WHO IS THE DIANN SHADDOX FOUNDATION?

The Diann Shaddox Foundation is a powerful advocate for individuals affected by Essential Tremor disease.
Grassroots advocacy is the core of our mission and the driving force behind our foundation's initiative. By uniting, we can effectively influence legislation, shape policy, and drive medical research to enhance the quality of life for all affected by ET.

DEDICATED and COMPASSIONATE

Mission to Empower Patients and Research the Root Cause of Essential Tremor to Find a Cure
Essential Tremor Founded
The Diann Shaddox Foundation for Essential Tremor (DSF), a 501 (c)(3) non-profit organization, was founded in 2014 by author Diann Shaddox, who has lived with the challenges of Essential Tremor (ET) her entire life.
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Inspired by the heartfelt stories shared by others who struggle with ET, Diann knew she wasn't alone on this journey and felt a strong sense of urgency to offer support and seek a cure for Essential Tremor. She founded this organization to advocate for worldwide awareness, unite the ET community, and lead research to develop new treatments and a cure. 
WE ARE HERE FOR YOU
​Our mission is clear: to provide hope and unwavering support to those whose lives are profoundly impacted by ET. We are committed to making a significant difference for countless individuals worldwide.  

COMMITTED TO FIND A CURE

​The Diann Shaddox Foundation is committed to relentlessly pursuing research to solve the mysteries of Essential Tremor and find a cure.

DSF actively promotes medical research and has developed a range of successful programs, including a Scientific Advisory Board, ET Talks Webinar, and online support groups. We take pride in our achievements and recognize there is still much work to do, but we won’t stop until a cure for ET is found.
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DSF 2026 STRATEGIC PLAN

​Under the decisive leadership of the Executive Leadership and the dedicated Scientific Advisory Board, the Foundation is poised to discover groundbreaking treatments and drive a new era of advancement in ET medical research.

Key activities and goals
  • Research: 
         We are committed to relentlessly pursuing research to solve the mystery of Essential Tremor.
  • Patient Care: 
    We aim to provide critical information and support to help patients live productive, healthy lives. 
  • Advocacy: 
    We advocate for policies that promote scientific advancement and improve earlier access to patient treatment. 
  • Community building: 
    We work to unite the worldwide ET community. 
  •  Business Partnerships: 
     DSF partnerships are built to create shared value: improving patient lives while offering sponsors credible, patient-driven engagement opportunities across education, outreach, and research enablement. Partners 

WE CARE

Our Goal

We are dedicated to discovering new treatments, medications, and devices, as well as promoting healthy options and finding a cure for ET. Our goal is to enhance the global medical community's understanding of ET and foster advancements that truly make a difference.​
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  • Vision: Bring awareness and a cure for Essential Tremor.
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  • VALUES:
We maintain the highest ethical standards for our programs and services. We are known for our perseverance, optimism, and diligence in fulfilling our mission. DSF has helped and will continue to help millions suffering from ET.
 
  • Equality:
We aim to promote fairness and justice for people with ET disabilities, regardless of their ethnic, cultural, or religious backgrounds, so everyone with ET can live full and healthy lives.

  • Respect:
We honor the dignity and uniqueness of each person and show sensitivity and empathy for others' needs.​
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​Diversity, Equity, and Anti-racism The Diann Shaddox Foundation is committed to taking intentional and meaningful action as a fully inclusive, actively diverse, and strongly anti-racist organization. We prioritize respect and value for the communities we serve and remain steadfast in our pursuit of equity and social justice in all aspects of our work. Our dedication is unwavering, and we actively promote change, ensuring that our mission leaves no room for discrimination or inequality.
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The Diann Shaddox Foundation is an independent Foundation.

WE ARE HERE FOR YOU

Why Give to the Diann Shaddox Foundation
We mobilize resources and data for our ET Research, which investigates the causes of ET disease. Our mission is to empower patients and research the root cause of Essential Tremor to find a cure. We won't stop until we succeed.
Our goal is to help patients navigate the stages of Essential Tremor while effectively addressing their physical, mental, and emotional needs. DSF is committed to advocating for recognition and driving meaningful change to enhance their quality of life and health outcomes.
Diann Shaddox Foundation for Essential Tremor