Diann Shaddox Foundation for Essential Tremor
I wanted to add this story. It isn't all adults who suffer with ET. This is about Nathaniel one child's struggle.
Hi. My name is Crystal. 3 years ago we noticed my youngest son who was 2 at the time was tilting his head a lot and his hands would shake. I took him to the Dr. who then referred us to a Neurologist at Children s hospital in Seattle. Nathaniel had an MRI done and it was determined that he has Essential Tremors. My Mom has them too, but she doesn't call them essential she just calls them Familial. Nathaniel was 2 when he was diagnosed. He is now 5 and because he is in kinder we are noticing he is struggling more and his hands and arms are tremoring more frequently. His Dr. sent another referral to Children s Hospital and village(closer to our home) and he will most likely have another MRI done.
A year ago we had him tested for special ed because he was having some behavior issues, the only thing he qualified for was O.T. But the lady could only see him when I was at work. I work 3 hours a day. LOL So we had to withdrawl.
We had him tested again for O.T. this year and he didn't qualify by 2 points.
Well a few weeks ago his tremor was pretty bad, where most his body was shaking. the school nurse called me and his teacher was staying with him. This caused me to be more worried. ANd push more. We are now trying to get him a 504 plan so they can make accommodations for him at school. Things like writing, drawing, eating, grabbing are hard for him and stressful. He can do it but not always in the time they want.
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