Diann Shaddox Foundation for Essential Tremor
My life living with Essential Tremor, by Diann Shaddox
When Diann was in her early twenties life changed for her, her hands began to shake when she would do tedious work. No one, not even doctors, could figure out what was happening and they, the doctors, believed she was nervous and just needed to calm down.
One day, standing at the post office window in Louisville, Kentucky changed her world. A simple form containing her name and address, she wasn’t able to fill out. That one day she had to find her answers. A neurologist finally made the discovery that Diann had Essential Tremors.
Not letting anything deter her, she continued life with the determination she had learned from her grandmother. Diann was unrelenting to do tedious work like counted cross-stitch on linen, and playing the piano even with trembling hands. It was as if her mind would relax letting her hands work without thinking. She learned how to hide her hands out in public, how to grip her drinking glass with both hands, and how to use her body for cover as much as possible.
Things seemed to be working for years, but on her birthday, December 18th, 2010 her hands were shaking uncontrollably. 2010 had been a year when many people began to question and stared at her wondering why she was nervous or thinking maybe, she was just weird. Being out in public was difficult, the stares were tough, and once more, the simple feat of filling out forms was devastating to her. Even being in a doctor's office was difficult as they questioned why she was so nervous, giving her stares.
That night of December 18th Diann sat in her office at home, anger grew watching her hands quiver, and for once in her life feeling sorry for herself. The question of why, a question without an answer played in her mind. Being a writer the words began to flow and Quaid Witherspoon, a famous artist, was born. A man who had everything or so he thought, but now his hands had deserted him and his life of painting had ceased, becoming a bitter man. The story of Quaid Witherspoon, the novel 'A Faded Cottage', became an incredible love story, one about strength of mind to fight fate and never accept what life throws at you.
Through this process of bringing A Faded Cottage to life, Diann has learned so very much. Finding ET awareness groups on the web and Facebook, talking and listening to everyone’s stories so similar to hers, has brought calmness to her life. We have to tell others about ET, so they aren’t sitting alone wondering why this is happening to them.
Diann has started the Diann Shaddox Foundation for Essential Tremor, a Non-Profit 501c(3) organization committed to help people struggling in today’s world with neurological conditions such as Essential Tremor, Dystonia & Parkinson’s. DSF goals are to add support and additional resources to the efforts of so many. DSF is dedicated to inspire, educate, enlighten, and increase awareness to the world about people living every day with neurological conditions. Our funds will be used for awareness and research to help find the cause and a cure for movement disorders.
Even though the stares will forever be, she won’t give up. Now, Diann is determined the word will spread about ET and she is going to help make it happen. The sales of A Faded Cottage will go to Diann Shaddox Foundation.
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