Diann Shaddox Foundation for Essential Tremor
My Journey Part 2 Diann Shaddox Founder of DSF, journey of starting the Diann Shaddox Foundation
I’ve had many people ask me questions of why I started the Diann Shaddox Foundation. This is the continuing story and I hope it answers many questions.
My passion is writing and I had put off writing for years, excuses kept flowing, too busy, everyone will think I’ve gone crazy, so after many years of excuses, I did begin my journey of writing. I started in 2009 and began to write. Story after story emerged, “Legend of the Diaries” a Greek mythology, “Whispering Fog” a time travel romance, and “Miranda” a love story set in the late 1800’s, a journal of a young girl’s life.
However, my journey began one night when I wrote “A Faded Cottage” a SC love story about a man with Essential Tremor, out of frustration of my hands tremoring over the keyboard when I was working on one of my novels. That one night changed my life; I sat down at my computer and anger built letting “A Faded Cottage” come to life.
I put “A Faded Cottage” aside and kept editing my other stories to send to publishers, but “A Faded Cottage” kept pulling me in. I let friends read the manuscript and they believed I should go ahead and publish the novel to let others understand what I was living through with my tremoring hands. So began my journey. I gave in and sent the manuscript to publishers. To my surprise, I had a small publisher come back to me right away.
I stayed busy promoting “A Faded Cottage” through the summer and into fall. I was shocked, since I've had ET for over thirty years that no one knew what ET was. I asked everyone one question. “Have you ever heard of Essential Tremor?” and the answer 99% of the time was no, making me more determined to keep working. I knew something had to change.
The beginning of 2014 “A Faded Cottage” was now available in eBook, paperback and hardback.
I decided to give things a break and to keep moving on. But, once more I was confronted by people wanting to donate to me and ET, however they suggested that I start my own foundation and let my foundation give grants back to other foundations. I did research and many authors, like Nicholas Sparks, and many others start foundations so they can grant donations to other foundations. That keeps checks and balances equal.
However, the first of May, my life was jerked to a stop. My healthy young son went to the hospital with a headache. We learned he had an aggressive cancerous tumor in his brain the size of a lemon. He elected to have surgery and never woke and died on May 20, 2014.
My life now had changed and in June I sat back and reflected about my journey that had all started with one little book “A Faded Cottage.” How that one night on my birthday writing that book had sent me on a wild journey and I didn’t know if I wanted to continue. I had set out just to write my stories, but my life had turned into a whirlwind and now I had to make a decision.
I decided to take some time to think and I began the rewrites on “Whispering Fog” a time travel romance. My new editor and I finished “Whispering Fog,” hired a book designer and published the novel.
I don’t give up easy and knew my son would be disappointed if I didn’t continue with the foundation and learned it takes a while to get approved by the IRS. On August 29, 2014 the IRS approved Diann Shaddox Foundation and on October 16 it was added to the IRS data base.
What will my journey be in 2015? I have been adamant to make a change, bring awareness, and find a cure for ET. Why is DSF working to bring a cause and cure for all movement disorders, including ET, Dystonia, and Parkinson’s? I believe they are in the same family and we need medical research done on each of them to find a link. I decided that 100% of the sales of "A Faded Cottage" will go to DSF to help find a cure.
My light is growing dim, and my energy has grown low, however I will see what the future holds, and whether the flame will be distinguished or grow stronger to tell the world about ET. Many have said I’m begging for help, no not begging asking for support. There are many ways to support a foundation. Donate time to help with whatever you can, write articles, start a newsletter, help with IT services, so many ways to volunteer. Yes, it does take a lot of funds, to advertise, bring awareness, and grant medical research money to doctors, to make a difference.
I hope you will join me on my journey and if you have any questions that you’d like answered, I’d be glad to help. firstname.lastname@example.org
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