About our Foundation
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Diann Shaddox Foundation for Essential Tremor is a Non-Profit public organization 501 c(3) 47-1008505 and our mission is to educate, increase awareness about people afflicted with Essential Tremor and to find a cause and cure.
The Diann Shaddox Foundation for Essential Tremor operates on it’s on. All our donations go to DSF programs, Awareness for ET, Family Assistance Program, Suicide/Bullying Awareness, DSF Children Educational Initiative Program, and Medical Research Program.
DSF mission is to find a cure & increase awareness about people afflicted with Essential Tremors the largest movement disorder in the world. Over 42 million people worldwide including children have Essential Tremor.
We at DSF believe we can make a difference in millions of people’s lives and directly change the future for everyone who will inherit or develop Essential Tremors. We want to show that Essential Tremor isn’t just for the elderly, but children of all ages have ET. Research shows that 5% of the children population under the age of 20 will develop ET. We can bring people out of hiding and educate teachers so children and teens aren’t bullied about their tremors. Help us stop the bulling. The stories are endless from people struggling with depression and living with ET.
What is Essential Tremor? Essential Tremor is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or body.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability!
DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremors and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
The Diann Shaddox Foundation for Essential Tremor operates on it’s on. All our donations go to DSF programs, Awareness for ET, Family Assistance Program, Suicide/Bullying Awareness, DSF Children Educational Initiative Program, and Medical Research Program.
DSF mission is to find a cure & increase awareness about people afflicted with Essential Tremors the largest movement disorder in the world. Over 42 million people worldwide including children have Essential Tremor.
We at DSF believe we can make a difference in millions of people’s lives and directly change the future for everyone who will inherit or develop Essential Tremors. We want to show that Essential Tremor isn’t just for the elderly, but children of all ages have ET. Research shows that 5% of the children population under the age of 20 will develop ET. We can bring people out of hiding and educate teachers so children and teens aren’t bullied about their tremors. Help us stop the bulling. The stories are endless from people struggling with depression and living with ET.
What is Essential Tremor? Essential Tremor is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or body.
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability!
DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremors and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
Most people believe only older people have ET and that it is just a social problem. However, ET is DEMORALIZING, DEVASTATING, & DEBILITATING.
ET is Demoralizing. It is embarrassing when you are not able to hold a pencil or crayon in your hand to write or color and people stare and laugh.
ET is Devastating. Living with uncontrollable tremor makes it difficult to dress, and feed yourself. Many people will never live their dream of being an artist, musician, singer, actor, doctor, or nurse.
ET is Debilitating. It isn’t just a social problem when you cut and burn yourself as you try to cook, can’t drive a car, and you are fired from a job because your hands tremor. Many people lose the ability to talk from voice tremors and aren’t able to write or sign to communicate. Sleep is another problem with body tremors.
The list continues.
The answers to help everyone living with ET are to bring awareness around the world and find a cure for ET. DSF is working diligently to make this happen.
There is one major question without an answer. What triggers ET to begin suddenly in a baby, a 4 year old, 14 year old, 20 year old, or a 70-year-old person? We will find the answer, but we need your help. Please DONATE to make a difference.
ET is Demoralizing. It is embarrassing when you are not able to hold a pencil or crayon in your hand to write or color and people stare and laugh.
ET is Devastating. Living with uncontrollable tremor makes it difficult to dress, and feed yourself. Many people will never live their dream of being an artist, musician, singer, actor, doctor, or nurse.
ET is Debilitating. It isn’t just a social problem when you cut and burn yourself as you try to cook, can’t drive a car, and you are fired from a job because your hands tremor. Many people lose the ability to talk from voice tremors and aren’t able to write or sign to communicate. Sleep is another problem with body tremors.
The list continues.
The answers to help everyone living with ET are to bring awareness around the world and find a cure for ET. DSF is working diligently to make this happen.
There is one major question without an answer. What triggers ET to begin suddenly in a baby, a 4 year old, 14 year old, 20 year old, or a 70-year-old person? We will find the answer, but we need your help. Please DONATE to make a difference.
DSF’s Mission: Our mission is clear to find a cure for Essential Tremor
- We have to bring awareness by marketing and advertising such as commercials, TV ads, newspapers, and brochures. We have to educate schools, first responders, and even medical personal about living with movement disorders. Yes, many teachers, police officers, doctors, nurses and EMTs don’t understand tremors. In an emergency precious time can be wasted when trying to explain what Essential Tremor is.
- Quality of life is a big issue for movement disorders. Daily activities such as feeding, drinking, grooming and writing become difficult if not impossible. Many people with movement disorders are too embarrassed to go into public and remain isolated in their homes and depression sets in.
- Children and teens are bullied and teased in school. With awareness, people with movement disorders can come out of hiding; live normal lives as anyone with a disability.
- DSF is working with people of all ages, all genders, and all ethnic groups.
Why give to DSF?
FAMILY ASSISTANCE PROGRAM The DSF Family Assistance Program is a temporary assistance program and helps keep families/individuals safe and healthy through difficult times. The program offers several programs to eligible people and will assist families with basic Essentials like food, gas, help children with school supplies, and medicine.
MEDICAL RESEARCH PROGRAM: Team DSF Medical Research Program is set-up to reveal the latest treatments for Essential Tremor whether it is the cutting-edge medications or surgeries and to find a cure for ET. DSF is determined to advance treatments that can slow, stop, or reverse the progression of Essential Tremor.
DSF NATIONAL CHILDREN EDUCATIONAL INITIATIVE PROGRAM: DSF Educational Initiative includes educating our school systems about Essential Tremor. Team DSF is working with Legislators and Educators on a pilot program to inform Principals, Teachers, and school Nurses about Essential Tremor. Helping them to identify and become aware of symptoms of ET in Children in their classrooms. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. That number is staggering, and represents a significant increase in the incidence of ET in children from even ten years ago.
STOP ET BULLYING PROGRAM: Team DSF is adamant to stop the bullying of people afflicted with ET, not only children but people of all ages. ET is disability and the world needs to be educated. Most people don’t understand ET so it brings on bulling because of ignorance.
SUICIDE AWARENESS ET PROGRAM
Find Hope & Recovery You aren't alone. DSF is committed to help people find hope & recovery in their lives who live each day with tremors.
WORLDWIDE ESSENTIAL TREMOR AWARENESS PROGRAM: Team DSF Global ET Awareness Program will bring the term Essential Tremor along with education and awareness to the world.
Because of you, DSF will lead the way on how the world understands ET and find a cure through new research. Together we can make a difference in millions of people’s lives. We can help prevent bullying, feed a family, bring awareness to ET suicide, and find a cure. Help us speed new treatments to end Essential Tremors. Please GIVE
FAMILY ASSISTANCE PROGRAM The DSF Family Assistance Program is a temporary assistance program and helps keep families/individuals safe and healthy through difficult times. The program offers several programs to eligible people and will assist families with basic Essentials like food, gas, help children with school supplies, and medicine.
MEDICAL RESEARCH PROGRAM: Team DSF Medical Research Program is set-up to reveal the latest treatments for Essential Tremor whether it is the cutting-edge medications or surgeries and to find a cure for ET. DSF is determined to advance treatments that can slow, stop, or reverse the progression of Essential Tremor.
DSF NATIONAL CHILDREN EDUCATIONAL INITIATIVE PROGRAM: DSF Educational Initiative includes educating our school systems about Essential Tremor. Team DSF is working with Legislators and Educators on a pilot program to inform Principals, Teachers, and school Nurses about Essential Tremor. Helping them to identify and become aware of symptoms of ET in Children in their classrooms. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. That number is staggering, and represents a significant increase in the incidence of ET in children from even ten years ago.
STOP ET BULLYING PROGRAM: Team DSF is adamant to stop the bullying of people afflicted with ET, not only children but people of all ages. ET is disability and the world needs to be educated. Most people don’t understand ET so it brings on bulling because of ignorance.
SUICIDE AWARENESS ET PROGRAM
Find Hope & Recovery You aren't alone. DSF is committed to help people find hope & recovery in their lives who live each day with tremors.
WORLDWIDE ESSENTIAL TREMOR AWARENESS PROGRAM: Team DSF Global ET Awareness Program will bring the term Essential Tremor along with education and awareness to the world.
Because of you, DSF will lead the way on how the world understands ET and find a cure through new research. Together we can make a difference in millions of people’s lives. We can help prevent bullying, feed a family, bring awareness to ET suicide, and find a cure. Help us speed new treatments to end Essential Tremors. Please GIVE
Values
Diann Shaddox Foundation for Essential Tremor is recognized as an aggressive leader in the world of Essential Tremor.
Our focused MISSION has not changed, to advance knowledge and recognition of Essential Tremor to the world and find a cure.
Now is the time to do more by implementing our new year strategic plan. It is clear we need to grow our public support, set our VISION into action, bring worldwide care, and increase medical research.
Our MERIT of goal of excellence will continue to grow to achieve the importance of our mission.
EQUALITY: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs in order for everyone with Essential Tremor to enjoy full, healthy lives.
We take our IDEALS as a standard to be aimed at under vital consideration to advance treatments that can slow, stop or reverse the progression of Essential Tremor.
Diann Shaddox Foundation for Essential Tremor is recognized as an aggressive leader in the world of Essential Tremor.
Our focused MISSION has not changed, to advance knowledge and recognition of Essential Tremor to the world and find a cure.
Now is the time to do more by implementing our new year strategic plan. It is clear we need to grow our public support, set our VISION into action, bring worldwide care, and increase medical research.
Our MERIT of goal of excellence will continue to grow to achieve the importance of our mission.
EQUALITY: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs in order for everyone with Essential Tremor to enjoy full, healthy lives.
We take our IDEALS as a standard to be aimed at under vital consideration to advance treatments that can slow, stop or reverse the progression of Essential Tremor.
ACHIEVING OUR VISION
- Our goal during 2021 is to ensure growth of our Diann Shaddox Foundation for Essential Tremor MISSION.
- Our vision serves as a roadmap for 2021 and future advancements. Our path is laid out and with the correct resources/funds, our vision will be accomplished.
- We are committed to reach our goal and continue unrelenting to make a difference for millions of people worldwide who live with Essential Tremor.
- This goal can be reached and sustained with support from our Board, volunteers, doctors, and our Ambassadors around the world.
- We will succeed, move forward and not deter of our mission of finding a cure for Essential tremor, educate, and increase awareness about people afflicted with Essential Tremors.
In 2020 98% of donations went to DSF ET Programs Worldwide ET AWARENESS PROGRAM, STOP BULLYING PROGRAM, SUICIDE AWARENESS PROGRAM, FAMILY ASSISTANCE PROGRAM, DSF CHILDREN EDUCATIONAL INITIATIVE PROGRAM, AND ET MEDICAL RESEARCH PROGRAM to find a cure for Essential Tremor.
Leadership & Staff for Diann Shaddox Foundation for Essential Tremor
Diann Shaddox-Founder/CEO
Randy L. Miles – Executive Director/ DSF Chairman of the Trustees
Toni Walters Jackson – Trustee & Media Consultant for ET Awareness Program
Cheryl B. Matteson - Trustee & Director of the Family Assistance Program
Darlene A. Mayo MD FAANS - Director of DSF Medical Research
board-certified neurosurgeon and neuroscientist who has been fellowship trained at Emory University worked at Mayo Clinic and Cleveland Clinic.
Bobby M. - Executive Administrator
Ambassadors:
DSF Volunteer Ambassadors are advocates, represent a voice, promote, donate, and help to raise awareness for Team DSF.
AMBASSADORS PLATINUM CLUB
Elda & Steve Foster
Dee Wallace
DSF ADVISORY BOARD
Elda & Steve Foster
MEDICAL ADVISORY BOARD
Darlene A. mayo MD FAANS
University of Louisville Physicians Neurology
FUNDRAISING/SUPPORT GROUP ADVISORY BOARD
Mary Donnelly - Essential tremor support group facilitator
YOUNG PROFESSIONALS ADVISORY BOARD
Volunteers from around the World:
Diann Shaddox-Founder/CEO
Randy L. Miles – Executive Director/ DSF Chairman of the Trustees
Toni Walters Jackson – Trustee & Media Consultant for ET Awareness Program
Cheryl B. Matteson - Trustee & Director of the Family Assistance Program
Darlene A. Mayo MD FAANS - Director of DSF Medical Research
board-certified neurosurgeon and neuroscientist who has been fellowship trained at Emory University worked at Mayo Clinic and Cleveland Clinic.
Bobby M. - Executive Administrator
Ambassadors:
DSF Volunteer Ambassadors are advocates, represent a voice, promote, donate, and help to raise awareness for Team DSF.
AMBASSADORS PLATINUM CLUB
Elda & Steve Foster
Dee Wallace
DSF ADVISORY BOARD
Elda & Steve Foster
MEDICAL ADVISORY BOARD
Darlene A. mayo MD FAANS
University of Louisville Physicians Neurology
FUNDRAISING/SUPPORT GROUP ADVISORY BOARD
Mary Donnelly - Essential tremor support group facilitator
YOUNG PROFESSIONALS ADVISORY BOARD
Volunteers from around the World:
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Meet Our Team
Diann Shaddox Foundation for Essential Tremor
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Dee Walace - professional author, teacher, dancer & actress in film, television & stage for over 40 years. The mother in Steven Spielberg’s movie “ET”
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Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
Diann Shaddox Foundation for Essential Tremor
241 Boxelder Drive, Aiken, SC 29803
DSF does not discriminate based on race, ethnicity, color, sex, religion, age, national origin, ancestry, citizenship, sexual orientation, gender identity and/or expression, or disability? DSF does not offer medical advice or recommendations and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Diann Shaddox Foundation for Essential Tremor strongly recommends that care and treatment decisions related to Essential Tremor and any other neurological condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.
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