Randy Miles Executive Director
December 7, 1953 - March 20, 2026
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It is with deep sadness and heavy hearts that we announce the passing of Randy Miles, our Executive Director and Co-Founder of the Diann Shaddox Foundation, as well as the husband of Diann Shaddox, on March 20, 2026. Randy was a respected leader in our industry, a dedicated advocate for raising awareness of Essential Tremor worldwide. Since co-founding the Diann Shaddox Foundation in 2014, he played an invaluable role in advancing the foundation’s mission. His passion to find a cure for Essential Tremor stemmed from his love for Diann, who has lived with the challenges of ET her entire life. Randy spearheaded fundraising initiatives that supported groundbreaking research and launched community outreach programs that connected patients and families. Randy consistently demonstrated professionalism and compassion, taking time to engage with each ET patient to listen to each patient’s story, making everyone feel valued and understood. |
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Thank you, Randy, for sharing your brilliance with us. You will be deeply missed more than words can express.
Condolence letters and donations in memory of Randy Miles may be submitted via |
WELCOME TO THE DIANN SHADDOX FOUNDATION
Offering hope for individuals and families with Essential Tremor
Together, We Can Find a Cure for ET
Your unwavering support fuels our research. We are advancing research toward a brighter future and new treatments.
Tell your ET StoriesYou are your best ET advocate. Tell your story to the world. For every person telling their story, millions are living in silence.
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Take Action for ETStand firm to support ET disease! Advocate passionately for the rights and needs of all patients, demanding new treatments and a cure.
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Ways to Give Donate to the Diann Shaddox Foundation and fund ET research to develop treatments, understand the root cause, and find a cure.
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WHAT SETS US APART
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Unparalleled Support from Dedicated Leaders of the Diann Shaddox Foundation
The Diann Shaddox Foundation for Essential Tremor (DSF) was founded in 2014 by author Diann Shaddox, who has lived with the challenges of Essential Tremor (ET) her entire life and serves as a powerful advocate for those affected by ET.
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RESOURCES ARE AVAILABLE
There are many ways and resources to join the fight for ET.
Latest Updates & What's HappeningLearn about our ET Talks Webinar, Essential Tremor news, and what's happening with ET medicines, pharmaceuticals, and clinical trials. Learn More >
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Scientific Advisory BoardWe are adamant about uncovering the mystery and finding a cure for ET now. A Future without ET! Learn More >
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Patients FirstPatients are our top priority, and we work to find new treatments and help them navigate the ET process. Learn More >
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- we are here for you
Leadership, Services, And Research to Make our Goal Come True; End Essential Tremor |
HELP US LEAD THE WAYPartnerDSF partnerships are built to create shared value: improving patient lives while offering sponsors credible, patient-driven engagement opportunities across education, outreach, and research enablement.
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WE ARE FOR YOU
You don’t have to face this journey by yourself. Become a part of a passionate team. Take the first step and join us.
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ET Champions
Topic: A safe place where members coping with ET come together.
Private online support group |
ET Conference
Topic: Educational event features programs with sessions on navigating Essential Tremor.
In person & Livestream
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Social Media Support Group
Topic: Living with Essential Tremor. Share experiences and offer other unwavering moral support and guidance |