapers, translated into 21 languages so it reached 355 million viewers.
Charles was born in Minneapolis, Minnesota on November 6, 1922. Schulz's parents were Dena (Harverson) and Carl Schulz. He was an only child. He attended kindergarten in 1928 at Mattocks School were his teacher encouraged his first drawings. In 1934 the Schulz family gets a black and white dog named Spike, he was a black and white mutt.
In 1936 Charles entered high school at St. Paul Central High School. Charles had a job as a caddie for Highland Park Golf Club. In 1937 was when Charles's first drawing was released. It was a sketch of Spike that was contributed to the February 22 panel of the newspaper comic called " Believe it or Not " by Robert Ripely. In 1940 Charles graduated high school and his drawings submitted to the senior year book are declined.Mr. Schulz drew ''Peanuts'' for nearly half a century. He swore that no one else would ever draw the comic strip and he kept his word. For years he drew ''Peanuts'' with a hand tremor.
In the 1980s Schulz complained that "sometimes my hand shakes so much I have to hold my wrist to draw." The hand tremor affected Schulz's signature, but most people didn’t have any idea. The hand tremor led to the erroneous assumption that Schulz had Parkinson’s Disease. However, according to a letter from his physician, placed in the Archives of the Charles M. Schulz Museum by his widow Jean Schulz, he had Essential Tremor. Despite this, Schulz insisted on writing and drawing the strip by himself. However, his decision in 1988 to abandon the strict four-panel format in his daily strips, which he'd used since Peanuts began, is reported to partly have been an attempt to gain more flexibility, as he then could do some one-panel strips, which took less time to draw than four panels.
On the morning of Sunday, February 13, 2000, newspaper readers opened their comic pages as they had for nearly fifty years to read the latest adventures of Charlie Brown, Snoopy, and the rest of the Peanuts Gang. This Sunday was different, though; mere hours before newspapers hit doorsteps with the final original Peanuts comic strip, its creator Charles M. Schulz, who once described his life as being “one of rejection,” passed away peacefully in his sleep the night before, succumbing to complications from colon cancer. It was a poetic ending to the life of a devoted cartoonist who, from his earliest memories, knew that all he wanted to do was “draw funny pictures.”
To learn more about Charles Schulz and “Peanuts” go to http://schulzmuseum.org/
I wanted to add this story. It isn't all adults who suffer with ET. This is about Nathaniel one child's struggle.
Hi. My name is Crystal. 3 years ago we noticed my youngest son who was 2 at the time was tilting his head a lot and his hands would shake. I took him to the Dr. who then referred us to a Neurologist at Children s hospital in Seattle. Nathaniel had an MRI done and it was determined that he has Essential Tremors. My Mom has them too, but she doesn't call them essential she just calls them Familial. Nathaniel was 2 when he was diagnosed. He is now 5 and because he is in kinder we are noticing he is struggling more and his hands and arms are tremoring more frequently. His Dr. sent another referral to Children s Hospital and village(closer to our home) and he will most likely have another MRI done.
A year ago we had him tested for special ed because he was having some behavior issues, the only thing he qualified for was O.T. But the lady could only see him when I was at work. I work 3 hours a day. LOL So we had to withdrawl.
We had him tested again for O.T. this year and he didn't qualify by 2 points.
Well a few weeks ago his tremor was pretty bad, where most his body was shaking. the school nurse called me and his teacher was staying with him. This caused me to be more worried. ANd push more. We are now trying to get him a 504 plan so they can make accommodations for him at school. Things like writing, drawing, eating, grabbing are hard for him and stressful. He can do it but not always in the time they want.
My name is Colleen and I have a disease called Essential Tremor.
Essential Temor is not contagious, does not mean I am less intelligent or that I did something wrong; I just shake. It can affect your voice, arms, legs, hands, head; basically any part of your body. I am blessed to only have it in my head.
When I was about 30, I began to notice my head was shaking; I went to a doctor and she said I was just suffering from anxiety. She gave me a pill and it just made me tired. I eventually went to a neurologist and they diagnosed me with ET. They can give me beta blockers, anti-seizures drugs, or some other medication but it doesn't totally take the shaking away. I can drink alcohol and it helps some but I don't want that to be an option for me.
I have still accomplished a lot in my life; I have raised six children, almost got my Masters degree and am a very social person. Essential Temor does affect my self-esteem and I do try to hide my temor at times.
It is hard to get a job because everyone thinks I am nervous or when I talk to people they look at me strange because they are wondering why I am so nervous or something is wrong with me. It makes it hard socially because others do not understand ET. If you notice someone is shaking; please do not judge them please accept them as they are. I am ask often if I have Parkinson's disease; no I just shake.
I am writing this because I want Essential Temor research to find a cure or something that helps the shaking. I am trying to help the public be more aware of this disease. There are millions of us that have ET.
Thanks for listening,
More stories about living with Essential Tremor, things in our life that we all take for granted become huge monumental task for anyone living with a movement disorder.
I'm assuming shaving is as crappy for guys as it is for us ladies. I call it my bi-weekly blood-letting in the summer and in the winter, it's called "shaving? what's shaving?" lol I also develop wild tremors/spasms in my feet while standing on a ladder and them I drop the screw or nail I'm trying to fix, so I have try to climb down and pick up everything I dropped, go back up again, and proceed to drop more stuff and do it all over again. Also I never do anything like this alone anymore so I feel like a wussy cuz I have to be watched like a kid even though it's for my own safety.
That lack of control and feeling like a "normal" person is hard for me. A normal person can hop up on a step-stool and put up a curtain rod without it becoming a epic episode, needing spotters and 10 screws in your mouth instead of the 4 you really need. Lack of control=frustration for me and I know it is a huge issue for men as well.
Tell Me I’m Normal By Elsie Doll
My family said not a word about it,
So I believed it was only I who shook
For no reason at all.
I was thirteen when tremor tentacles
Wrapped round my self-esteem.
I had no quarrel with life to deem
Me nervous as thought by my family.
Yet there it was consuming me,
A trembling like their’s denied.
In the privacy of my soul I cried,
Is there anyone to tell me I’m normal!
With trepidations, I left my family
In search of others not nervous, yet shaky,
And low and behold to my wondrous surprise,
I found scores of people supplied
With tremors and healthy esteem inside.
I stared and they said, “Hey, you shake too!
Do you not know that staring is rude?”
“Ironic,” I said. “As I hate stares at me.”
I became a member of their club ET,
And my self-esteem rose to where it should be.
Brad Carter was on CNN today, June 25, 2014 for a follow up about his DBS surgery a year later. Check it out
Brad Carter was born in Forth Worth, Texas and grew up on beautiful farmland outside of Macon, Georgia. He is an actor, VO artist, stand-up comedian, and accomplished musician. Brad has worked in film, television, voice over, PSAs, video games and has 28 national commercials under his belt. He is known for his ability to easily slip into roles, where he becomes the scum of society, makes you laugh with “dumb southern charm,” or breaks your heart with his sorrowful eyes and sincere acting style.
Brad has also studied Improv at the Groundlings and Improv Olympic. Brad also has a wide range of vocal characters for animation and the ability to speak with several different accents and dialects on command.
Brad has performed stand-up at popular LA comedy clubs such as The Improv and The Comedy Store. He has written comedy performed by Fred Willard, Edie Mclurg, and Alan Thicke. Brad also wrote comedy and collaborated with Anne Beatts, an Emmy award-winning writer from Saturday Night Live.
In May of 2014 Brad made history and world news when he allowed his brain surgery to be filmed, Twittered, and put on VINE live. The surgery called “Deep Brain Stimulation” implanted electrodes into his thalamus to get relief from a Tremor disease that had plagued him for years. During the 7 hour surgery Brad amazed the world when he played his unique guitar. The surgery has been viewed hundreds of millions of times and on most news stations around the globe.
In all, Brad had two brain surgeries and a 3rd surgery to implant the pacemaker in his chest.
Given this second chance to play music, Brad wasted no time in funding a kickstarter campaign to record a full length solo album of his original music Due out Early Summer of 2014. If you would like to be notified when the album is complete, please sign up at the
Brad graduated with a BFA in Fine Art from Valdosta State University in 1997, with a focus on bronze sculpture and oil painting. He still uses his artistic talents to help other actors get the kind of headshots that will help get them to the next level. Check out his work at:www.bradcarterphoto.com
DBS Stands for “Deep Brain Stimulation”. Deep brain stimulation (DBS) delivers a constant low electrical stimulation to a small region of the brain, through implanted electrodes connected to an implanted battery. It is used to partially restore normal movements in Parkinson's disease, essential tremor, and dystona.
I made history when I was in the news recently playing guitar during my brain surgery, and was seen all over the world by hundreds of millions of people. Many of you have questions so here is the answer; I had my surgery on May 23rd 2013 and another on September 24th, 2013. I am doing well and happy to report that I am getting great results. I am so grateful to UCLA and to my Doctors.
I have a condition called “essential tremor” which is dominant in my right hand. Make no mistake, this is not a cure. This can however give me back some of the control I have steadily been losing in my hands over the past 8 years. I have since been invited to speak at “ET” and Parkinson’s Disease events and am very honored to do so.
I am in the process of recording an album of my original music that I funded on kickstarter. I am very excited about it. If you would like to check it out go towww.bradcarterkickstarter.com
I am also featured in an upcoming documentary called KICKSTARTED.
If you would like to still donate you can do so on my front page. I am still collecting donations to make a video.
Thank you for your concern and well wishes.
My story by Brittany Adler
Being told at fifteen, “you are going to change the world”, made me realize I am meant to be a physical therapist. At a young age, I began my journey to help and inspire people to always be their best. I was born with a neurological movement disorder called Dystonia, causing my muscles to contract and affecting my speech. I do not consider this a handicap. I do not use my handicap as an excuse to hold me back from achieving my goals. I want to use my experiences to help others as a competent and compassionate physical therapist.
My Dystonia challenged the normal progression and successes of every childhood developmental milestone. When I was eight months old, I started physical, occupational and speech therapy. I not only had to be taught to walk, but also had to learn to transition from sit to stand, to steady my balance and to hold and grip with my hands. I received therapy to learn how to form sounds and words so I could speak. I had to make a conscious effort to learn things that most people do automatically. Finally, at three and a half years of age, I took my first steps. Once I started walking, there was no stopping me. Those steps were my first steps toward my goal of making a difference in people’s lives.
While achieving milestones later and challenged more than most, I was committed to achieving my goals while continuing physical, occupational and speech therapy and coping in an otherwise “normal” social environment. Despite my handicap, persistence was iconic with all activities throughout my childhood. I participated in difficult academic programs and “sports” like others my age.
Community volunteering has always been very important to me. I was active in the Girl Scouts for eleven years. I understood the meaning of community and had a keen desire to help others. I focused my passion for young children as a counselor and teacher assistant. I discussed my disability with age appropriate conversations to discuss the vast differences that all the children might be confronted with. Respect and tolerance became apparent.
I graduated high school cum laude. I attended Florida Atlantic University, studying Exercise Science and Health Promotions. The school had no prior experience with my kind of physical condition. The department was uncertain about the workload of classes and physical aspects of this major for me. I knew my potential. I even started volunteering at a ranch for children with disabilities with the use of the horses’ movement (hippotherapy). I am so inspired and proud to be a part of this program. This has reinforced my interest, passion and commitment inhelping children with disabilities. I had no doubts about what I could accomplish. I never looked back.
I want to make a difference in children’s lives as a pediatric physical therapist. I want to show and teach children with disabilities that being different does not mean they cannot pursue their goals and aspirations. They can achieve and accomplish the things that are important to them if they put their minds to it. Many may underestimate the potential of children with disabilities to learn and grow mentally and physically. I want to motivate and challenge children with disabilities to do things and to try to be the best they can be.
I am never shy and always seeking to find the answers to any question. I am determined to be understood, to speak my mind and to be an integral,contributing part of a group. Acceptance is difficult even without a physical handicap. I have proven to others and, more importantly, to myself that I belong and will succeed in whatever I put my mind to.
In spite of my physical, verbal, and fine motor challenges, I have decided to face life head on. I want to educate others to consider everyone’s special strengths and weaknesses. Everyone has a handicap of some kind whether it’s physical or nonphysical. I am fortunate in so many ways. I want to help others, especially children, create opportunities. I hope to inspire everyone, adults and children, with and without disabilities to be the best they can be.
Personal Stories – Deb, age 73
Deb’s ET began about 5 years ago. Before retiring from the Navy she had an encounter where the updraft from a landing helicopter picked her up, flipped her over and dropped her on the ground, 3 times. The ET started about a year after this as a slight tremor in her left hand, her writing hand. It spread more recently to the other hand, and the left hand has gotten worse to where people notice it now. The more she concentrates on not spilling, she spills, ie, when eating a bowl of soup. The soup does not make it to her mouth unless she uses two hands. Deb sings and also notices the tremor impedes her holding sheet music in her hands.
She has hit her head about 5 times in life and has had 3 concussions. Long before the helicopter accident she was in a terrible car accident, in a stopped car that was hit by a car moving at 85mph and threw her vehicle 50 feet. Deb had two compressed discs in her spine, the cranial and lumbar. However, she definitely attributes the helicopter accident to the onset of her tremor. She went to her neurologist for the tremor about a year ago when it became more noticeable and went on Primidone. She continues to take it but finds it doesn’t seem to work.
She doesn’t recall anyone in her family having had a tremor. She has had her frustrations from ET, such as her writing became so bad that when her bank once asked her to write to get money out, the amount she wrote out was not even legible. Also she tires more easily because of trying to hard to control the tremor.
Before Deb retired she worked in a laboratory and did precise work that required her to be steady. She was thinking of going back to work in the medical field she was trained in to make some money but says it wouldn’t be possible now with her tremor because it makes her too unsteady.
In term of coping, she finds wine calms her tremor down so she will have some at dinner, 3 champagne glasses full. But while wine works, whiskey does not. She has started to do stretching exercises and wants to try Tai Chi. The idea is to stabilize the impulses from the thalamus. She hopes NIH will have their octanoic acid study resume again so that medicine will be made available that mimics the effects of alcohol on tremor without the drunken aspect.
Interviewed by Lisa Gannon
Silver Spring, MD Support Group Member
Well my ET is a little different because I shake at rest and while in motion and it effects both arms/hands and my right foot. My kids won't let me help with any boo-boos they get because they say the shaking makes it worse. I am not allowed to use scissors or use sharp knives without being very aware of what I am doing. My oldest who is almost 13 gets a concerned look on her face when she sees the tremors act up. I struggle everyday to work on a computer for work but the scroll mouse helps and I struggle everyday with home life. I am not able to take any of the meds so I learn to deal.
With all that downer stuff I have also met and made some wonderful friends. I have a ton of people who love and support me and a safe place to vent or ask questions. I have learned patience and that it's ok to ask for help, or go slow or even say no if it's too much. I have shook my whole life but finally at the age of 33 it doesn't scare me because I understand what it is. I don't mind people knowing my name because ET is my new friend who isn't going anywhere. I still try to hide it or control it but I am not as afraid to be around others.
My ET story! My name is Lily C Haryett.
I have had ET for the majority of my life. The first knowledge that I had ET was in grad school and I was to practice printing my letters and do math. I was shaking and to control it I would tense right up
and the first time my arm started to hurt. (I might add that I am all so a transgendered woman and did not start my transition till a year and a half ago and I am 42 now!) I often as a little boy when I was frustrated with my tremors I would act up. I all so had trouble learning how to do my laces up or do up my buttons.
In my teen years, I took note that in shop class I had trouble with using saws and equipment and stuff inside the shop and drawing out things and doing a lot of fine motor skills I still have a very big problem dealing with change and coins. I might add that my spelling and grammar problems are a direct result of my tremors in school! I knew I had a ton of problems with doing most things in shop class and auto shop and most things I even had and still do have a problem typing and I even tried to do home ec and sewing and stuff like that and that was not a help. School was my biggest problem and disappointment.
In my adult life, I have had a lot of jobs and lost jobs because of my tremors. Now I will explain one part of this out. It was early 2000,s. I was working at this small assembly company and there was this one little job making store display shelves that were spring loaded to keep product at the front and part of the job was putting in gears and washers in the two holes and a rivet to hold the shelf together to its steel base. Now I learned how to do this really fast sitting down on an adjustable chair but one day they took the chairs away and I could not do the job without shaking and I was no longer as fast or could keep up with the work. I at this point knew there was something up but no one told me about ET. So I was told I was slow and stupid and believed it. Then I
was lead in to the offices and told I was too slow and let go!
Now as I am transitioning in to a woman I am finding makeup application and some of the small buttons and clasps on tops and bottoms and some buckles on shoes as well as doing my hair very difficult. The worst is it’s getting worse and not going away! The big problem I am finding is all the drugs to control ET and my HRT interfere with the heart meds I am on and ether make my heart rate high and blood pressure is high! I believe that my ET is responsible for my right shoulder and arm pain in both arms. I am finding some times it’s within my
head and I have a leg shake as well. That’s my story in a nutshell! Lily Cole Haryett