Well my ET is a little different because I shake at rest and while in motion and it effects both arms/hands and my right foot. My kids won't let me help with any boo-boos they get because they say the shaking makes it worse. I am not allowed to use scissors or use sharp knives without being very aware of what I am doing. My oldest who is almost 13 gets a concerned look on her face when she sees the tremors act up. I struggle everyday to work on a computer for work but the scroll mouse helps and I struggle everyday with home life. I am not able to take any of the meds so I learn to deal.
With all that downer stuff I have also met and made some wonderful friends. I have a ton of people who love and support me and a safe place to vent or ask questions. I have learned patience and that it's ok to ask for help, or go slow or even say no if it's too much. I have shook my whole life but finally at the age of 33 it doesn't scare me because I understand what it is. I don't mind people knowing my name because ET is my new friend who isn't going anywhere. I still try to hide it or control it but I am not as afraid to be around others.
My ET story! My name is Lily C Haryett.
I have had ET for the majority of my life. The first knowledge that I had ET was in grad school and I was to practice printing my letters and do math. I was shaking and to control it I would tense right up
and the first time my arm started to hurt. (I might add that I am all so a transgendered woman and did not start my transition till a year and a half ago and I am 42 now!) I often as a little boy when I was frustrated with my tremors I would act up. I all so had trouble learning how to do my laces up or do up my buttons.
In my teen years, I took note that in shop class I had trouble with using saws and equipment and stuff inside the shop and drawing out things and doing a lot of fine motor skills I still have a very big problem dealing with change and coins. I might add that my spelling and grammar problems are a direct result of my tremors in school! I knew I had a ton of problems with doing most things in shop class and auto shop and most things I even had and still do have a problem typing and I even tried to do home ec and sewing and stuff like that and that was not a help. School was my biggest problem and disappointment.
In my adult life, I have had a lot of jobs and lost jobs because of my tremors. Now I will explain one part of this out. It was early 2000,s. I was working at this small assembly company and there was this one little job making store display shelves that were spring loaded to keep product at the front and part of the job was putting in gears and washers in the two holes and a rivet to hold the shelf together to its steel base. Now I learned how to do this really fast sitting down on an adjustable chair but one day they took the chairs away and I could not do the job without shaking and I was no longer as fast or could keep up with the work. I at this point knew there was something up but no one told me about ET. So I was told I was slow and stupid and believed it. Then I
was lead in to the offices and told I was too slow and let go!
Now as I am transitioning in to a woman I am finding makeup application and some of the small buttons and clasps on tops and bottoms and some buckles on shoes as well as doing my hair very difficult. The worst is it’s getting worse and not going away! The big problem I am finding is all the drugs to control ET and my HRT interfere with the heart meds I am on and ether make my heart rate high and blood pressure is high! I believe that my ET is responsible for my right shoulder and arm pain in both arms. I am finding some times it’s within my
head and I have a leg shake as well. That’s my story in a nutshell! Lily Cole Haryett