Our approach
Business PartnershipOur initiatives brings together leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET.
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PurposeDSF purpose and commitment is to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET.
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Medical ResearchOur foundation supports Scientific collaboration research directed and performed by world-class scientists/investigators, based on solid empirically, practical experience, and scientific proof.
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About DSF
MISSION
To advance knowledge and recognition of Essential Tremor to the world and find new treatments and a cure.
Purpose
DSF's purpose and commitment is to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET.
Impact
The Diann Shaddox Foundation for Essential Tremor’s resolution is to back medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
VISION:
End Essential Tremor in our Lifetime & Unite the ET community.
Research
Our foundation supports research performed by world-class scientists/investigators, based on solid empirically supported theory, practical experience, which will build a knowledge base on scientific proof.
Business Partnerships
Our initiatives bring together leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET.
Equality: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
Goal 2024 Strategic Plan
Our initiative is to build a highly connected industry leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. Leaders who believe in our vision to unite the ET community and help them live productive healthy lives. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
Essential Tremor is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or entire body, the largest movement disorder in the world, affecting over 130 million (including children). ET can worsen with time causing serious debility. Essential Tremor can begin at any age from ages 1 to 100 and affects both men and women and individuals of every age, race or ethnicity and national origin.
Like Parkinson's disease, ET is considered a movement disorder. The disease is caused by abnormal communication—sometimes called a “misfire”—between certain areas of the brain including the cerebellum, thalamus, and brain stem.
DSF is an accredited 501 (c) (3) and operates on its own.
Essential tremor is as much as 20 times more prevalent than Parkinson’s disease in the US, (Essential Tremor - estimated 20 million). Barrow Neurological Institute
Despite its prevalence, it wasn't until 2013 that essential tremor was given its own specific diagnostic code, one that's distinct from other tremors, in the 10th edition of the World Health Organization's International Statistical Classification of Disease and Related Health Problems (ICD) code book. ICD-10-CM Code for Essential tremor G25.0
ICD-10 code G25.0 for Essential tremor is a medical classification as listed by WHO under the range - Diseases of the nervous system.
Essential Tremor isn't only tremors, scientists are learning more about the brain and how ET starts and changes. DSF is supporting medical research & clinical Trials studies to learn more how ET progresses & better diagnoses.
To advance knowledge and recognition of Essential Tremor to the world and find new treatments and a cure.
Purpose
DSF's purpose and commitment is to expand understanding of Essential Tremor throughout the world along with critical information, medical research, and ease the suffering for everyone with ET.
Impact
The Diann Shaddox Foundation for Essential Tremor’s resolution is to back medical breakthroughs that will improve the lives of those affected by ET. Support work of the worldwide scientific community to benefit everyone with ET and their families.
VISION:
End Essential Tremor in our Lifetime & Unite the ET community.
Research
Our foundation supports research performed by world-class scientists/investigators, based on solid empirically supported theory, practical experience, which will build a knowledge base on scientific proof.
Business Partnerships
Our initiatives bring together leaders and visionaries from the biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET.
Equality: We aim to promote fairness and justice for Essential Tremor disability no matter ethnic, cultural, or religious beliefs for everyone with Essential Tremor to enjoy full, healthy lives.
Respect: We embrace the dignity and uniqueness of every person, being sensitive and empathetic to the needs of others.
Diversity, Equity, and Anti-racism We commit to intentional action to be a fully inclusive, deliberately diverse, and anti-racist organization that respects and values the communities we serve. We will actively promote equity and social justice in neurology and the neurosciences.
Goal 2024 Strategic Plan
Our initiative is to build a highly connected industry leaders and visionaries from biotech industry, scientists, business leaders, pharmaceuticals, investigators, Essential Tremor groups, and communities invested in discovering new treatments, devices, and a cure for patients with ET. Leaders who believe in our vision to unite the ET community and help them live productive healthy lives. With collaboration, teamwork, and focus there is change in the way the world views ET. Together with critical thinking and innovation, we are driving results by informing the world about ET and inspiring others to join us on our mission.
Essential Tremor is a progressive and highly prevalent neurologic disease that causes a rhythmic trembling of the hands, head, voice, legs, or entire body, the largest movement disorder in the world, affecting over 130 million (including children). ET can worsen with time causing serious debility. Essential Tremor can begin at any age from ages 1 to 100 and affects both men and women and individuals of every age, race or ethnicity and national origin.
Like Parkinson's disease, ET is considered a movement disorder. The disease is caused by abnormal communication—sometimes called a “misfire”—between certain areas of the brain including the cerebellum, thalamus, and brain stem.
DSF is an accredited 501 (c) (3) and operates on its own.
Essential tremor is as much as 20 times more prevalent than Parkinson’s disease in the US, (Essential Tremor - estimated 20 million). Barrow Neurological Institute
Despite its prevalence, it wasn't until 2013 that essential tremor was given its own specific diagnostic code, one that's distinct from other tremors, in the 10th edition of the World Health Organization's International Statistical Classification of Disease and Related Health Problems (ICD) code book. ICD-10-CM Code for Essential tremor G25.0
ICD-10 code G25.0 for Essential tremor is a medical classification as listed by WHO under the range - Diseases of the nervous system.
Essential Tremor isn't only tremors, scientists are learning more about the brain and how ET starts and changes. DSF is supporting medical research & clinical Trials studies to learn more how ET progresses & better diagnoses.
What do we do?
We take pride in the accomplishments we've made, but we have a long way to go. Please join us! We can't do this alone.
- Support Medical Research and clinical trials to bring new treatments and a cure for ET. With research, medicine, therapies and alternative treatments will be discovered.
- DSF ET Awareness Program Improves knowledge and awareness of Essential Tremor throughout the medical community, first responders, Police, EMTs, Fire, and school administrators.
- Family Assistance Program gives assistance to those going through hardship living with ET. DSF assists families and individuals by providing information & resources on government assistance, SS Disability, VA benefits, treatment resources, and assistance (when available) for food, fuel, & medicine.
- Stop ET Bullying is a universal problem. Bullying abuse can be physical, verbal, or emotional. Stop bullying of people of all ages afflicted with Essential Tremor (ET) in schools & workplace.
- Children Educational Initiative includes educating our school systems about Essential Tremor. We are working with Legislators and Educators on a pilot program to inform principals, teachers, and school nurses about Essential Tremor. Our goal is to help them identify and become aware of symptoms of ET in children in their classroom.
- Suicide Awareness Improved knowledge of Essential Tremor throughout the world. Recruit Volunteers & Team Members to help spread information about Essential Tremor and Suicide Awareness. Provide support and tools. Distribute Suicide Information. Spread information on Social Media Platforms and ET Campaigns.
- Inspire young health professionals to specialize in the care of Essential Tremor. DSF is advocating and encouraging AMA to support young physicians to transition into neurology and movement disorder doctors for Essential Tremor.
- Provide ET Talks events monthly and bi-monthly to discuss living with ET, medications, devices, alternative options, exercise, and fun discussion about what’s happening with ET.
- Develop a better data system for sharing knowledge and ET information around the world.
- Promote our Be Counted. Unite the worldwide ET community. There is strength in numbers and a way for the ET community to share their experiences, moral support, and concerns for one another.
- Post DSF informational Newsletter.
- Create Videos and information articles.
- Recruit Volunteers & Team Members around the world.
- Spread information on Social Media Platforms and ET Campaigns. promote awareness for ET through newspapers, magazines, TV, radio, and events.
- Unite the Millions of Faces of ET from around the world.
- Provide support and tools for Team DSF.
- Distribute Information cards, brochures, ET medical alert cards & envelopes at no cost.
- Bring together the ET community and the world during March ET Month. Unite the ET community on March 16 ET Day of Awareness & Giving.
- Increase earlier treatment access for patients to find specialized care from movement disorders doctors.
We take pride in the accomplishments we've made, but we have a long way to go. Please join us! We can't do this alone.
eND eSSENTIAL tREMOR IN OUR LIFETIME |
DSF Programs assist millions with our Worldwide ET Awareness, Family Assistance, Children Educational Initiative, Stop ET Bullying, Suicide Awareness ET, & Medical Research but they are not without cost.
By giving a gift you ensure that our programs will continue to assist and support families and individuals to improve their quality of life.
Learn more about DSF Programs
By giving a gift you ensure that our programs will continue to assist and support families and individuals to improve their quality of life.
Learn more about DSF Programs
DSF Essential Tremor Programs
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A Faded CottageA Faded Cottage’ fuses fact with fiction to depict a compelling love story, based around an artist suffering from Essential Tremor. Order your copy today and the proceeds will go to the Diann Shaddox Foundation for Essential Tremor to find a cure for ET
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Essential tremor (ET) is a progressive, nervous system neurological disease that causes a rhythmic trembling of the hands, head, voice, legs, or trunk.
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What is Essential Tremors
Participate in Research Join ET StudiesClinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.
Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments. |
Symptoms of ETDo your hands, head, or body shake when you are holding a glass, trying to write or just sitting still and wondered what is wrong with them? Take a look at symptoms of ET.
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Videos from real people living with ET
Daniel |
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Jennifer |
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"Here I Am" by Jerry Slea
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US Representative for South Carolina District 2 Joe Wilson
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Dee Wallace,
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WAYS TO DONATEMother's Day, Father's Day, Birthday, Christmas, Anniversary, any day can be special. In Memoriam and bequests, monthly giving program, foundation gifts.
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FUNDRAISE FOR DSF ON FACEBOOKYou can start your own fundraiser on FB or join one to help raise funds for DSF. Your contribution helps bring awareness and funds for medical research to find new treatments and a cure for ET
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DSF | What's Happening | Fundraise | Programs | Contact | Terms of Use | Privacy Policy |
Ways to Give |FAQ | Essential Tremor | ET Treatment
If you have ET please talk to A movement disorder specialist — A Movement Disorder Specialist is a neurologist with additional training in Essential Tremor disease — may have information on the latest treatments and research. Seeing a movement disorder specialist for your regular Essential Tremor care or even only once a year can help to optimize your treatment regimen.
©2024 | Diann Shaddox foundation ™| All Rights Reserved. No part of this website is public domain.
All contributions are tax deductible to the extent allowable by law.
All contributions are tax deductible to the extent allowable by law.
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