My Journey with Essential Tremor
I first noticed my right eye lid twitch at age 27.. As years progressed the head began to shake more visibly when I was angry or upset.
I often wonder how big a part that stress adds to our nervous system. Over the years I had plenty of emotional and verbal and financial abuse, I am sure that did not help. One day I accidentally fell backwards down the stairs, held myself from somersaulting by grabbing the railing, in the process I felt my spine from the tailbone to the back of my skull twist. From that day forward, the head tremor has progressed. As I journeyed thru my 50’s, I am now tremoring more internally as well.. I recently have noticed in the morning my jaw wanting to chatter like I am cold. I do notice both my arms and hands tremor some when holding onto something or trying to be precise.
Family History: My youngest son_ ET and dystonia
Father’s Father- Diagnosed with Parkinson's Disease
Mothers Sister- Diagnosed with Parkinson's
I did have a cousin on my Moms side that had essential tremor. He was in Vietnam War, and was beaten by his Dad when he was young, again, I wonder how all this plays into our nervous system.
I do wonder back in the 60 and 70‘s if all that shook was classified as Parkinson.
The need to educate is tremendous.
The part that I dislike the most, is the bullying from other people. The stares, the laughs, the snide remarks, their cold hearted attitudes..
One day I prayed to God to lead me to how I was to handle this, I had been reclusive, did not go shopping or out to eat anymore with my husband or family. It was easier for me to deal with it..
But, at the same time, it seemed very unfair.. I was playing around on the computer and typed in Essential tremor support groups and found a few. I thought to myself, I wonder how many others have this? I thought, hmm, I have commercial advertising experience and I can run a free article, so I marched forward with that idea.. I needed to know I was not alone, and how they handled it, wondering perhaps we may get together one day, and make friends?
Little did I know that I would have calls from several counties in upstate NY, one conversation led to another, others were interested to getting together as well, we planned a time and place to meet. How exciting, in public, and I didn't care as much, as I would not have to face this alone.. We decided as a group to educate and help others . We were added to a support group listing, the phone rang one day, several calls in fact from the NYS downstate area. From Brooklyn, Manhattan to the Long Island area. Our local support group kept coming up with more ideas, as we together in strength felt good about ourselves and we were making a difference, yes, it is empowering in a great way, turning a negative to a positive.
AS a group we invited professional medical speakers, we set up at health fairs, in the bigger cities, we did educational seminar educated EMS and beyond, as well as doing fundraisers and distributing literature as we go..
I do not tell you this for glory, I share this with you for inspiration and empowerment.
We did this for over 5 years, It was getting to a burn out stage, my life had grandchildren to babysit etc, to I needed to shelf the group for a while.
My husband retired, we moved to Florida, thinking Ahh, this is great, finally bask in some sun. Little did we know the DMV is very strict about others with tremor, I was denied my driver’s license, I was just stripped of my independence. To find out I was not the only one singled out. By coincidence, my husband was out to breakfast and was sitting near 3 guys that were chatting about ET, one of the gentleman also had ET and had also been rudely, and humiliated by the employees of the DMV office.
There is a great need for educating, how can we do this? Together, strength in numbers, lets put our thinking caps on and make a difference, we CAN do this for ourselves and for future generations to come...This can be part of our legacy.
PLEASE contact the Diann Shaddox Essential Tremor Foundation for additional information. There are so many great programs, where they need our help.
Once we return to NYS (Our home state) I still kept my driver’s license, that I have had for 52 years, and will again be independent, I will know when it is time to let them go…
For myself, my plans .along with my husband and family support, is to start a support group again, and educate, I want to focus additionally on the bullying aspect, and work with legislation to try and educate the state and federal levels.
It’s an uphill battle, BUT, it needs to be done..
Will you join me in this journey in your area?
God Bless us all..
A wonderful Thank You to Diann Shaddox and her staff and all their hard work.. Proud to be part of a great Group and foundation..
Mary D. is an Essential Tremor support group facilitator and a member of DSF FUNDRAISING/SUPPORT GROUP ADVISORY BOARD
Ten million people in the United States shake due to essential tremor. It is a syndrome with no cure yet. Medications and procedures can calm some tremors, but not all. Those of us with ET have to learn to live with it and find unique ways to deal with it.
My essential tremor reared its ugly head during my freshman year at college. No insecure, very shy, introverted girl wants to hear a voice behind her say, “Hey, girl, what’s wrong with you? Are you scared?” No, I wasn’t scared, just having a tremor beginning from an unknown source and terribly embarrassed.
As with most cases, my ET progressed. My head shivered back and forth as if I were constantly telling everyone, “No, no.” Nevertheless, I incorporated it into my life and prayed each day that IT wouldn’t be noticeable or IT would go away. I got married, had a daughter, taught school for twenty-seven years, and at the age of 48 retired early and enrolled in seminary. Not because I wanted to become a student again, but because God was calling me. After graduation I was ordained and pastored in six different churches in twenty-four years. Yes, I stood in front of classrooms and congregations to teach and preach. I explained ET, but didn’t dwell on it. Sixty years of tremors in my head and now it is starting in my hands. Many of you can relate to that.
One of my most embarrassing ET moments was at age 75 sitting next to my 104-year-old mother-in-law at her assisted living home. We were listening to an older man entertaining the small crowd with music. After a short time he told everyone to lift their hands and sway them side to side. My mother-in-law and I chose not to follow the instructions. He looked at me, saw my essential tremor head indicating no, no, and he stopped singing. He said, “No, we can’t do that! She says no.” I tried to hold my head steadier with little success. Several more times he stopped and pointed at me, so everyone turned to stare and see who was “disobeying.” Embarrassment and a little bit of anger. After the performance I did talk to him quietly. It may have embarrassed him, but I hoped he would not do that with anyone else in his audiences. Ten years ago I would have kept quiet and told myself to “suck it up, cupcake.” Not anymore.
Do you wonder why we don’t see many others with essential tremor in stores or on the sidewalk? Where are the other 9,999,999 of us? The best place to find others is in a support group.
After my second retirement, I began in earnest to write fiction books. I have two fictional series, several stand-alone books, devotionals and Bible studies, and one children’s picture book.
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DSF’s Mission: Our mission is clear to find a cure for Essential Tremors
Because of you, DSF will lead the way on how the world understands ET and find a cure through new research. Together we can make a difference in millions of people’s lives. We can help prevent bullying, feed a family, bring awareness to ET suicide, and find a cure. Help us speed new treatments to end Essential Tremors. Donate
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DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremors strongly recommends that care and treatment decisions related to Essential Tremors and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
The Diann Shaddox Foundation for Essential Tremor operates on it’s on. All our donations go to DSF programs.
It took me 3 years and 7 doctors to figure out what was wrong with me.
My name is Theresa McFadden and this is my ET Story
I started with internal tremors, so I didn't know how to explain what was wrong with me (because I never heard of such a thing, no one in my family had it). I was diagnosed with anxiety (well who wouldn't have anxiety not knowing what was going on with your own body), depression (I wasn't depressed just worried) Went to see my 6th doctor who was trying really hard to find out what was wrong. My next visit I went because my voice started with a "quiver". So he was thinking MS (but that was questionable). He sent me to the RIGHT Neurologist. I lived on the couch for 3 years and thanks to my Neurologist I have some what of a life back.
Our Stories Living with ET
“No one knows Essential Tremors better than those who are living with it.”
Stress & Anxiety living with Essential Tremor (ET)
Living with ET can be a social nightmare. Being out in public can be embarrassing and cause more stress and anxiety. Simple things like holding a glass, eating, and even walking with balance issues can make you feel uncomfortable.
The answer for most people is to try to hide their tremoring hands or just stay home.
So how do you manage your life after ET invades and takes over your body?
What works for some may not work for everyone when you are dealing with stress & Anxiety.
Take time to find what works best for you. Don’t let ET define you or limit you activities.
By Team DSF
Essential Tremor vs Parkinson’s
To distinguish between the two diseases, a neurologist specializing in movement disorders will perform neurological testing and evaluate features of the tremor including frequency, amplitude, pattern, and distribution.
Parkinson's disease is much less common than essential tremor, and it presents itself in markedly different ways, however there are similarities. While treatments overlap in some areas, getting the best care requires the right diagnosis. The two conditions have key differences to look for:
Below are some of the differences & resemblances between the two diseases:
(1) Resting tremor occurs when the muscle is relaxed, such as when the hands are resting on the lap. With this disorder, a person’s hands, arms, or legs may shake even when they are at rest. Often, the tremor only affects the hand or fingers. This type of tremor is often seen in people with Parkinson’s disease and is called a “pillrolling” tremor because the circular finger and hand movements resemble rolling of small objects or pills in the hand.
Action tremor occurs with the voluntary movement of a muscle. Most types of tremor are considered action tremor. There are several sub-classifications of action tremor, many of which overlap.
Tremor & Essential Tremor
The International Parkinson and Movement Disorder Society
Contributed by Leo Verhagen, MD, PhD
Associate Professor of Neurological Sciences
Rush University Medical Center
Chicago, Illinois USA
Tremor is an unintentional, rhythmic, oscillation of a body part in a fixed plane. Tremor results from contractions of agonist and antagonist muscles entrained by a signal pattern originating from an oscillator in the CNS. Resting tremor occurs in a body part that is not activated and completely supported against gravity. Action tremor refers to tremor occurring with voluntary muscle contraction and is subdivided into postural tremor, isometric tremor and kinetic tremor. The latter is further subdivided into simple kinetic, intention tremor, and task specific tremor, such as writing tremor.
The etiology of tremor is diverse, and includes hereditary, degenerative, and idiopathic disorders such as Wilson’s disease, Parkinson’s disease, and essential tremor, respectively; metabolic diseases (such as thyroid-, parathyroid-, liver disease and hypoglycemia); peripheral neuropathies (associated with Charcot-Marie-Tooth, Roussy-Levy, diabetes mellitus, complex regional pain syndrome); toxins (nicotine, mercury, lead, CO, Manganese, arsenic, toluene); drug-induced (narcoleptics, tricyclics, lithium, cocaine, alcohol, adrenaline, bronchodilators, theophylline, caffeine, steroids, valproate, amiodarone, thyroid hormones, vincristine); and psychogenic disorders.
Clinically tremor can be classified into physiologic tremor, enhanced physiologic tremor, essential tremor syndromes (including classical ET, primary orthostatic tremor, and task- and position-specific tremor), dystonic tremor, parkinsonian tremor, cerebellar tremor (often associated with multiple sclerosis), Holmes’ tremor (a.k.a. rubral tremor), palatal tremor, neuropathic tremor, toxic or drug-induced tremor, and psychogenic tremor.
Contributed by Hubert Fernandez, MD
Head, Movement Disorders
Department of Neurology
Cleveland, Ohio USA
Essential tremor (ET) is the most common tremor syndrome seen in adults. The characteristic tremor seen in ET is postural and action tremors, with a frequency of 4-7 Hz. These tremors may begin insidiously early in life, with an increment in tremor severity over the years. The disability in ET is associated with impairment of voluntary activities that occur as a result of the tremor. Patients commonly complain of tremors when eating, drinking and writing, spilling over food and drinks and developing a progressively illegible handwriting. The most commonly affected body parts include hands, head and voice, but may also be seen in the legs, trunk and face.
Despite being mainly a postural tremor, kinetic tremor may be present and sometimes a resting tremor of lesser severity may be appreciated. The tremor in ET is exacerbated by conditions as stress, exercise and fatigue, caffeine, certain medications and improves with relaxation and alcohol. Several tremor conditions are believed to be variants of essential tremors including: task-position specific tremor (primary writing tremor), isolated voice tremor, isolated chin tremor.
The most common treatments for ET include: primidone, beta blockers such as proporanolol and benzodiazepines. Sometimes, in medication-refractory tremor, deep brain stimulation of the VIM nucleus of the thalamus is considered.
If you consistently have difficulty remembering things, then this article will show you a simple process for strengthening your memory and concentration. It is so important to be able to remember things. Things we read, work on or learn, all can be beneficial to remember and sometimes even memorise.
How To Improve Focus?
Has your spouse ever told you that you need to improve your memory? Have you ever entered a room and forgot what you went in for? Or draw a blank mid-sentence when you’re chatting? If you think you’re memory’s not what it used to be, take heart from the fact that our brains have to process around 70,000 thoughts a day. It’s a common myth that our intelligence is genetically predetermined, leaving little scope to improve your memory.
In fact, scientists say the brain is a growing, changing organ and its capabilities are dependent on how you treat it. By adopting some natural techniques, you can dramatically improve your brain’s functioning. You will be able to set your memory goals, make a plan to achieve them, and store away more and more memories through daily practice. You will also be able to confidently approach any memory task. With this, knowing that you have a method for creating and recalling any memories you choose to retain.
Mind and Memory Power
Some people are lucky to be born with particular mental skills but for the average person becoming a genius will take a bit of work. There are things we can do that will activate higher learning in our mind and memory. If you possess an open mind and ready to do the necessary work to get there, then it’s possible to have a genius mind and memory and draw a profit from it as well.
[If you possess an open mind and ready to do the necessary work to get there, then it’s possible to have a genius mind and memory and draw a profit from it as well.]
Genius mind and memory supremacy – we all wish we were a genius and would go to great lengths to acquire a staggering mind and memory of a genius. Unfortunately, we usually want a brilliant mind and memory immediately and cannot seem to wait and put in the necessary work. Here are some of the crazy concepts I identified online: a person seriously suggesting a mind transplant, a medical professional also recommending brain surgery, eat the brains of a genius and taking tablets or medication that may improve mind and memory power. None of these has been proven at all and has no value when it comes to developing the mind.
Step 1 – Establish Your Goals
Goal setting is just as important in learning how to improve memory and concentration as it is in other areas of life. In other words, you need to know where you are going before you set out on your journey. Think about what your memory improvement goals are, and most importantly, write them down. This helps to lock them into place. Make them specific and measurable. For example “I want to be able to remember my 2-page presentation by next Saturday”, or “I want to memorise birthdays of people in closest to me by next Monday.”
Step 2 – Break Each Goal Down Into a Simple Plan
Once you have set a goal to improve memory and concentration, break it up into some tasks. Spread them over the time you have available. Using the previous example of the relatives birthdays, if you have 20 to remember and four days to do it in, set yourself the task of learning 5 per day. This is achievable and realistic, especially when starting out. With more practice you can increase the amount you learn in each day. The process of learning how to improve memory and concentration will become more relaxed and more comfortable.
Step 3 – Use Association and Emotion
In the example given above, try and associate each birthday with sharp images and use a range of techniques to help you remember each day’s facts. For example, repeat them out loud, write them down, and draw pictures. Anything that allows you to anchor your new memories.
Picture the person whose birthday you are trying to remember, perhaps on some happy occasion, and then visualise their birth date floating above them in large, brightly coloured numbers. Focus on the image. This will enhance your powers of concentration. Use something shocking if you like. These photos are for you alone. Bizarre and unusual images are highly useful tools in learning how to improve memory and concentration.
Step 4 – Rehearse What You Have Learnt
Rehearse what you have learned several times during the day, and again at the end of the day. As the days go by, rehearse your accumulated memories to strengthen your powers of recall. This is a handy article about Success Principles based on our survey with very interesting results.
Step 5 – Good Food Will Improve Your Memory
It is widely recognised that the modern diet often contains insufficient vitamins, minerals and other components needed to sustain a healthy body and mind. Understandably, many people turn to memory supplements as a way to improve the memory and concentration.
But did you know that before you start using memory supplements, there is one thing that you must do to provide the best foundation for a healthy brain? What’s more, if you don’t do this ‘one thing,’ the chances are that you will be wasting the money you spend on memory supplements.
It is straightforward. You must eat a Basic Healthy Diet. A healthy diet is one that is low in saturated fats and sugar, and high in unprocessed foods. This including fruit and vegetables. One component of food which is thought to have a significant beneficial effect on memory is folate. Folate is present in strawberries, whole grains, and dark leafy greens, as well as many other foods.
Any memory supplements you use are best taken in conjunction with a primarily healthy diet. They will be the ‘icing on the cake,’ if you like. But if you eat a poor diet, don’t expect any supplement to be a miracle cure for your memory or any other health issue. Get the ‘foundation’ in place first and then consider what part memory supplements can play in your health program. Also, please do some research on studies before taking any supplements.
Step 6 – Use ‘Brain Entrainment’ to Improve Your Memory
Good Memory, the centre of attention, mind Power and Concentration. These are the most common and mutually supporting features of a highly efficient brain.
If you are looking for ways to improve your memory, it will pay enormous dividends if you use an approach that tackles all four of these elements at the same time.
A ground-breaking approach which achieves just that is the process of ‘brain entrainment.’
Brain entrainment uses audio tracks to guide your brainwaves into operating at the frequencies which enable you to tap into higher levels of energy, creativity and problem-solving. These are the frequencies that arise during meditation. The significant advantage of this relatively new technology is that it allows you to access these rates quickly and easily. You will experience the brain states that high achievers and geniuses have used to make their mark in the world. And in doing so, your ‘brain power’ and memory will naturally improve in many different ways.
How To Improve Your Memory Naturally
Here are some easy ways to sharpen your memory, improve your concentration and think more clearly.
Brain Exercises to Improve Memory
Using mental exercises on a regular basis will strengthen your concentration and improve your memory while at the very same time making for some pretty cool fun.
Brain exercises that improve memory can be practised during the day while you’re working. Many have made the comparison of the brain to a muscle that can be exercised for increased mental strength when using the right kind of activities. If you are looking for concentration help then applying the mind is a must.
Some mind and memory exercises can be as simple as an intelligent conversation or reading something new. Reading an article in a newspaper and then summarising it to a friend of yours or a family member, can be an excellent exercise. It’s good to do these types of mental activities and as much as possible since it will give you excellent concentration help, plus it is straightforward to come up with games that improve memory.
But be careful not to just breeze over the words and miss half of the meaning. You’ll amaze yourself with what you’re able to remember. Look online for more brain exercises that improve memory. They are easy to find.
Eat Smart And Improve Your Memory
A sharp memory mainly depends on your health. To maintain top brain function, you must eat healthily. Ian Marber, clinical nutritionist and author of The Food Doctor, said: “Most people are familiar with feeling dizzy and being unable to concentrate if they haven’t eaten, but they don’t realise what an effect nutrition has on brain function. Look how many people follow low-fat diets for weight loss, ignoring the possible repercussions for the brain.”
Omega-3 essential fatty acids (EFAs), found in oily fish such as herring, mackerel, and sardines, are involved in the production of prostaglandins, hormone-like substances that regulate brain and heart functioning. When you’re stressed, your body uses up more nutrients, which can affect the brain.
Most people are familiar with feeling dizzy and being unable to concentrate if they haven’t eaten, but they don’t realise what an effect nutrition has on brain function.
Ian Marber said: “The hormone adrenaline, produced in response to stress, uses extra glucose, which could lower blood levels, impeding mental performance. The brain is the single largest user of glucose, or energy taking around 70 percent of the total produced from food intake.”
Getting an adequate amount of vegetables is equally important. So go for plenty of fresh vegetables, fruit, and complex carbohydrates, like potatoes. This ensures a consistent supply of glucose and antioxidants to counteract the formation of harmful free radicals and to help protect your brain and body from premature ageing. Another vitamin-like substance, coenzyme Q10, is thought to increase memory and concentration by upping oxygen levels in the brain.
Practice Feng Shui
Feng shui is the ancient Chinese art of balancing energies to create harmony, increase efficiency and encourage prosperity. Whether you believe it or not, it does give you a sense of peace, and that alone is worth it. By changing your working environment, you can enhance your performance and improve your memory. Gina Lazenby, an author of The Healthy Home, advises the following: avoid clutter – it creates stagnation. A clear desk helps you find things more efficiently and focus on the task at hand. Place inspirational images within view, such as a picture of a beautiful landscape, to help stimulate creative thinking. Make sure your chair is supportive and comfortable, allowing energy to flow.
Avoid Fluorescent Lighting
Use a desk lamp and avoid fluorescent lighting, which can create glare, an energy-zapping source of distraction. The better the light, the stronger the creative energy around you. Use colours – yellow is said to stimulate the mind, turquoise helps clarity, while beige and light blue encourage tidiness. Don’t sit with your back to the door. Position your chair with your back to a wall, so you can see anyone walking through the door. Then you won’t be taken by surprise and will appear accessible and approachable.
Get Enough Sleep
Sleep is the time when our body is repairing itself. Make sure you are getting ample sleep since this offers your body the time to heal itself for the next day. Getting a ”power nap” in the day is a behaviour well really worth mastering. You’ll wake from the power nap refreshed and raring to go again.
Games for Improving Memory and Concentration
When you play a memory game at every opportunity, you will find great success, and it will improve memory. You may take a look at nearly everything as being a possibility to practice these memory games. Look at word association or putting a visual reminder with words with items to remember. Many of the games nowadays possess games that are targeted at increasing your brain power. These are labelled Mind Training, so if you have a game console, they are a great way to improve your mind and memory power. There are also computer-based equivalents if you don’t have a gaming console. A couple of mini “brain exercises” a day should assist your memory improvement goal. Quizzes are great test your ingenuity. It can help assess the status of your memory and intelligence. Sudoku or a crossword puzzle is also a great way to stretch your mind!
Mind puzzles provide you with the tools to improve your skills in specific areas.
Problem-solving is the number one skill that many people do not use to its fullest potential. When you have honed your skills at a particular memory game, many mental problems you had in the past will be simple to work out with your new found mind and memory.
The bottom line is that the more you play, the better you become. When you attempt quizzes or mind puzzles, you are increasing your ability to think fast. When you complete a mind puzzle a day, you will notice you have gained a sense of security, and you will also see the difference in your problem-solving skills in a relatively short amount of time.
Supplements for Your Mind and Memory
Usual dietary supplements like Ginko Biloba have been shown to have beneficial results in the brain improvement and blood flow. It is easy to get them online from sites like Amazon or your native wellness super food store. With the natural mind workouts above, you’re stimulating each side of your mind. Regardless of whether you’re rich or poor, a university scholar or a dropout, as long as you are in management of both sides of your brain, the possibilities are endless.
As Albert Einstein often would say “genius is 1% inspiration and 99% perspiration“. The road to attaining genius mind and memory power is genuinely available to any individual prepared to work to reach one’s goals. Once you use the remaining parts of your brain, you are using your logical, analytical thoughts to focus your actions. The other part is utilised in exploring creative suggestions, inspiration, hunches and the like. When you can use both naturally, logic and creativity, all you need to do are consider the action to take to get to your objective. That’s the 99% Einstein was talking about in attaining genius brain power. You can find numerous brain supplements on the market. But make sure to consult a physician before using any brain supplement.
Surround Yourself with Positive People
Surround yourself with like-minded people. Having people around with a mindset similar to yours will give you the support and help you need to grow the mind and memory to new heights.
So there you have it, nine natural approaches for improving memory. That also provide a healthy foundation for any other memory improvement methods you may want to use!
In this article, you’ve learned various steps and techniques to achieve any memory task you put your mind to. You now have a proven step by step system for powering up your memory and concentration and enhancing many areas of your life.
[Authors Bio: Sohail is a content marketer and a blogger. Currently, he is associated with Smiletutor.sg, a private tuition agency in Singapore. His hobbies include writing, reading books, travelling and gardening.]
Thank you Matthew Snider & Rebecca Temsen Self Development Secrets Blog
When You Travel with Essential Tremor
See your doctor before traveling.
There are a number of very basic things you need to do to help your ET, and those things don’t change if you’re traveling. Seeing your doctor 3-6 weeks before traveling. This will give you enough time to adjust medications before traveling.
Get a doctor’s letter and prescription.
Get a prescription and letter (on your doctor’s letterhead) from your doctor to carry with you. The letter should outline that you have Essential Tremor and may need assistance. You also may need to carry certain medications and supplies with you. The prescription is important because you never know when you may become separated from your medications. Consider using a national pharmacy that is able to transfer your local prescription to wherever you are traveling.
If you’re flying, it’s best to have all of your medication and supplies as they came from the pharmacy (with their labels on), as recommended by the Federal Aviation Administration (FAA). In addition to packing your medications, you’ll want keep them with you at your seat. Take along a certificate from the DBS manufacturer if you had the surgery and applying for TSA pre-screening so you don't have to take off your jacket and shoes.
Consider emergency identification.
Many people with ET carry an ID bracelet, an “in case of emergency” contact (ICE) for their smartphone, or a portable electronic record. An ID bracelet needs to identify that you have Essential Tremor so that someone helping you in an emergency can understand what’s happening and why you are tremoring, even if you’re unable to communicate with the responder. The ICE contact should be someone who knows something about your health situation. Finally, consider a portable health record that gives a provider important aspects of your care history.
Tell the airport, train station, etc. that you have Essential Tremor or are traveling with someone with Essential Tremor.
Even if you don't normally use a cane, walker, or wheelchair, consider bringing or using one if it's convenient. Tell the airline that you need early boarding and help. Take stretch breaks and exercise breaks when you can.
Pack thoughtfully. Extra planning can help make the trip run smoothly.
When packing for travel pack your supplies in a carry-on, so they’re always available. Plan for time zone changes, since this can make your tremors worse. Keep your medicine in a separate bag so it’s easy to pull out if necessary. Have your information, important documents in pockets or small bag that is easily accessible. Don’t over due on your trip/vacation. That will make your tremors worse. Get plenty of rest, drink water, and don’t skip meals.
Last, enjoy your travels and don’t worry what others think.
INSIGHTEC FOR NEUROSURGERYINSIGHTEC provides a non-invasive, image-guided alternative for deep brain procedures such as thalamotomy and pallidotomy for essential tremor, tremor dominant Parkinson’s disease and neuropathic pain. This personalized treatment is done through an intact skull with no ionizing radiation, providing a real impact on patients’ quality of life.
MINIMAL HOSPITALIZATION and short recovery timeSHARP, ACCURATE
Lesions as small as 2mm, no penetrating trajectories, no implanted hardware, no ionizing radiation, less risk of infection
MRI guidance for targeting and thermal feedback, with immediate results
INSIGHTEC’s neurosurgery solution, Exablate Neuro, is the first focused ultrasound device approved by the FDA to treat patients with essential tremor. Exablate Neuro is a non-invasive, image-guided personalized thalamotomy, treated through an intact skull that doesn't require any ionizing radiation, incisions or implants.
What is Exablate Neuro?
High intensity focused ultrasound waves precisely target a focal point in the Vim nucleus of the thalamus, the tiny part of the brain that is thought to be responsible for causing tremors. The Exablate Neuro ultrasound transducer consists of 1024 beams that generate enough heat to ablate the targeted tissue during treatment. The result is an immediate and significant reduction of tremor for patients.
During planning and treatment for essential tremor, the patient is fully conscious and lying on the treatment bed in an MRI scanner. MRI provides high resolution visualization, patient-specific treatment planning and continuous monitoring of the procedure. Real-time thermal feedback allows the physician to control and adjust the treatment, ensuring that the targeted tissue is completely ablated without impacting adjacent healthy tissue.
This revolutionary, non-invasive treatment offers a life changing treatment to patients with essential tremor.
INSIGHTEC FOR NEUROSURGERY
Learn more Diann Shaddox Foundation for Essential Tremor
Billy Williams: First Patient Treated with Focused Ultrasound for Essential Tremor
Because of the undeserved stigma attached to disabled workers, individuals with disabilities often face incredible odds when searching for employment. This is a sad truth, but one that can be overcome if you know your rights.
This guide was created to introduce disabled workers and job-seekers to the rights afforded to them by federal and state governments. In addition, we offer useful tips for finding a job, advice on staying gainfully employed, and guidance that can help you talk with an existing employer about making a reasonable accommodation for you.
Having any kind of disability does not preclude you from earning a living and supporting your family, nor should it. However, you may need to try harder than others to find employment that will adequately use your skill set without testing your disability or causing you undue harm.
Keep reading to learn more about your rights and responsibilities as a disabled worker, and best practices for moving forward.
What the ADA and Other Laws Mean to WorkersWhen anyone mentions the “ADA” in the context of disabled worker’s rights, they are speaking of The Americans with Disabilities Act of 1990, which prohibits the discrimination of persons with disabilities seeking employment while ensuring they have equal opportunity.
The ADA was created based on the basic principle that “physical or mental disabilities in no way diminish a person’s right to fully participate in all aspects of society,” with the goal of providing a “clear and comprehensive national mandate for the elimination of discrimination against individuals with disabilities.”
Although the Americans with Disabilities Act of 1990 is long and cumbersome to read in its entirety, its main components can be summarized as follows:
Americans with Disabilities Act at a Glance
Americans with Disabilities Act at a Glance
Book signing, concert part of Aiken Wine & Sign event
Apr 13 2016 6:20 pm
STAFF File PHOTO BY DEDE BILES Diann Shaddox is an author who founded the Diann has essential tremor and will have her books available at the
During the upcoming Aiken Wine & Sign, guests will be able to mingle with authors during the day and enjoy live music during the evening.
The Diann Shaddox Foundation for Essential Tremor is based in Aiken and was founded by Diann Shaddox, who has essential tremor.
More than 30 authors will be scattered around the center from 9 a.m. to 4 p.m.
In addition to authors from Aiken and other parts of South Carolina, there will be writers coming from New York, Pennsylvania, Ohio, Tennessee, North Carolina and Georgia.
Various genres from children’s books and romances to thrillers and mysteries will be represented.
Submitted Photo by Jay Armitage Brad Carter is an actor and singer who has essential tremor. He will perform as part of the upcoming Aiken Wine & Sign event.
Shaddox’s books will be among those available.
Admission is free.
Food, wine and craft beer will be sold.
The Diann Shaddox Foundation has held similar events before, but this will be its first in Aiken.
“It’s going to be a lot of fun,” said Randy Miles, executive director of the Diann Shaddox Foundation.
Submitted Photo Performer Brad Carter recently opened for Wynonna Judd and the Big Noise at its concert in Los Angeles.
That night’s happenings will start at 7 p.m. and run to at least 9:30 p.m.
Brad Carter, an actor and singer with essential tremor, will perform.
Carter grew up around Macon, Georgia, and lives in Los Angeles.
In addition to his music career, Carter has appeared in TV shows such as “Sons of Anarchy,” “True Detective,” “House,” “Dexter” and “Bones.” He also has been in movies such as “Black Mass,” which starred Johnny Depp and Benedict Cumberbatch.
“But his first love will always be music,” states on his website. “After a debilitating disease threatened to rob Brad of his ability to play guitar, he made world news by playing his guitar during a brain surgery designed to give some relief to his condition known as essential tremor.”
Submitted Photo One of Brad Carter’s acting roles was Charlie Lange in “True Detective,” which features Matthew McConaughey as Detective Rust Cohle and Woody Harrelson as Detective Marty Hart. Carter will be in Aiken later this month during the Aiken Wine & Sign event.
In February, Carter opened for Wynonna Judd and The Big Noise at the El Rey Theatre in Los Angeles.
During his Aiken appearance, he will be joined by a couple singers and a keyboardist and will play songs from his debut EP, “FieldHand,” and from his full-length CD that’s scheduled to be released later this year.
“I’m excited that (Diann) and Randy have taken on their own movement to raise (awareness),” Carter said. “I would love to see her foundation grow. ... I truly believe she wants to help people.”
Jay Jefferies will emcee for the night portion of the Wine & Sign event.
Admission is $75 for one ticket or $130 for two tickets.
Each price level includes food, wine, craft beer and one signed copy of Carter’s EP.
For more information on Carter, visit www.thebradcarter.com.
A basket of items will be raffled off throughout the full event.
One of those items is a flour sifter signed by Carter, who has utilized the appliance as an instrument.
Each raffle ticket will be $5 or five tickets for $20.
The winner will be revealed during the evening and doesn’t need to be present to win, according to Miles.
Stephanie Turner graduated from Valdosta State University in 2012. She then signed on with the Aiken Standard, where she is now the features reporter. She primarily covers health topics, arts and entertainment, authors and restaurants.
PHOTO CAPTION: The Diann Shaddox Foundation for Essential Tremor (DSF) is the recipient of the Holley Heating & Air's monthly Holley Community Fund donation for January. Pictured (left to right) are DSF executive director, Randy Miles; founder, Diann Shaddox; and Holley Heating & Air president, Lee Boylston. The Holley Community Fund is an ongoing program that donates to a different local nonprofit organization each month and is underwritten by Holley Heating & Air Conditioning, Aiken's leading provider of heating and air conditioning products. Millions of children and adults live each day with uncontrollable shakes from essential tremor (ET), the largest movement disorder in the world. It can begin at any age, from 1 to 100. DSF's mission is to educate and increase awareness about the people afflicted with ET — especially children — and provide medical research grants to find the cause and a cure for ET.
Ten things to learn about Essential Tremor
The main thing to learn from this is you aren't alone. Please join Team DSF and help us make a difference.
If you use H&R Block please download this form and take it in with you. The Diann Shaddox Foundation for Essential Tremor earns $20.00 for every new client we refer to H&R Block.
The Diann Shaddox Foundation for Essential Tremor is an approved charity for PayPal/eBay. Please add us.
The Diann Shaddox Foundation for Essential Tremor is an approved charity for PayPal/eBay. Please add us.Start selling for Diann Shaddox FoundationMake a donationThe Diann Shaddox Foundation for Essential Tremor is fighting the battle for ET a neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or trunk. Over 10 million Americans have ET. ET can begin at any age and doesn't discriminate with age, race, sex, or national origin. Awareness will stop the bullying, people losing their jobs, college students having their dreams disappear and end depression for people worldwide. DONATE #EndET www.diannshaddoxfoundation.org
Relaxation Tips for Those With Essential Tremor
In some people, too much stress simply results in irritability. In other people, too much stress can cause or worsen health problems, including Essential Tremor. Learning to relax is the key to reducing stress.
Below are a few relaxation exercises. Be sure that you have a quiet location that is free of distractions. Make sure that you are in a comfortable body position and a good state of mind. Try to block out worries and distracting thoughts.
WebMD Medical Reference
Johns Hopkins Medicine: "Essential Tremor."
Pal, P. Annals of Indian Academy of Neurology, July 2011.
Medscape: "Essential Tremor: A Clinical Review: Approaches to Treatment."
Reviewed by Neil Lava, MD on September 20, 2014